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Can anyone help me? I don't know where to turn, been to every doctor it seems, no one seems to have any idea...
WIRED (I feel heavily stimulated), Going days without sleep or need for it, most was 10 days is confirmed at Northwick Park Hospital. When I do sleep during this phase, it is usually just a couple of hours. Even with medications or drinking, i do not get tired. (as you will see below)
Recently this comes with a crash, where I finally get sleep, typically 24 - 30 hours. I wake up shattered, sometimes shaking, with huge anxiety running in my veins, then without warning flips back to a wired stage. I never wake up feeling normal, the stimulation is always running.
When really Wired/Stimulated my speech races, can’t settle, I feel out of it, warm, headache, eyes feel heavy, pupils dilated (without mood changes, constantly depressed), can’t eat with the feeling in my stomach. I’ve physical symptoms when wired, such as my downstairs shrinking during ‘wired’ phase.
I am lately having a lot of fevers, sweating a lot but with low temperatures, dizziness and other symptoms coming into play, which I have a feeling is a consequence of 3 years living like this).
3 years i've had 60 GP appointments, 4 endocrinologists, cardiologist, MRI, CT, EEG, Psychiatrist for a year, and seen a Neurologist.
Melatonin – No difference to sleep
Supplements – HTP5 etc for sleep – No difference
Zoloft – Added to WIRED effect (came off it within 2 weeks)
Mirtazapine – No change to Wired, happiest I’ve been in years, helped my depersonization, depression, anhedonia / emotions, only stopped it because I wanted to tackle this first, this is a medication I feel I need in the future.
Olanzapine – No difference but helped anxiety but not as much as I’d like, still would want to be on this in the future
Zopiclones – No difference and can’t make me sleep
Lithium – No difference at 0.9 for months
Depokte – No difference at all for anything
Quietapine – Could make me sleep but not nightly, no change to Wired
Beta Blockers – Helps shakes (still on them)
Lamotrigine - (couldn’t tolerate)
Xanax & Clonazepam - Both can bring down the feeling a bit, even sometimes get me sleeping, but the sleep only lasts a few hours and other symptoms are still apparent, including the wired just to a less degree, don’t get me relaxed
Symptoms in order they came in (all are still on going and worse):
Year before this wired feeling:
High Stress – Break Up – ‘Nervous breakdown’
Depersonization/Anxiety/Derealisation/Depression/NO THOUGHTS/ BLANK MIND/No inner monologue/ Anhedonia – This is my biggest priority after this wired thing. Gets SOME better on Mirtazapine
Bladder dysfunction – Physical shrinkage depending on how ‘wired’ I feel’
Dilated pupils – Eyes dilated very large, everyone points it out and feel heavy
Last two years:
Start of this “wired”, unable to get any sleep or switch of even though I am shattered – Feel stimulated 24/7
Physical Anxiety – Bad, especially with the shakes or when I go wired
Crash – After days I crash, where I sleep for over 24 hours
Easily over-stimulated – Now can instantly go into ‘wired mode’ from a simple conversation and pupils will dilate and that can then stick for days
Tremors - I shake badly without beta-blockers and sometimes with (80mg)
Shortness of breath (don’t breath automatically anymore)
Exercise intolerance – Can’t walk a mile, when I was relatively fit before
Fevers - Every few weeks I’ll have a bad fever (but low temperature 33/34)
Intolerance to heat
Muscle aches expect when really wired
Excessive thirst - Drink 4 litters of water a day
Weight gain from 12 stone to 16.5 in one year
Restless leg syndrome
Headache/migraine - ALL DAY EVERY DAY
Glazed eyes when wired, family notice it and can tell straight away
Last 6 months
More wired than a year ago / Happens a lot faster
Legs feel weak and shaky
A lot more fevers
Dizziness – Pretty constant
Personality changes, more aggressive, agitated
Generally feel weak
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