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kristy93914 kristy93914

Whole body muscle weakness/atrophy on right side

My symptoms are below:

-Mid 2006- Felt right leg week when I am exercising. Felt right hand weak and fine tremor.

-Did all possible tests and MRI,EMG, everything normal in 2008.

-2006-2017 - I let it go and nothing was bothering.

-But meanwhile all the length I have observed that my right side of the body was little weak in terms of muscle strength and muscle mass.

-I could able to do all the things and can able to do even now.

-But now whole my right side has a little less mass, face, shoulders, trunk hip, glutes,thigh , leg and foot.

-Little that it is not yet innterfering in the daily activities.

-Concerned, I went to neurologist.

-EMG done and it is normal.

-Neuro ordered blood tests.

- midly elevated calcium, aldolase, liver enzymes, album and positive ANA with < 1:80.

-ANA is positive but titer is normal (< 1:80)

-Planning to meet the neuromuscular specialist next month.

-Connecting all dots together till now, I am just wondering what this condition might be?

Given that it is present from long time and I could function normally now with normal EMG, can ALS be ruled out?

Thought this could be polymyositis but I have the weakness and atrophy mosly on one side of the body.

Pleas let me know your thoughts

 

32 Replies

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  • rhodri21244 rhodri21244 kristy93914

    I have had same symptoms for a couple of years on and off. I put it down to possible side effects from drugs to lower blood pressure. To get to the bottom  of it I have been to see consultant who has done 10 blood tests. MRI Scan on the neck and head and nerve conduction studies. I asked the doctor who did the last test whether it could be fibromyalgia which effects some one in twenty people and he said it is very difficult to tell except by eliminating all other causes. I am waiting to get an appointment with the consultant to get the results from all the tests.   Rhodri.

    • kristy93914 kristy93914 rhodri21244

      Hi Rhodri,

      When you say you have the same symptoms, do you also have atrophy. My symptoms are like from head to toe, if you draw a line front side exactly muscles on one side of the body are with less tone. I can do almost all things now, but worried what might be the future and want to correct this if possible. I can feel the weakness when doing activities. Even I have the tongue and mouth muscles atrophy on the same side.Thanks.

  • will24 will24 kristy93914

    sounds nothing like als... the neuromuscular specialist will hopefully send you for a muscle biopsy which may or may not show something.

    • kiran kuma13847 kiran kuma13847 kristy93914

      Hi. My age is 27 and i am also having exact syptoms of muscle wasting, pain anf burning sensation on my entire right side. 

      I met lot of doctors neurologist, neuro surgeon, neuromuscular specialist, rhumetologists, etc.  but no one could find. Spent lot of money. I am like dying every day. 

      Could you pls guide me on this. 

      Thank you.

    • kiran kuma13847 kiran kuma13847 kristy93914

      Hi. My age is 27 and i am also having exact syptoms of muscle wasting, pain anf burning sensation on my entire right side. 

      I met lot of doctors neurologist, neuro surgeon, neuromuscular specialist, rhumetologists, etc.  but no one could find. Spent lot of money. I am like dying every day. 

      Could you pls guide me on this. 

      Thank you.

    • kiran kuma13847 kiran kuma13847 kristy93914

      Hi. My age is 27 and i am also having exact syptoms of muscle wasting, pain anf burning sensation on my entire right side. 

      I met lot of doctors neurologist, neuro surgeon, neuromuscular specialist, rhumetologists, etc.  but no one could find. Spent lot of money. I am like dying every day. 

      Could you pls guide me on this. 

      Thank you.

    • nitopun10112 nitopun10112 kiran kuma13847

      Hi kirankum13847

      I have a similar problem. Muscle wasting on the right side. Primarily more so on the right thigh, right calf , right shin and then some on the right arm especially behind right shoulder. I have gone to two three neuros. No luck yet. Did a MRI of lower back and no findings. Have you had an MRI it a EMG done? Any insights from that ?

    • kiran kuma13847 kiran kuma13847 nitopun10112

      Hi, 

      I did MRI Survical spine thrice, MRI Brain twice, Nerve conduction study twice, all types of blood tests thrice and etc etc etc but nothing got found. 

      I dont know whats happening. Some times i am getting suicidal tendency. 

      Pls find some info and i also do. 

       

  • nitopun10112 nitopun10112 kristy93914

    Hi , what did the doctor say about your situation? I have similar atrophy on one side of the body. On the right side, From neck hands down the back to thigh and right calf and shin. It is not noticeable to anyone other than me but it is very scary indeed to think of what it could be sad any inputs will be much appreciated.

  • george77529 george77529 kristy93914

    Hi  I'm just here to tell you your not alone . I'm 65 and a diebetic for over 40 years . I have same problem and is getting worse !  My complete right side is affected  head to toe. muscle loss and at times when I have to use the muscles  it causes a lot of pain . I have been seeing a lot of doctors  and none now what is happening to me .But I did have my urolagist tell me that I had a binding  globulin protein causing my testosterone useless causing muscle loss. So onto the testosterone  cypionate (steroids) . They did help for a while but took a toll on the rest of me !  Now I'm back in the same boat as the rest of you here.Whats the problem and how can I fix it???

