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What's due to Mirtazapine WD and what's not? ...So very confused :(

Posted , 9 users are following.

Karl_-_UK
Karl_-_UK

Hi all..

I've been feeling terrible; still do. (Thoughts go out to others that are struggling too).

I hope the following makes sense ...just wanted to share my thoughts

I read an old posting of David's (fellow member many will know), this one: [.."I kept tapering to 7.5, and when I stopped, within three days I was in pure misery. That was 18 days ago, and I am still suffering. Abdominal pain, cramps, bloating, insomnia, anxiety, stress, weak, nausea, dry mouth, and others. This is my second attempt, and I am determined to stay off this horrible mess. I now understand why those who abuse drugs sometimes have to admit themselves to special hospitals to detox. The emotional support alone is worth it. My advice to anyone getting off this stuff, or any of the others, if possible, find you a buddy as support that will be there for you 24/7 until you are over the hump, and do it before you start. I hope that this will help someone"...]

The parts in BOLD really really resonate with me!

Thing is, I've become so so very confused now (nothing seems ceratin except my sufferring/pain). I find myself questioning what of my symptoms are related to Mirtazapine/Remeron withdrawal? and what are related to my historical poor mental health/Depression? and what are related to my Thyroid condition (initially Overactive>>made Underative)? and/or my Digenerative Disc Disease (chronic lower back pain)? and what MIGHT be connected to some other undiagnosed 'new' health issue?

The whole situation is complex and confusing.

It seems to me that whereas say a motor car is taken to the carage and goes through a lenghty diagnostic check ..I (many of us) have but a short chat with our GP/Doctor who then prescribes whatever is the med of the moment before being sent home to analyse myself/ourselves. 

SURELY thorough and correct diagnosis with close monitoring and evaluation by extremely capable and knowlegeable clinical practioners is key? (the type of support that a celebrity drug addict might get after going into rehab or a therapeutic clinic/retreat etc).

The recession, economic cuts here in the UK have resulted in many sufferers of poor menta health just not getting the care/support/resources they are so much in need of.

I feel so alone and in the dark ..and helpless  [sad]

Kind regards, Karl

2 likes, 120 replies

120 Replies

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  • sheila65847
    sheila65847 Karl_-_UK

    Posted

    Karl, thinking of you and wishingyouucan see well. I want to respond to your longer post the 'what's due to mirt or withdrawal' more fully tomorrow. Cos I am confused too so we could share ssymptoms and experiences and perhaps muddle thro. How do I private msg you? You are not alone, there's many well meaning and supporting contributions here, that are providing their own journey experience, we can pool our many resources and find solutions for ourselves.

    • pixie22
      pixie22 sheila65847

      Posted

      When you are signed in to patient.info, then a grey envelope symbol can be seen in the top right hand corner of someone's post if they are able to receive private messages. Clink on that, and off you go - although it might ask you to sign in again with email address and password.
  • Sunbird8
    Sunbird8 Karl_-_UK

    Posted

    Karl this is my first post as I have just joined.

    I am so sorry to read of your dreadful suffering as you with draw from Mirtazapine.

    My heart goes out to you and I hope and pray that there will soon be improvement and you will feel much better.

    Reading your posts and those of others here makes me wish I had not started with this awful drug and I shall try to stop.

    Thank you to you and others here for sharing your experiences.

    Keeping you in my thoughts.

     

    • Karl_-_UK
      Karl_-_UK Sunbird8

      Posted

      Sunbird that's very sweet of you ..Thankyou

      But Inspite of my experiences and my negative opinion of Mirtazapine ...as our friend here Calmer points out ...it does work for some people; or atleast some people report having positive results so far in their journey with the drug.

      I'd hate to put you or anyone off taking something that works for them ..but at the same time because of how I have been crushed by what I am now certain is Mirtazapine (aka Remeron in USA) I would hate for even my worst enemy to go through how I've been feeling.

      Please do your research and do what's best for you.

      Peace, health and strength!

      Karl

  • Sunbird8
    Sunbird8 Karl_-_UK

    Posted

    Thank you Karl.

    Your caring thoughts for others amidst your own suffering is amazing.

    I realise that many patients remain on mirtazapine for a very long time as they are helped.

    I feel I need to withdraw as better sleep is the only benefit I get from mirtazapine.

    Just taken my third 15 inplace of the 30.

