Whole body muscle weakness/atrophy on right side

i will definitely be coming back with answers if i ever get any. im sleeping anywhere from 3 to 19 hours. Sometimes i can get to sleep sometimes i can't. but when i do i can't wake up. its not because im sleep deprived either as sometimes i can get 9 - 10 hours for a few days then one day sleep for 18 hours straight. usually this happens if i have done something physical. not strenuous but physical such as cleaning a room and showering or walking and cooking a meal. i dont feel rested i wake up feeling absolutely exhausted physically

Yeah, I've noticed this too. I can go to sleep easily and wake up after 7-7.5 hours and still be so tired. This has been happening for the past year or more. I look like complete st now. Even though I've been waning off drinking and been sleeping easier than ever. They check my testosterone and other things (nutrients, hormones) and they say they're normal. But I'm always tired. Sometimes it feels like I was getting the st beat out of me during my night of sleep - as I'm not rested at all. That's why I've always theorized that this problem may be more active while we sleep than while awake. If I'm not working on the day (like today), I'll eat and then want to take a two-three hour nap after. I'll wake up and feel slightly better; but, still not like I should. I notice throughout the day I become more depressed, especially when night time comes. My anxious thoughts (rightfully so I will self admit) rain in my head like a monsoon. Because I know this problem is diminishing my life force and I've had no answers for over three years of trying! And yeah, I just shoveled an easy load a few days ago and my lower back muscles and biceps were sore. What a joke. It's crazy though, because I still have good coordination while moving fast and catching things. I can do quick acceleration and quick powerful thrusts of punches. But my muscles are far weaker than any normal person should be (especially since I used to be in the top % of strength/endurance) and my endurance is almost floor level. I'm losing my eyebrow hair on my left side (affected side) too as of late. I already take a thyroid pill and had it checked recently, so that's not it.

yeah im 7 years on and still no answers. The deterioration is actually scary. Though not to the doctors. Im so skinny its laughable. my muscles are like strings. I look like someone with anorexia. but i eat a lot in fear of losing it faster. left side of my mouth is drooping like I've had a stroke. i have an intention tremor which is annoying as f**k. I've got the muscles of a small malnourished boy with a considerable layer of weird lumpy fat all over which i never had before. my back hurts 24/7 as its no longer strong enough to hold my frame. like its compressed all the way down. i get nerve pain in my d*ck. foamy urine and sticky stools.

My hair is falling out. particularly on the head and leg, worse on the left.

im struggling to hold myself upright. i wish these doctors would listen and do their job of helping to find the cause

and to add. yes i see a discoloration of the left side. i first noticed it when waking up in the morning and washing my face. my left hand had a bluey-grey tinge to it. whereas my right hand had a pink tinge. this fades in about 20 minutes half an hour. recently i noticed the same blue grey colouring on my left thigh. its not there on the right.

and yes i believe my septum is all jacked up. i dont know if it's deviated. but i imagine it has atrophied with the rest of my body. this causes a nasal-y sounding speech. i can feel my voice vibrating up in my sinuses. like they've collapsed. it sucks. it all sucks

Yeah, I have all of what you mentioned. You may be further ahead of me though, as my back doesn't hurt like that yet. With your nostril, is your left nostril hole way bigger than your right? 'Cause mine is. I feel like I may have noticed this before I realized what was going on. S**t is serious and I'm sure we're being mocked at the doctor's office. They keep denying our symptoms and they know we know. Well, guess they want the final act to be in their office 😉.

I also have had some slight pain on my left side of penis head too. Not often or a long time, just here and there at rare times. And yeah, I have high body fat percentage now (25%); yet, I look like I'm hardly fat because of what is going on. I think I stated this before. I showed one doctor my license picture from 2017 and she said she thought the only difference was that I lost weight in my face. On the contrary, in 2017 my body fat % was around 17-18% and I'm far more fat now. Yet, my face looks "skinny." It's a joke. That's why I'm purposely getting more fat, if I didn't I'd really look like a skeleton. Then again, losing weight may finally be able to show an undeniable look that can't be challenged.

