Will everyone update how they are doing and how long you had symptoms

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Mine started January and still struggling. Mostly neck pain due to swollen lymph nodes and a general feeling of something just not right

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  • Posted

    Hi there,

    Mine started around February/March but I didn’t really know it at the time. I really crashed and got weak during the month of May. I definitely had and still have that feeling for a long time of just something being off even before I suspected I had a virus. I developed horrible anxiety just out of the blue And felt off balanced and wobbly and would get super sleepy after going for walks and doing excercise. Luckily since my crash in May my energy has gotten better and I’m not as weak, but I can definitely tell I’ve still got a ways to go. It really sucks and it makes you doubt everything and worry a lot, but this forum is great for support and We should all motivate eachother to be positive so that we can heal faster!

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  • Posted

    HI CJ,

    Yeah when mines started that was exactly how I felt, kind of 'stunted', not sure what was wrong but just knowing I wasn't right, unable to describe it really. Really hoping and praying these symptoms and lymph node pain settles for you, want to reassure you that things do get better - after 6-7 month I was still unwell and weary with it, but after 10 months God gave me a turning point and helped me on the road to full health. So this is normal that it can go on for so long and then make a full recovery CJ, want you to know that and still fully believing you are going to make a full and complete recovery. These lymph node symptoms did linger a while for me and prob one of the last symptoms to go but they did and things do get better - trusting God and praying for your healing and recovery - believing God will help and heal you.

    Take care and hang in there - thinking of you.

    Craig

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    • Posted

      P.S. Vitamins and herbs really helped me, a good strong multi-vitamin per day, Vitamin C in higher doses (1000mg-3000mg per day), B complex (good for energy levels and nervous system) and immune boosting herbs like siberian ginseng, echnicea and oregano.

      Craig

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  • Posted

    Got really sick in November, it is now July. Symptoms may have started as early as September but they were mild and I just thought I kept catching flus or was worn out from my new job.

    Today I would say I am 85-90% recovered.  I was horribly sick for the first 6 months, couldn’t work and was house or bed bound. Around 6 months I noticed a big difference I wasn’t as weak.. returned to work gradually and built my stamina and hours up again. 

    Yesterday I walked around a farmers market in hot weather for 2 hours, went stand up paddle boarding, then had dinner at a restaurant and went to a casino. So... I am living a close to normal life again. 

    If I do too much or don’t sleep enough or feel stressed, I feel achey and flu like but then I just listen to my body and slow down for the rest of the day or have an early night. It is so hard to have hope, especially when you’ve been sick for months and months or even a year. But every body is different and I think you WILL get better, it’s just hard to say when. I was so very sick... and now i have days where I don’t think about my symptoms or worry. 

    My advice is to rest, pace yourself until your body heals, and find distractions because the anxiety and worry and frustration is awful. 

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    • Posted

      Hi Van, Glad that you're feeling like things have improved, even though I know it's frustrating sometimes you think that will be the maximum you get to the way you feel right now, but believe me it will keep continuing to improve until you reach 100% again - it just happens gradually over a period but it does happen for sure and most importantly you won't have to face anything like you had to face in the last 8-9 months again - the worst of this I really hope and believe is by and hoping you can really start to get on with enjoying and living life again!

      That stage I really hope and pray comes for everyone on the site here, believing it will come for you Young Boy and CJ too.

      Craig

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  • Posted

    So my symptoms started in Mid January where out of nowhere during class I just started feeling “I bit out of energy and unwell”. (That’s how I describe it). So I tried to ignore it but I kept stressing about it, but it was weird because I was still able to fully participate in stuff like my basketball games and school and all that. But I just felt different and I bit more out of energy than usual. 

          That feeling lasted about 10 days, and then i got my mono test back coming in positive, and then that day I just felt so much worse but back then I was still able to go to school, but I started feeling so much worse then before, I started to actually feel sick like my throat, the terrible fatigue, and just a overall sick feeling. So I was convinced that it was actually mono. 

          Over the first month It was just really weird and ups and downs day by day but I was feeling better and better as the time went by. In mid March I was  hanging out with friends again. In April I was walking more, just doing more stuff. (Nothing really active yet though), and then in May I was feeling even better. I was going outside and shooting my basketball for a bit, and I was able to do it and wouldn’t feel worse after back then, and I felt about 65-70% healthy. I was able to do most things, just not strenuous stuff or active stuff that would get my heart pumping.

               So may was 3 months into being sick, then around the middle of may started this terrible setback where everything just got so much worse and I sank to this level of fatigue where I felt so much worse than I had been and I lost as my progress. This setback has been going on for over 2 months now, and I’m not close to being back on track, I feel much worse and can’t do nearly the same things I was able to do right before the setback. I am really worried that this is more than just a setback as it isn’t getting better. 

