Whole body muscle weakness/atrophy on right side
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My symptoms are below:
-Mid 2006- Felt right leg week when I am exercising. Felt right hand weak and fine tremor.
-Did all possible tests and MRI,EMG, everything normal in 2008.
-2006-2017 - I let it go and nothing was bothering.
-But meanwhile all the length I have observed that my right side of the body was little weak in terms of muscle strength and muscle mass.
-I could able to do all the things and can able to do even now.
-But now whole my right side has a little less mass, face, shoulders, trunk hip, glutes,thigh , leg and foot.
-Little that it is not yet innterfering in the daily activities.
-Concerned, I went to neurologist.
-EMG done and it is normal.
-Neuro ordered blood tests.
- midly elevated calcium, aldolase, liver enzymes, album and positive ANA with < 1:80.
-ANA is positive but titer is normal (< 1:80)
-Planning to meet the neuromuscular specialist next month.
-Connecting all dots together till now, I am just wondering what this condition might be?
Given that it is present from long time and I could function normally now with normal EMG, can ALS be ruled out?
Thought this could be polymyositis but I have the weakness and atrophy mosly on one side of the body.
Pleas let me know your thoughts
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Ressurection kristy93914
Posted
Jerry2014 - where did you go!? Come back with updates!
Ressurection kristy93914
Posted
Update for those who care/still are here. My condition worsened last night out of the blue (usually the condition is noticeable worse upon waking up in the morning). Basically, the "feeling" of the primarily affected side (in my case my left) is worse than it was the night previous. I'm sure everyone knows the feeling. It's hard to describe, it's not pain, it's not pleasure. It's an annoyance accompanied by the decay of our muscles and other such things. Well, just updating in case I hit the dirt before my next update. I've been trying to get diagnosed since late 2019 and the first signs of this going on with me was late 2017. Good luck to all!
Ressurection kristy93914
Posted
I thought I updated again. My worsening condition I posted about before has seemingly subsided. It was a strange thing. I also had a brain MRI after and they said it looked (the same) fine as it did in August of 2021 and August of 2020. Well, still rotting in a slow-dripping way. I've basically lost hope I'll get a diagnosis - let alone a "cure" or "treatment." I think this is auto-immune and affects something that isn't our muscles. It's something that may support our muscles. I say this because more than muscles are affected (cartilage, bone, etc.).