    • nitopun10112 nitopun10112 george77529

      Hi george77529,

      For how long has your muscles been affected on the right side ? If it has been for long has it progressively increased and caused debilitating problems like an inability to walk or do things with your right side ?

      Thanks

    • kiran kuma13847 kiran kuma13847 nitopun10112

      Sorry to interrupt. 

      I am also suffering with same problem. 

      I have been suffering since End of 2015. The situations that i am facing are, 

      1) My right side trouser is loose and i never able to wear a trouser properly

      2) My underwear alsways comes down on right side

      3) My shirt right side is balance less

      4) My shoe on right side is loose and always go away from my foot

      5) More over , on entire burning sensation 

      Could you pls help me on treatment. 

       

    • nitopun10112 nitopun10112 kiran kuma13847

      Hi im sorry to hear that. I have the same problems. Everything that you listed. Just on the right side of the body. And no diagnosis from the doctors.

      Not sure where to go at this point.

      I still have twitching on my body which is also scary. All this since May 2015...maybe the right side msucle loss started sometime in early 2016.

      Did you do any weight lifting or any strenuous exercises when this started ?

    • arthur94509 arthur94509 kiran kuma13847

      Hello all, 

      I have very similar symptoms to those described here, especially kiran kuma13847 and initial post by kristy93914.  I am 25 years old and these symptoms have gotten severely worse over the past 5 years.  They started in 2013 when I noticed the weakness/atrophy in right shoulder, ranging up to today where atrophy and weakness is clearly noticeable on all accounts throughout the entire right side of the body.  Head to toe, face, hands, arms, torso, legs, etc.  I too struggle with clothes fitting me properly, but that does not concern me as much as the structural health issues that could get worse over my lifetime.  I now walk with a limp, or sag, into my right side, and spend almost all my free time trying to stretch and regain equilibrium to no avail. 

      I, like most of you, have been through it all - MRI, EMG, blood test, nuero tests.  Met with every medical specialist I can think of.  They all have no clue what's going on.  

      I have a loose theory, and see a homeopathic specialist.  A question I have to those experiencing the same symptoms - Has anyone had any previous head injuries?  Potential damage to the brainstem?  complications at birth?  As young as I am, I feel this may be a condition that either I was born with or occurred at a very young age and has taken until early adulthood to really expose its nastiness. 

      Any response is appreciated.  I sympathize.  

    • arthur94509 arthur94509 kiran kuma13847

      Hello all, 

      I have very similar symptoms to those described here, especially kiran kuma13847 and initial post by kristy93914.  I am 25 years old and these symptoms have gotten severely worse over the past 5 years.  They started in 2013 when I noticed the weakness/atrophy in right shoulder, ranging up to today where atrophy and weakness is clearly noticeable on all accounts throughout the entire right side of the body.  Head to toe, face, hands, arms, torso, legs, etc.  I too struggle with clothes fitting me properly, but that does not concern me as much as the structural health issues that could get worse over my lifetime.  I now walk with a limp, or sag, into my right side, and spend almost all my free time trying to stretch and regain equilibrium to no avail. 

      I, like most of you, have been through it all - MRI, EMG, blood test, nuero tests.  Met with every medical specialist I can think of.  They all have no clue what's going on.  

      I have a loose theory, and see a homeopathic specialist.  A question I have to those experiencing the same symptoms - Has anyone had any previous head injuries?  Potential damage to the brainstem?  complications at birth?  As young as I am, I feel this may be a condition that either I was born with or occurred at a very young age and has taken until early adulthood to really expose its nastiness. 

      Any response is appreciated.  I sympathize.  

    • nitopun10112 nitopun10112 arthur94509

      Thanks for your input arthur94509. No serious brain injury for me either. Couple of stiches from minor falls playing soccer but nothing serious where I had to be in a hospital.

      I wonder if stress and an increase in stress levels cortisone has anything to do with this. For me all this started as I was going thru a very stressful time in life. May seem trivial but who knows. ur symtoms gotten progressively worse over time ? Is the homeopathic treatment helping ?

    • sylvester44444 sylvester44444 nitopun10112

      I have had the same symptoms 4/22 years I am 62 years old now and was diagnosed with polymyositis at40 there was extensive swelling and and loss of motion I was taking prednisone which relieve the pain and I regain my motion but it spiked my glucose levels which brought on a condition of diabetes once I decrease the prednisone to the level of stopping it my glucose levels went back to normal but my range of motion became very limited and I experienced massive muscle loss and periods of exhaustion what's the Lesser of the two evils to be diabetic and suffer those conditions or to be non diabetic and suffer the conditions of stiffness excessive loss of muscle 30% range of arm motion.

    • ivona46901 ivona46901 nitopun10112

      Hey! Just wanted to inform you that I have also noticed increase in muscle atrophy speed while i’m stressed and it also started for me while I was very stressed 4 years ago! If you ever find out please infor me, i will also contact you if i find out first!

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