Will everyone update how they are doing and how long you had symptoms

Mine started around February/March but I didn’t really know it at the time. I really crashed and got weak during the month of May. I definitely had and still have that feeling for a long time of just something being off even before I suspected I had a virus. I developed horrible anxiety just out of the blue And felt off balanced and wobbly and would get super sleepy after going for walks and doing excercise. Luckily since my crash in May my energy has gotten better and I’m not as weak, but I can definitely tell I’ve still got a ways to go. It really sucks and it makes you doubt everything and worry a lot, but this forum is great for support and We should all motivate eachother to be positive so that we can heal faster!

HI CJ,

Yeah when mines started that was exactly how I felt, kind of 'stunted', not sure what was wrong but just knowing I wasn't right, unable to describe it really. Really hoping and praying these symptoms and lymph node pain settles for you, want to reassure you that things do get better - after 6-7 month I was still unwell and weary with it, but after 10 months God gave me a turning point and helped me on the road to full health. So this is normal that it can go on for so long and then make a full recovery CJ, want you to know that and still fully believing you are going to make a full and complete recovery. These lymph node symptoms did linger a while for me and prob one of the last symptoms to go but they did and things do get better - trusting God and praying for your healing and recovery - believing God will help and heal you.

Take care and hang in there - thinking of you.

Craig

Today I would say I am 85-90% recovered.  I was horribly sick for the first 6 months, couldn’t work and was house or bed bound. Around 6 months I noticed a big difference I wasn’t as weak.. returned to work gradually and built my stamina and hours up again. 

Yesterday I walked around a farmers market in hot weather for 2 hours, went stand up paddle boarding, then had dinner at a restaurant and went to a casino. So... I am living a close to normal life again. 

If I do too much or don’t sleep enough or feel stressed, I feel achey and flu like but then I just listen to my body and slow down for the rest of the day or have an early night. It is so hard to have hope, especially when you’ve been sick for months and months or even a year. But every body is different and I think you WILL get better, it’s just hard to say when. I was so very sick... and now i have days where I don’t think about my symptoms or worry. 

My advice is to rest, pace yourself until your body heals, and find distractions because the anxiety and worry and frustration is awful. 

      That feeling lasted about 10 days, and then i got my mono test back coming in positive, and then that day I just felt so much worse but back then I was still able to go to school, but I started feeling so much worse then before, I started to actually feel sick like my throat, the terrible fatigue, and just a overall sick feeling. So I was convinced that it was actually mono. 

      Over the first month It was just really weird and ups and downs day by day but I was feeling better and better as the time went by. In mid March I was  hanging out with friends again. In April I was walking more, just doing more stuff. (Nothing really active yet though), and then in May I was feeling even better. I was going outside and shooting my basketball for a bit, and I was able to do it and wouldn’t feel worse after back then, and I felt about 65-70% healthy. I was able to do most things, just not strenuous stuff or active stuff that would get my heart pumping.

           So may was 3 months into being sick, then around the middle of may started this terrible setback where everything just got so much worse and I sank to this level of fatigue where I felt so much worse than I had been and I lost as my progress. This setback has been going on for over 2 months now, and I’m not close to being back on track, I feel much worse and can’t do nearly the same things I was able to do right before the setback. I am really worried that this is more than just a setback as it isn’t getting better. 

        Overall I had been recovering well for the first 3 and a half months, then I got a lot worse, and so far at a bit over 5 and a half months I am still a lot worse and not getting better.

          Before the setback I thought that I was getting close to full health again but now I am not close to being fully healthy and fully recovered. 

       Oh and sorry for the massive ramble, but I just wanted to share the full story I know it was so long I didn’t realize it was so long until I scrolled back to the top of it haha. But my best wishes to all of you and remember to pray and trust god you guys!

Youngboy

Hello,

I haven't posted on here in a while but continue to check on the discussions daily. I first started experiencing symptoms of illness in August of last year, thought I just had a bad flu, pressed on and continued with my active lifestyle which includes lots of rock climbing for several months until I really crashed in November. This is when I finally got testing from a primary care doctor and got a positive current ebv infection result. I was only granted one week off of work, so my rest has been limited. I have stubbornly continued with climbing as much as I could too. My symptoms throughout have been more or less intermittent. They were more constant in the first four months and have gotten consistently less frequent and sever all the way through June. My symptoms have included: plugged ears, dizziness/wooziness, hot neck and head, mild sore throat, feeling strained in my chest as if I've been running or working hard, very occasional spells where my heart would race for a minute or two and then settle down, anxiety, sensitivity to light and sound, occasional soreness in random spots in my abdomen, occasional fatigue, and markedly worsening allergies. Nowadays, I mostly just feel occasional hot neck and head, light strained chest feeling, light woozy feeling, light scratchy throat/ lymph nodes, and worsened allergies.

Unfortunately, I must have overdid it in the month of June. I went on a climbing trip, climbed for four days, then continued active days for about ten days total without a total rest day, and on the fourth of July, I started feeling flu-like again. Then a few nights later, I awoke in the middle of night with a malaise feeling, which kind of scared me because I hadn't been woke up by illness since back in December. I have taken it easier the last week or two since and my body seems to be calming back down. Its really hot where I live right now.

But yeah, in summary, up through June I would say I feel 90 to 95% back to normal with the exception of my allergies seeming worse than before, especially indoor allergies to dust and molds. But this July, I've had a bit of a relapse which has bumped me down to maybe 80 to 85% normal. Its been almost a year since I've felt sick symptoms, but only 9 months since I was formally diagnosed with mono. I'm blessed and have not been bedridden at all really throughout this process and my symptoms seem to be more mild than a lot of people on here, but its not to say I haven't suffered quite a bit and experienced a lot of fear and uncertainty. I do believe I will continue to recover though. I think having a supportive person in your life is so helpful. My fiance has been amazing throughout. I have found that monolaurin is a good supplement that seems to help things, a lot of reviews say people use it specifically for EBV. I'd say getting outside in nature is really important too. And be grateful for the little things, like those small moments when your symptoms let up. Keep the faith!

Nick

My Mono re-activated late March of this year. My doctor suggested it was due to stress. About mid April I notice my lymph nodes were enlarged in my armpits. Doctor stated it’s a side effect of Mono. I re-tested in May and my mono counts were higher. It seems as though my symptoms heighten every 3 weeks. My stress levels contribute to a lot of it. Doctor suggested Light Therapy to boost my immune system. However, I did a couple rounds of Accupunture with cupping. I felt great but the results are short term. I have started a heavy round of vitamins to try and boost my immune system. I’m sick of being sick ??. 

I was sick for around one year and low energy for a few months after feeling that. I am back to normal for the most part and even took my first hike yesterday, 

You will get better it just takes forever with this miserable virus.

Youngboy