When I wake up my left eyebrow hair is everywhere and pointed in all directions. I know this is the case with the top of my head hair. It's like my hair leans a certain direction on the top of my head now, that it never did. And yes, I've been losing hair on my left side of body for a long time. And previously mentioned many times, right side is also affected; just, not as bad. Left eyebrow hair has been losing a lot of hair the past few months though. I used to have strong and thick eyebrows, not I look like an alien. S**t sucks!

hahaha we're just evolving into greys 👽

Yeah DONT lose the fat. I had a low body fat % and lost all my muscle down from 180 pounds to 126 pounds. I looked like a corpse. People at work thought I was seriously ill. Showing their concerns. I was so skinny you could see the lymph glands on the side of my neck. They're still there but not as visible now there's a weird lumpy layer of fat all over me. The doctor said I was within a healthy BMI range for my age and height. I couldn't believe it. I'm weak, fatigued, walking funny and wasting and all you've got for me is that my weight falls in the healthy BMI range. You would have to be an anorexic at deaths door for them to be concerned. The most I got was a useless blood test.

I continued to eat like a horse and eventually put on some fat. But underneath my muscles are still thin and stringy. I'm probably around 145-147 pounds now. Weaker than ever. More wasted than ever. Severely fatigued. Back and neck hurting 24/7 to hold myself upright. Legs going numb when laying or sitting. If you lose the fat they still won't take any notice if your bloodwork is good and the neuro cant see anything obvious. They would need to do a spinal tap and that sh#t freaks me out

Hi Ressurection,

I'm still here. I was trying to consolidate my medical history but it's taking to long to so I'll just start talking. I also have left-side atrophy that is slowly followed by my right. Just like you mention earlier in this thread, my left side feels hollow and disconnected. My first obvious sign that something went wrong was at the gym on a cross trainer. This was October 2019. I was banging out my usual 40 minutes when my whole left side went numb - followed by my whole head. I grabbed my bag and walked out to A&E! They carried out a few clinical tests then sent me home in the clear. I noticed that my speech was slightly slurred but not noticeable to others. I woke the next day with my calves twitching like crazy. I haven't gone a day without the twitching since and it's all over my body now, and I mean, from head to toe. That's were I thought my story began but now I can trace signs back as early as 2009. I had an MRI in March 2020 just before Covid and it was clear. I'll just leave it there for now and invite any questions if anybody's interested..

Sorry to hear. I'm unsure if the problem is our muscles or connective tissue - collagen. I went to a rheumatologist once during this ordeal and this was after having to do the prerequisite blood work. She claimed I had no auto immune problem that would be causing this (lying doctor). Then I showed her my license photo from early 2017 and she said she noticed only that I lost weight in my face. Well, I didn't tell her until after she made her ignorant comment that I actually am far fatter now than I was in that photo (on purpose, as if I am not fat in this condition I would TRULY look like a skeleton). It's so funny. Something is going on and it's disastrous - it'd turn anyone to dust (mentally and physically), yet these people dismiss our symptoms and cries. Pathetic doctors the United States has these days. All on par for how this country has went from a great one to a terrible one over the recent 20-ish years. Well, I'm not going to post in this public space as everyone else has abandoned this thread. It's funny how these people just stop posting without giving an explanation of their last known status. They either got the answer they needed, or they are dead. I'm sure they didn't die over night so they could have given updates. Well, anyone interested in exchanging more information can send a message. I can go forever on the ongoing progression - as this problem is bottom of the foot to top of the head, everywhere and anywhere (including the internal body).

I wanted to add also: I only had twitching/tremors for the first time of this going on (well, my first knowing time). When the big changes really occurred (spring 2020 - winter 2021), I had some twitching by my mouth/lips area, my left leg would have uncontrollable tremors when I went down to lie and sleep in the summer of 2019. I had some tremors/twitching in my hand area and my eyebrow region. I haven't had twitching/tremors since 2022 for the most part, possibly a few here and there, just very rare. It's not a good thing, as every time this happens the region it is going on at decreases in size/substance/"fullness," etc.

December 2017 is when I first noticed my problem (in hindsight, not at that very time). It's possible I've had this problem longer though. Either way, I'm going on year #7 and my mental state is worsening as time goes on. And it's no question why: this problem turned me from a physically gifted individual to a disabled person, plus no diagnosis.

Do you have a chronological list of signs/symptoms as they appeared?

What tests have you had done besides head MRI and blood tests?