Where I am at with my ME/CFS

Well at least that's one very positive thing that has come out of your meeting yesterday, Alicia :D

I can see where you are coming from (I absolutely hate that expression!) but my brain is very muddly today so forgive me

I don't think I am quite ready to embrace my life as it is today, but I think for you and I particularly, due to our age, :roll:... it is probably a very sensible and realistic approach.

I would say I vary between 40 - 60% of my former self .... but I am sure that if I paced myself as I should, I could actually improve on this. I know there are times when I 'push' myself much too far physically because I have an absolute fear of ending up a big, fat blob. But that's just one of my hang-ups (hate that word too) and I honestly think I am stuck with that

Yes, we do have an awful lot to be thankful for (just watching the news these days makes you realise that), and for that I am grateful. But I certainly wouldn't expect some of the younger ones afflicted by this wretched illness to feel that they should embrace it too. They still have so much of their lives to live ...... it just seems so very unfair, and made all the worse by having a condition that many others do not understand or even try to

But thanks for sharing your feelings with us Alicia .... and I'm really pleased that you feel as you do :D

[quote:09ff74ede9=\"katie.k.\"]. But I certainly wouldn't expect some of the younger ones afflicted by this wretched illness to feel that they should embrace it too. They still have so much of their lives to live ......

[/quote:09ff74ede9]

I totally agree Katie. that's why I titled this post 'Where [i:09ff74ede9]I[/i:09ff74ede9] am' :D

Alicia I am glad you have shared this with us. It is a really positive thought and seems acceptance of the illness. I wish I could be strong enough to face the illness straight and to work with it instead od against it.

LouLou, it has taken me 7 and a half years to get to this point. I am a slow learner :roll:

Alicia that was so moving, i read it right to the end

Its good when something happens in our life that makes us stand up and be counted. :?

As ME is new to me and i am suffering more being back at work and even dancing or driving too much gives me pain, i think it will be a while before i accept this illness.

I am missing out in so much. :twisted:

But thankyou for sharing your experience with us and being so brave and i really do hope you can continue with your enthusiasm. :lol:

Well alicia I have a few years to go. I have only been ill 2 years and it took them a while to come to this conclusion. Reading your piece this afternoon really moved me. It made be feel humbled to be a member of this forum to have the support of this forum. Hace to go filling up again.

Support is essential. Sharing with people in the same situation, and receiving input and different aspects of other peoples experiences really makes you look at things from other perspectives rather than an introverted one.

I doubt I would have got to this acceptance without my psychologist's input and all the input I have received on this lovely forum so thank you, all of you.

And when I have a bad day and start talking negative I give you permission to send me back to read this post I have made.

Chronic illness really is like a grieving process and you have to go through all the different stages, and it cannot be rushed.

Group hug :hug:

I shall be grieving for this forum soon, it seems to be struggling at the moment and I am very sorry.

I hope you are all as well as possible and I am thinking about you all. :cuddle::hug::rose::love:

Yes, so will I

Think it will just consist of you, me and LouLou soon, Alicia :wah:

Come on folks, where are you :huh:

Hope everyone is okay :?

Katie :hug:

Hello, maybe I could join in too?

I've been reading your posts for ages but have never joined a forum before so I am very new to it all.

Without you knowing, you have kept me relatively sane over the past few weeks, and often made me laugh.

I loved what you wrote, Alicia, and it's what I'm trying to do.......then I have a day like today when I feel so ill and just want to do \"normal\" things, and all my \"acceptance\" goes out of the window and I feel so :cry: . Still, it's a case of hanging on in there......

Katie, did you ever have Horlicks tablets when you were a child? They used to sell them in chemists' shops and from what I've read, I think you would have loved them! I certainly did :lol: Wish they still made them.

Daisy (a \"Saga-member\"!) x

Hi there Daisy :D

Hey that's really fab ....... do come and join us :magic:

And as for being a fellow Saga member ...... well that's even better 8)

Boy, do I remember Horlicks tablets :D Didn't dare mention them after everyone else had yucked so much about the stuff :roll: They just don't know what they missed ...... wonder why they stopped selling them :?

Gosh, have you been following us for ages ? :oops: It's great to know that we have really helped you though ....... I think I would honestly have gone completely round the bend if it hadn't been for this fantastic forum.

So you obviously know a little bit about us all ...... and hopefully you will join in our friendly banter when you feel the need :D

Take care and hope to hear from you again soon :D

Dai - sy, Dai- sy, give me your answer do :whistle:

Please say you'll come and join us, don't just watch from the wings. You are so welcome, we love newbies. :biggrin:

If you have been reading secretly and still want to join us then that is promising. We can be rather craaaaaazeeeee.

So you are a Saga member too, lovely to meet you. You, Katie and I can have a threesome - no, wait, I didn't mean that, come back. Aw 'ek, I've mucked that one up now. :oops:

Seriously, please tell us a bit about yourself and your experience with ME/CFS. I am away next week but I am sure we shall chat soon. Glad we have helped cheer you up. :D

Hello again :D

Thank you for the lovely welcome! I would love to come and join you!

It's been so helpful just being able to read everybody's posts even though I hadn't been brave enough to join in until today.....

I used to be a teacher and I think I should have doled out Horlicks tablets to all the children at the beginning of each day; it might have calmed them down a bit ! (oh, maybe the \"powers-that-be\" found they were addictive so that's why they disappeared?! :shock: );

Anyway, I'm very very glad to be on board; going to have an early night in the hope that I might feel better in the morning.

Night night 8)

Daisy x

Night night Daisy, night night everyone :sleepy:

Cripes Alicia .... please don't put Daisy off with your singing :shock:

We might never see her again :erm:

Just kidding :D

See what happens when I turn my back ora few hours you all see to come out of the wood work. I have just woke up on the settee have been asleep hours, I have missed all the good tv but never mind. Pleased as always that you have decided to join us Daisy. It seems strange that you know us from reading our posts. Glad you have decided to join us, especially because things are a bit quiet at the moment. :D