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Hello, I am completely new to this site and this is the first time I have ever posted on a forum. About 5 months ago I awoke with severe tinnitus in my right ear. I had never suffered from tinnitus before. As I was also struggling with my balance, my GP thought it might be an acoustic neuroma, which is a benign brain tumour growing on the inner ear. MRI scans have shown this not to be the case, and doctors now think the balance problems and tinnitus were caused by prolonged emotional trauma - whatever; the tinnitus has remained constant 24/7 for 5 months now, and if anything is causing prolonged emotional trauma, then this is.
Speaking with the doctors (NHS), I have basically been informed that I will have to learn to live with it - I could not help but gain the impression that my tinnitus was not a condition which was a priority for them. After reading the British Tinnitus Association website, I came across a new treatment which is already available in the British Tinnitus Clinic in London, called Acoustic Coordinated Reset Neuromodulation. Hugely simplified, it works by targeted sound therapy aimed at disrupting abnormal nerve cell firing which may be responsible for the tinnitus. Early success rates for improving or eliminating the tinnitus are, according to the BTA, about 70%. Unfortunately the cost for this treatment is £4,500, something most people can't really afford.
When I asked the consultant neurologist about this treatment, and whether it would soon be available on the NHS, he looked at me blankly and said dismissively that he had never heard of it. This not only concerns me, but was something which at the time I found deeply upsetting, as he essentially confirmed that there would be no treatment options other than 'learning to live with it.'
Has anyone come across any NHS trials / know anything about this treatment option on the NHS? Although I'm not suicidal, the tinnitus has had a severely disruptive effect on my life, with lack of sleep being the number one issue, accompanied by frustration, anger and upset. To all my fellow tinnitus sufferers, you have my complete sympathy and understanding. Perhaps we could start a campaign to highlight awareness of this debilitating condition, and push for this new treatment to be made available on the NHS as a matter of urgency?
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