    I hope you have a peaceful night and a better day tomorrow.

    • Karl_-_UK
      Karl_-_UK Sunbird8

      Posted

      Sunbird how are you coming off? ...I mean are you following the CITA plan as often advocated by our friend Calmer and others?

      Much peace

    • Sunbird8
      Sunbird8 Karl_-_UK

      Posted

      Karl I had no idea what I was doing earlier today but due to the kind,friendly advice I have received I will try to follow the Cita plan.

      Many thanks and may you have a good night.

    • Karl_-_UK
      Karl_-_UK Sunbird8

      Posted

      You have chosen whatvi believe is the best path...

      Goodnight Sunbird

      Karl

      (Listening to 'Buddhist Chant' for inner peace and healing - Youtube)

    • Sunbird8
      Sunbird8 Karl_-_UK

      Posted

      Good morning Karl,

      I hope you have had a peaceful night.

      I try to follow a Buddhist path and the power of mantra's is indeed very healing.

      May every one have a good day.

  • Karl_-_UK
    Karl_-_UK

    Posted

    To all those members (too many to mention) who kindly took the time to forward me kind sentiments and words of advice etc .. Thankyou sincerely..

    Its true that I've had a bad distressing soul destroying time for many days ...and although I'm not out of the woods and am fearful of a relapse ...I wish to report that I do feel better today.

    To put it into somekind of perspective using a scale of 0 - 100% ...with WD effects at their worst ...I was say fluctuating between 5-10%.

    But today I'd say I've fluctuated between 40-50%.

    With this moderate improvement I know have some appetite, have been able to leave my home which had become my prison ..and have undertaken a little light exercise ...and no longer have merely dark apocalyptic thoughts. I hope that I can get a good nights sleep tonight as I think good quality sleep is vital to the mind.

    Anyway, THANKYOU again ...

    Much peace and happiness to all...

    Karl with fingers crossed

    • lesley99443
      lesley99443 Karl_-_UK

      Posted

      Yay...buzzing for you Karl thats fantastic news....go you and keep it going...believe!!
    • lesley99443
      lesley99443

      Posted

      And yes cant find earlier thread but went to doctors feel good that i went as couldnt be going on like this.....he was very understanding and took me off them and onto something else...so feeling hopeful coz ive got too!!.......time will tell but going in with positive or no point....nice one Karl ...glad you got out yay!!
    • suzie78191
      suzie78191 lesley99443

      Posted

      hi leslie, what has he put you on if you don't mind my asking?  do you feel a bit better knowing the dr understands?
    • lesley99443
      lesley99443 suzie78191

      Posted

      yea suzie feeling better now he understands ive been put on venlalcic xl..whatever they are we shall see....
    • pixie22
      pixie22 lesley99443

      Posted

      It's venlafaxine sustained release, I take it as well as mirtazapine.
    • lesley99443
      lesley99443 pixie22

      Posted

      oh ok pixie well im off the mirt and on the ven stuff..we will see hopefully better..fingers well crossed
    • pixie22
      pixie22 lesley99443

      Posted

      You can but try! I hope it goes well for you. Pixie xx
    • lesley99443
      lesley99443 pixie22

      Posted

      cheers hun you can but try..im on the bus now as they say!!!..thanks xx
    • Calmer
      Calmer Karl_-_UK

      Posted

      Great news Karl, hope you stared at the horizon !  Keep up the good work, bet you could get used to liking the outdoors ~ I hope sleep is your friend tonight.

      Best wishes

    • Sunbird8
      Sunbird8 lesley99443

      Posted

      Lesley I am glad your appointment with GP went well and I hope your new medication really helps you .

      May you have a good night's sleep.

    • Karl_-_UK
      Karl_-_UK Calmer

      Posted

      Calmer I spoke to early ...slept badly last night, awoke distressed with pain/anxiety, migraine, nausea amongst other things.

      There must have just been a temporary break in the storm ...sadly I just felt the sunshine and incorrectly assumed the squall was over.

      Thanks as always ...wishing you peace, strength and fortitude.

      Karl

    • Karl_-_UK
      Karl_-_UK lesley99443

      Posted

      As shared with Calmer :

      Lesley, I spoke to early ...slept badly last night, awoke distressed with pain/anxiety, migraine, nausea amongst other things.

      There must have just been a temporary break in the storm ...sadly I just felt the sunshine and incorrectly assumed the squall was over.

