Which is the worst time of the day for you

I'm still a morning person, despite the M.E.. I tend always to wake up early, about six o'clock and as long as I start fairly gently I'm at my best through the morning till about 11.30 - 12.00 when things usually start to go downhill.

I invariably have a half-hour doze at about twelve, which definitely helps, and then make sure I take the rest of the day very easy indeed. Any jobs that need doing, including as many of my health appointments as possible, I try to arrange for the mornings but if that's not possible and they have to be done in the afternoon then I know I'll pay the price for a few days....

I think that conserving as much energy as possible and planning days well in advance, makes the ME/CFS as good as it can, be but as we know, life isn't always that easy and things always come out of the blue to mess up the plans...

I think that it's important to let people know when you're best times of day are, so that they don't intrude any more than necessary at times that are tiring and difficult to cope with.

 

Also terrible on waking, feel as if l,m fighting to wake up and not go back to sleep, heavy, groggy, dress sitting on side of bed, wait, shuffle into kitchen for tea and biscuit from then on its at bet an hour to come round, sometimes 2-3 hrs, to functioning,  Sometimes in aft or eve just sit back on sofa and away l go, barely aware till l wake up 30min to  2hrs later, and times passed by.Yesterday slept 2hrs aft, woke groggy thought it was 6am, felt my clothes on and wondered why, finally shook it off enough to realise 6pm. and tuesday, Like you Shreddie l feel as if l,m drugged, and not fit for anything, tried to make a simple meal, disjointed then didnt want it.  Evenings a bit better and yes come bedtime dont sleep well, perverse.  Can just about remember waking up and feeling bright alert and raring to go, good few years since, Shreddie l think  we know what you mean, every natural thing is harder to do, more of  a challenge and battle.  Fine weather a help, sunny without being hot. 

Mornings but also nights when I cannot sleep no matter what I do and when I do sleep I can't get good deep sleep just really vivid dreams like watching television for hours and hours.

Worst time for me is morning. Here's the strange part. In the middle of the night, maybe midnight and after, my symptoms get better. So lately, my husband and I have been going out to an all-night coffe shop for pancakes at that time. Otherwise, I'm homebound.