            Overall I had been recovering well for the first 3 and a half months, then I got a lot worse, and so far at a bit over 5 and a half months I am still a lot worse and not getting better.

              Before the setback I thought that I was getting close to full health again but now I am not close to being fully healthy and fully recovered. 

           Oh and sorry for the massive ramble, but I just wanted to share the full story I know it was so long I didn’t realize it was so long until I scrolled back to the top of it haha. But my best wishes to all of you and remember to pray and trust god you guys!

    Youngboy

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  • Posted

    Hello,

    I haven't posted on here in a while but continue to check on the discussions daily. I first started experiencing symptoms of illness in August of last year, thought I just had a bad flu, pressed on and continued with my active lifestyle which includes lots of rock climbing for several months until I really crashed in November. This is when I finally got testing from a primary care doctor and got a positive current ebv infection result. I was only granted one week off of work, so my rest has been limited. I have stubbornly continued with climbing as much as I could too. My symptoms throughout have been more or less intermittent. They were more constant in the first four months and have gotten consistently less frequent and sever all the way through June. My symptoms have included: plugged ears, dizziness/wooziness, hot neck and head, mild sore throat, feeling strained in my chest as if I've been running or working hard, very occasional spells where my heart would race for a minute or two and then settle down, anxiety, sensitivity to light and sound, occasional soreness in random spots in my abdomen, occasional fatigue, and markedly worsening allergies. Nowadays, I mostly just feel occasional hot neck and head, light strained chest feeling, light woozy feeling, light scratchy throat/ lymph nodes, and worsened allergies.

    Unfortunately, I must have overdid it in the month of June. I went on a climbing trip, climbed for four days, then continued active days for about ten days total without a total rest day, and on the fourth of July, I started feeling flu-like again. Then a few nights later, I awoke in the middle of night with a malaise feeling, which kind of scared me because I hadn't been woke up by illness since back in December. I have taken it easier the last week or two since and my body seems to be calming back down. Its really hot where I live right now.

    But yeah, in summary, up through June I would say I feel 90 to 95% back to normal with the exception of my allergies seeming worse than before, especially indoor allergies to dust and molds. But this July, I've had a bit of a relapse which has bumped me down to maybe 80 to 85% normal. Its been almost a year since I've felt sick symptoms, but only 9 months since I was formally diagnosed with mono. I'm blessed and have not been bedridden at all really throughout this process and my symptoms seem to be more mild than a lot of people on here, but its not to say I haven't suffered quite a bit and experienced a lot of fear and uncertainty. I do believe I will continue to recover though. I think having a supportive person in your life is so helpful. My fiance has been amazing throughout. I have found that monolaurin is a good supplement that seems to help things, a lot of reviews say people use it specifically for EBV. I'd say getting outside in nature is really important too. And be grateful for the little things, like those small moments when your symptoms let up. Keep the faith!

    Nick

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    • Posted

      Hi Nick,

      It is good to see a post from you and thanks for taking the time to let us know how you are doing. It sounds like you have shown such courage and strength throughout this man to keep working and keep with climbing, you must have an amazing fitness base to start with which does help for sure, but of course as you know even the fittest people at times just have to take a step back and rest when things are at their worst with this. It really is an awful virus and glad to hear that you have made some good progress and are feeling better - just want to reassure that these kind of setbacks can be very normal during recovery, I had those too where you started to feel much better then it would slip back the way for some weeks and then improve again. This zig-zag road to recovery is typical of mono and just remember the graph overall will have an upward trend, and any downturns will be overcome again and you will get back on the right track. 

      Full recovery does come with this thing after time and I truly believe that you are going to get back to 100% or as near as and that you won't have to go through anything like what you've been through in the last year again - my experience was the Year 2 was so liberating and brought back freedom and life again after a very very hard first year when I felt so unwell for so long. Trusting God that you're going to get there fully Nick and hang in there - He is a great healer and thinking of you!!

      Craig

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  • Posted

    Thanks to all for sharing an update...I think it is important to know we are not alone in our struggles. I hope we will all try to be positive and beat this. Take care friends

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    • Posted

      It's so hard to stay positive and optimistic when going through the worst of the virus CJ I know that for sure, but definitely you are not alone in this and definitely you will get better - God is with everyone here always man and I truly believe you are going to get through this and back to full health again with His help. Thinking of you and hoping for a good and settled week. 

      Craig

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  • Posted

    My Mono re-activated late March of this year. My doctor suggested it was due to stress. About mid April I notice my lymph nodes were enlarged in my armpits. Doctor stated it’s a side effect of Mono. I re-tested in May and my mono counts were higher. It seems as though my symptoms heighten every 3 weeks. My stress levels contribute to a lot of it. Doctor suggested Light Therapy to boost my immune system. However, I did a couple rounds of Accupunture with cupping. I felt great but the results are short term. I have started a heavy round of vitamins to try and boost my immune system. I’m sick of being sick ??