      Thanks as always ...wishing you peace, strength and fortitude.

      Karl

    • lesley99443
      lesley99443 Sunbird8

      Posted

      thanks Sunbird well he took me off mirtz and put me on another ad so lets see how it goes im still a bit wonky but glad to be off them he didnt mention withdrawal and said would be fine just changing!!...so im gonna do my best to get through this hell...spent 3 days hiding under a blanket but today up and showered...trying the mind over matter theory fingers crossed...hope you are ok  x
    • Karl_-_UK
      Karl_-_UK lesley99443

      Posted

      Lesley from my heart wishing you good luck!

      OK so youvare up and showered? GREAT

      Now what other positive thing or things can you do? (...maybe sit in the sun for a while doing deep breathing? maybe repeat positive uplifting words over and over? maybe walk up n down the stairs or garden path a few times?) ... its all about tiny baby steps for the likes of us. Sometimes just opening my curtains is a major achievement.

      Keep hydrated, try to eat heathily, keep your mind on positive stuff and take as many baby steps as you can.

      Not much by the way of advice n encouragement but truly am wishing the best for you!

      Hi Songbird and everyone! Wishing ya'll a peaceful day!

    • lesley99443
      lesley99443 Karl_-_UK

      Posted

      oh cheers Karl well spent 3 days hiding under blanket today i have dentist appointment which i nearly bottled but gave myself a kick up the u know what with the help of a friend look aroind at the mess ive been  living in and thought know what im gonna clean up today.......agreed ive had curtains drawn for 3 days blocking out the lovely sun which is madness....its all about baby steps but today decided that i am just gonna keep doing housework ive neglected even though i dont want to or i will just give up forever...quote me on this tomorrow......i too am wishing the best for you...have you got out of your bedroom today...opened curtains....maybe a bit of fresh air for you too would be good...sending you great thoughts for your kind reply and wishing you all the best.....peace and love to all
    • Karl_-_UK
      Karl_-_UK lesley99443

      Posted

      Wow sounds like you are firing on more cylinders today ..GREAT! ...so so pleased for you Lesley...

      Me? Still on rollercoaster ...but I recognise some rollercoaster are bigger than mine. I just try to focus on the baby steps and keep hydrated, eat a little and try to strengthen my thoughts thru meditation. All things even if I font want or feel to do ..I force myself to do.

      Wishing you much peace and continued motivation throughout the remainder of your day!

      Karl

    • Sunbird8
      Sunbird8 lesley99443

      Posted

      Hi Lesley,

      So good to see you again as I have been hoping and praying that you would be improving on your new meds.

      Even though you are struggling your brave positivity shines through your posts and it is wonderful to know that after your 3 days under the blanket you have got up and showered and having a tidy up!

      Well done Lesley,you are an inspiration.

      May your roller coaster keep going upwards and you can feel improvement with each new day.

      Keeping you in my thoughts.

    • Sunbird8
      Sunbird8 Karl_-_UK

      Posted

      Hi Karl,

      Good to see you and I hope you are able to find some glimmers of light amidst the dark despair of WD.

      Your 'baby steps' are excellent advice which I shall take on board my self.

      I hope you have managed to get a breath of fresh air today and may you have a good night's sleep and a better day tomorrow.

      Best wishes to all.

    • lesley99443
      lesley99443 Sunbird8

      Posted

      hi Sunbird thanks for your lovely comments i could use them today as the positivity as flown out of the window for now...now you have inspired me to get out from under the blanket again and get a bit of a life...cheers for the psitive vibe hope you are ok and thanks for the inspiration.....peace and love comin at ya xx
    • lesley99443
      lesley99443 Karl_-_UK

      Posted

      hey Karl thanks for your comments but ive ground to a halt again seems to e one day good a few rubbish but like you say baby steps and i applaud you for doing things you dont want to thats the answer i think im gonna work on it today even though dont want to..had a few days where i wanted to give up but thats not an option.....its up to me to kick self up butt...hope you are doing ok today...peace and love
    • Sunbird8
      Sunbird8 lesley99443

      Posted

      Hi Lesley,

      Sorry to hear that today has not been a good day for you.

      What a rollercoaster and I hope tomorrow will be an 'up day'.

      Perhaps you did too much yesterday?

      Treat your self kindly Tina and I hope you can do some baby steps tomorrow.

