Posted , 9 users are following.
I'm 46 and have had osteoporosis for 15 years t score -5 in the spine and -2.5 in the hip, the condition drives me crazy as I feel like I'm waiting for a fracture to happen everyday! I had my second IV of Zod Acid last month, since the last infusion I have started sertraline for anxciaty. No Doctor can give me an reason why, all my blood tests are normal and I was very active as a young man.
1 like, 37 replies
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kathleen65757 Gary3000
Posted
-5 is quite a bad reading! The fact that you have not broken anything is good. Are you taking vitamin K2? This has become very popular and chemists in Australia are having to keep up with the demand. I am not familiar with the drugs you have been given.
What natural things are you doing to help your bones! It's in D 3 is important for example? You have probably been doing everything you can to help your bones.
Do you know what caused your osteoporosis? You are young and male which puts you at little risk for this condition.
All the best and tell us more as there will be lots of good people on here to help you.
Gary3000 kathleen65757
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There is no reason for my osteoporosis that the doctors can medically explain, I have had all the test available for hormones, thyroid and so on, nothing in the family either!
melissa91009 Gary3000
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Hi Gary. My names Melissa. I'm nearly 35 now but I was diagnosed when I was 31 as well. My T scores are not as bad as yours but are steadily getting worse. I was bed bound for many months due to hips problems plus I have polycystic ovarian syndrome so they think both issues are the cause, however I am not improving. I broke my rib leaning on my right arm and moving onto a couch. A&E said I didn't break it but a bone scan I had last week shows it snapped in half (the 9th rib on my right). So honestly, I too spend my life paranoid of breaking something. Now that I have, it's even more scary. I am very careful but because of my hip problems, I'm a massive falls risk. Last week, I badly sprained my left wrist so now I can't use it all. In 2015, I strained my right wrist. I wonder if osteoporosis increases risks of sprains? I've never been one to sprain or break easily! I know how you feel and it's perfectly normal to feel very worried. I'm just trying to deal with issues as they come along. I don't know how else to handle things. I also have a bad painful swelling next to my left shin, it's been there for nearly 5 months. I worry it is shin splints but if I mention it to GP I don't want to come across as a pain in the back side. It's quite painful though. My endocrinologist wants me to have a bone biopsy to work out what exactly is wrong with my bones. Maybe you need to have one?
constance.de Gary3000
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Hi Gary. I think all of us feel we are "waiting for a fall" when we are first diagnosed. I remember, in hospital when I was first told I had OP, the doctor said "Mrs S, be very careful, don't fall". I felt like saying "I'm likely to start throwing myself around at 75, aren't I". However, I went out and bought a rollator, just in case.
Two years later, I still use the rollator outside, it gives me stability.
But a 46 year old man? I do feel for you.
All the best.
kathleen65757 constance.de
Posted
A physio told me once your tscores get above 5 even sneezing or coughing can cause a breakage.
Just as many people who do not have osteoporosis break bones as those who do which is somewhat of a consolation!
constance.de kathleen65757
Posted
kathleen65757 constance.de
Posted
ruby06073 Gary3000
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Gary3000 ruby06073
Posted
I may look into some counseling to help me be more positive about today instead worrying about future!
Anhaga Gary3000
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There are some micronutirients which may be lacking in your diet. Critical is Vitamin K2, which along with magnesium makes sure calcium actually goes into the bones. It is NOT the same as K1, and many of us in the Western world are deficient in it and need to get it through supplements.
Too much animal protein has phosphorus in it which leaches calcium from the bones. Don't rely on dairy for your calcium. Leafy greens (collards, kale, broccoli) are very good for you.
Look into alternative treatments. Don't give up your regular medical care etc, but there may be some other methods which can help you.
Regarding learning to reduce stress, try tai chi, or certain kinds of yoga or pilates - the instructor, however, absolutely must have experience with people with fragile bones and make sure they are not teaching you anything which puts you at risk.
Gary3000 Anhaga
Posted
Thank you for your advice, I will start the K2 today do I need to supplement the magnesium as well? also do you rate spinach as a good leafy green to eat?
Kind Regards
Gary
Anhaga Gary3000
Posted
I suggest you look up non dairy sources of calcium on the internet. Apparently spinach is not a star - too much phytic acid or something in it. Sometimes if people have been taking extra calcium the calcium/magnesium balance in the body gets out of whack ant they need a bit more magnesium. I'm told that for some people some kinds of magnesium can give them diarrhea. However a really easy way to get magnesium is to soak in a bath with Epsom salts. Even a foot bath will work, if you are a shower person. There's quite a lot of magnesium in a well balanced diet so you might not need much extra magnesium to get things right again. I prefer the bath method myself then I'm not stressed about how much or little I'm getting, I just don't know! Your doctor may be willing to get your blood levels of important nutrients tested, Vitamin D, calcium and magnesium can all be tested for. I turned out to have a very high level of Vitamin D, probably because I have otherwise non-symptomatic sarcoidosis, so you never know what you're going to find.
Anhaga Gary3000
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Look what I just found:
https://patient.info/health/calcium-rich-diet
Gary3000 Anhaga
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BoneAmi Anhaga
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Anybody else get as frustrated as me with the mountains and mountains of information out there; much of it is contradicting. One day they say the best thing to do is such and such. The next day the same person or someone else, says, well, it turns out, that wasn't the best thing to do after all! This is the best thing to do! Yikes! I hear your frustration Gary3000. I'm there as well!! And I'm struggling to get more active. Along with the stress of a fracture, there's the concerns about the black-box meds they're putting us on, and then if you're not able to be as active as you used to be, there's the stress of losing muscle mass. I'm sorry. Excuse me. I'm just venting a little bit.
Anhaga BoneAmi
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ruby06073 Gary3000
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BoneAmi Anhaga
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Anhaga BoneAmi
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I'm not going to make any suggestions as I think that would be inappropriate - I'm not medically trained and I htink everyone is different. I'd have a look at the supplements available and trust that the dosage recommended is right. Now, I did take a double dose of Vitamin K2 MK-7 for a few months because I found out I had a very high Vitamin D level and hoped that the K2 would help to reverse any problems that might have been causing. I've since dropped back to the daily dose recommended on my bottle.
I understand the chances of Vitamin K2 toxicity are very low.