When does the fusion/adhensions/change in structure occur?
Posted , 15 users are following.
We are raw, irritated, red, have tears, hurt, sore, itch, and have white patches. We also have fusion and disappearance of some of our parts. Just by looking you can see it all happening except the fusing and disappearing parts. It seems adhering occurs when you don't know..it just appears one day. Is it occuring when we itch or when we are raw and irritated? Do the white patches causes the adhering and covering over our parts? Does the fusing happen at the white patches or can it happen anywhere else on the vulva where we don't have reddness, white patches or itching ? Then do we use it all over the vulva when we are free of flare-ups and using steroid once week? When we are free of a flare-up where to we use the cream? Do we use it where we had the iritation ? Do we use it where the scars are and the fusing is even though we are flare free? I read we use the steroid to prevent further scarring and fusion, but I'm still not sure if the fusion is the result of the other symtoms and when we do maintence with the steroid where do we put it? Hope this makes sense.
0 likes, 33 replies
Barking judy02533
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judy02533 Barking
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Jess1612 Barking
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Pollyanne judy02533
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does anyone know how things progress?
I stumble along, when things feel comfortable hope for the best, when I itch soothe with emu/coconut oil, when sore use dermovate, keep checking and find a bit more missing every now and again.
What a strange disease, it would be great to totally understand what is happening and know how to cope.
judy02533 Pollyanne
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Pollyanne judy02533
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I don't think I have it as bad as some of you but I am losing labia and feel very " open" and wonder if it will make me more prone to infection
suedm judy02533
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Tell it as it is and how angry you are You will certainly make an impact
Good Luck Sue
judy02533 suedm
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suedm judy02533
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I have chatted to my female friends - and my sons about LS - they dont look at me VERY differently- they think i am different anyway!!!
alison54950 judy02533
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judy02533 alison54950
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alison54950 judy02533
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ElleF judy02533
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judy02533 ElleF
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ElleF judy02533
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During the flare I am applying Clob twice daily after soaking in the tub with baking soda, and I will keep doing that until things calm down. I apply it to all LS areas once daily and only the burning spot, and anything that doesn't look 'normal' for the second application.
lenep ElleF
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My gp is sending me to a sexual health clinic now. I think to get a second opinion 're the cream. I want to try it though. Don't have any other symptoms at the moment except disappearing bits, - and that's enough too! I'm not menopausal yet, so a little worried .
I've tried the phyto estrogen cream, still using it, but so far no change.
ElleF lenep
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lenep ElleF
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ElleF lenep
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suedm lenep
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lenep suedm
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Interesting you say that. Hmm..I'll see if I can get the estrogen.
Anything to get the labia back to normality. I do doubt they can ecpand/ grow back, but worth a shot
Guppy007 ElleF
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Immunosuppressant drugs are a class of drugs that suppress or reduce the strength of the body's immune system. They are also called anti-rejection drugs. One of the primary uses of immunosuppressant drugs, is to lower the body's ability to reject a transplanted organ, such as a liver, heart or kidney. I wish the medical establishment would get their act together, and start doing some research, as I have a feeling that because this disease is something most people would rather not talk about, it could in fact be of epidemic proportions, something that we potentially are not aware off, who knows? And I'm pretty sure if men were losing their private parts, the research would already have started!