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    • Posted

      Hi Stacie,

      So sorry to hear you've been going through such a tough time and have had a reactivation of mono. Coping with such blows is so hard having already been through the virus, really thinking about you and still believing you will get fully better. Stress definitely seems to be a big factor in this, I got the virus after a stressful period in my life and it's so hard because the virus causes stress in itself and it's hard to feel calm and relaxed when dealing with these awful symptoms. 

      Hoping that the Light Therapy can help, anything is definitely worth a try! I've had acupuncture and cupping before too yes they can be very good for sure. Hoping that the vitamins and herbs can be helping, siberian ginseng was always a good one for me as well as a good strong multi-vitamin, B100 complex, Vitamin C (1000mg-3000mg per day) and echinicea. 

      About 21 months after I first tested positive for the virus and generally had recovered well, I tested positive again for mono in my blood test and worried so much I was going to have to go through all this again - but thankfully I didn't things settled down within a few weeks - remember this virus can never get you as bad as the first time and any reactivations especially within the first couple of years can be normal and often do settle down quickly again and often are just short-term setbacks - really hoping and praying it is like this for you and things can settle down again and get back on track - remember get plenty of rest and be kind to yourself at this time!! Things that helped me with reducing stress was relaxation apps on my phone and just trying to do normal things that didn't take too much energy, still seeing friends when able to, watching fav films / tv shows, having baths, going for short walks, etc.

      It's not easy I know Stacie, but 12 years on for me want to reassure you that this thing does completely get better and that there is full and healthy and active life after mono - thinking about you and truly believing you are going to fully recovery thanks to God.

      Craig

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  • Posted

    HI Clidecjay,

    I was sick for around one year and low energy for a few months after feeling that. I am back to normal for the most part and even took my first hike yesterday, 

    You will get better it just takes forever with this miserable virus.

     

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  • Posted

    Hey does anybody still get fevers after 6 months? Cuz for me at 6 months I’m still getting fevers. I didn’t get fevers 1 - 4 months but I started getting them.

    Youngboy

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    • Posted

      I did for the first 2 months 99.5-100 with 1 swollen lymph node and glands under jaw swollen the entire time. Then it stopped. Then I got maybe the flu  13 temp for 2 days. Then it stopped. Next I had relapsed with something like a sinus ear infection. 3 more swollen lymph nodes and 99-99.5 fever for a month. Since then no more fever. See a pattern? About a month ago I started high dose buffered powder vitamin c and I feel

      Like it has definitely helped to feel better but not helped my 5-6 nodes and that pain. I have not missed but two days of my 12 hour shifts since January. It has been hell, but I just can’t miss work with both daughters at NC state.  I’ll try to attach the high vit c info I read.  Fever is normal and is worrying is too, but it hinders our recovery I’m sure. 

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    • Posted

      It may not let me post a link.  Just google high dose vitamin c for mononucleosis.  Basically take a teaspoon in water or juice 4 times a day. If you get diarrhea scale back less and less to you can handle it. 
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    • Posted

      That is great to hear Mono that you took a hike yesterday, what a great achievement and shows how far you have come! So glad you are feeling a lot better, and still thinking about your daughter / granddaughter too, I really hope they are doing much better too, and believing that all three of you will come through this stronger and 100% healthy again.

      Young Boy absolutely I still had the fevers at 6 months, that low grade fever is the most horrible sensation and I do want to reassure you it is very normal still to have that after so many months, and that eventually it does go away completely, for me it kind of faded over a period of time as recovery happened - it does go away and just hoping that the intensity can lessen for you as I know you've been through such a hard time with this - thinking of you each day!

      Craig

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    • Posted

      Hey CJ, 

      Thanks for the tip for folks, yes Vitamin C can really help with viruses and general health of course. I still take 2000-3000mg Vitamin C every day now, and certainly I think that kind of dose can help during the virus. Still believing you are going to get through this and get better CJ, hang in there - trusting God.

      Craig

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    • Posted

      Hi CJ, 

      Oh thanks for the input, yeah I know I worry so much. It’s so difficult. 

      In the first weeks/ month I never noticed a fever, and then month 2, 3 and 4 I didn’t have them but I started getting temps like 99.5 -100.4 so far. 

      So it’s worrying for me that I’m having these fevers now but wasn’t getting them before.  

       

      As for the vitamins I should check that out, I have only been taking a multi vitamin along with some supplements, but I should check out the vitamin C.

      I do think Craig had a lymph node problem CJ, and he said his just went away with time and his was one of the last symptoms to go, but his did go away. So I truly believe yours will go away too!

      And thanks for the encouragement Craig! Yes I agree it is difficult! Thanks for the reassurance and I’m thinking about you as well Craig!

      Youngboy

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