      Keeping you in my thoughts.

    • Karl_-_UK
      Karl_-_UK lesley99443

      Posted

      Lesley feel for you ..really sincerely do!

      I share Songbirds comments below..

      You know don't beat yourself up ..or rather DON'T LISTEN TO NEGATIVE THOUGHTS ...not easy I know when mind, body and spirit are ALL crushed. But focus on the fact that our minds can and do and often deceive us and alter how our bodies function.

      Sleep well ...and tomorrow ...try and plant little positive seeds that can grow by the weekend!

      Much peace Lesley

    • lesley99443
      lesley99443 Sunbird8

      Posted

      Hi Sunbird...thanks for the cheery words ..i am really sick of moaning to people now i was never a complainer in my life the things these drugs do to us eh!!,,,,,lazed around till this afternoon and gave myself a big kick up the you know what...made the most of the sunshine and took dog out twice showered and dressed...hey a rollercoster indeed...so baby steps again......thanks for the kind words lovely and hope you are good...got you in my thoughts too smile
    • lesley99443
      lesley99443 Karl_-_UK

      Posted

      cheers Karl for sharing those positive thoughts and yes agree musnt listen to those negative thoughts they keep you there thats for sure!!....as i shared with Songbird i dressed and all that and got out in the sun..felt good........i havent been sleeping due to change of meds and thats enough to drive you batty on its own as we know!!......will keep planting those positive seeds as you suggested............thanks so for the kind works always a little ray of sunshine!.....how are you.......obviously concerned for you too my friend.

      peace and love coming at ya

    • Karl_-_UK
      Karl_-_UK lesley99443

      Posted

      I hear you Lesley

      Truth is sometimes I can't even follow my own advice ...feel like a fraud or hypocrite sometimes as there are times/days/periods that I can't even drag myself forward. THAT SAID ...I/we must keep TRYING on those hellish days or when we relapse. MUST keep searching and looking for tiny positives in our life ...yes, even when our mind is convincing us all is doom n gloom.

      For me, I would really like a 100% accurate explanation as to why ..or what's causing the cycle of good days vs OK days vs lousy days. Its like one big rollercoaster ..and I can't seem tobpredict with certainty what tomorrow will bring in terms of my anxiety/emotions/physical pains etc.

      That in itself is stressful and leaves me wondering has Mirtazapine destabilised my whole body? ...or thrown my mind, nervous system etc out of sync?

      Only my humble thoughts ..but hope you follow.

      Let's all on here aim to take atleast one baby step today! smile

      Best wishes as always

      Karl (not so good today but hoping still)

    • lesley99443
      lesley99443 Karl_-_UK

      Posted

      Hey Karl i totally agree an explanation of why some days are absolute downers and others not so bad...you never know where you and thats well stressful in itself.......i think that mirtz deffo leave your mind and everything well out of sync thats the problem, to say the least!....and deffo agree that we can all be great at the advice and rubbish and doing it...but hey thats what we are all here for to woop eaach other up (if poss) on the down days and encourage good days...to me it seems like someoone has switched my on switch off somehow mentally blocking me from getting me up and going......i cant comment on your physical pain as touch wood i havent had anything yet on switching apart from no sleep...but my thoughts are always with you and hoping you are coping and taking those baby steps.........keep on walking......kind regards...keep the faith Karl smile
    • Sunbird8
      Sunbird8 lesley99443

      Posted

      Hi Lesley,

      You are certinly not a complainer,infact you are just the opposite!

      Good to know that again today you got out in to the sunshine to walk your dog, showered and dressed.

      It would have been easy for you to continue 'lazing around' but you got your self going again!

      Well done Lesley,you have hidden strength and inspire others.

      We who have a dog are lucky as my dog ensures that I need to walk him each day!

      Thank you for your kind thoughts,much appreciated.

      I hope your roller coaster will but up again tomorrow,baby steps Lesley.

    • lesley99443
      lesley99443 Sunbird8

      Posted

      thank you Sunbird for your lovely words made my day how kind of you..yes we are so lucky to have dogs mans best friend for sure!......had a "sloathing" day today grey old rainy day here not great for motivation...nearly rolled back over and gave in but now upright.......its all your lovely comments and people on here that are giving me hope...so bless you for that....i hope that you are ok today........kind thoughts comin at ya smile
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