Wired/Tired - Not sleeping for days
Posted , 5 users are following.
Can anyone help me? I don't know where to turn, been to every doctor it seems, no one seems to have any idea...
Key parts:
WIRED (I feel heavily stimulated), Going days without sleep or need for it, most was 10 days is confirmed at Northwick Park Hospital. When I do sleep during this phase, it is usually just a couple of hours. Even with medications or drinking, i do not get tired. (as you will see below)
Recently this comes with a crash, where I finally get sleep, typically 24 - 30 hours. I wake up shattered, sometimes shaking, with huge anxiety running in my veins, then without warning flips back to a wired stage. I never wake up feeling normal, the stimulation is always running.
When really Wired/Stimulated my speech races, can’t settle, I feel out of it, warm, headache, eyes feel heavy, pupils dilated (without mood changes, constantly depressed), can’t eat with the feeling in my stomach. I’ve physical symptoms when wired, such as my downstairs shrinking during ‘wired’ phase.
I am lately having a lot of fevers, sweating a lot but with low temperatures, dizziness and other symptoms coming into play, which I have a feeling is a consequence of 3 years living like this).
Doctors:
3 years i've had 60 GP appointments, 4 endocrinologists, cardiologist, MRI, CT, EEG, Psychiatrist for a year, and seen a Neurologist.
Medications tried:
Melatonin – No difference to sleep
Supplements – HTP5 etc for sleep – No difference
Zoloft – Added to WIRED effect (came off it within 2 weeks)
Mirtazapine – No change to Wired, happiest I’ve been in years, helped my depersonization, depression, anhedonia / emotions, only stopped it because I wanted to tackle this first, this is a medication I feel I need in the future.
Olanzapine – No difference but helped anxiety but not as much as I’d like, still would want to be on this in the future
Zopiclones – No difference and can’t make me sleep
Last year:
Lithium – No difference at 0.9 for months
Depokte – No difference at all for anything
Quietapine – Could make me sleep but not nightly, no change to Wired
Beta Blockers – Helps shakes (still on them)
Lamotrigine - (couldn’t tolerate)
Xanax & Clonazepam - Both can bring down the feeling a bit, even sometimes get me sleeping, but the sleep only lasts a few hours and other symptoms are still apparent, including the wired just to a less degree, don’t get me relaxed
Symptoms in order they came in (all are still on going and worse):
Year before this wired feeling:
High Stress – Break Up – ‘Nervous breakdown’
Depersonization/Anxiety/Derealisation/Depression/NO THOUGHTS/ BLANK MIND/No inner monologue/ Anhedonia – This is my biggest priority after this wired thing. Gets SOME better on Mirtazapine
Fatigue
Bladder dysfunction – Physical shrinkage depending on how ‘wired’ I feel’
Dilated pupils – Eyes dilated very large, everyone points it out and feel heavy
Last two years:
Start of this “wired”, unable to get any sleep or switch of even though I am shattered – Feel stimulated 24/7
Excessive sweating
Physical Anxiety – Bad, especially with the shakes or when I go wired
Bad memory
Last year:
Crash – After days I crash, where I sleep for over 24 hours
Easily over-stimulated – Now can instantly go into ‘wired mode’ from a simple conversation and pupils will dilate and that can then stick for days
Tremors - I shake badly without beta-blockers and sometimes with (80mg)
Shortness of breath (don’t breath automatically anymore)
Exercise intolerance – Can’t walk a mile, when I was relatively fit before
Fevers - Every few weeks I’ll have a bad fever (but low temperature 33/34)
Intolerance to heat
Cognitive impairment
Craving SALT
Aching neck
Muscle aches expect when really wired
Excessive thirst - Drink 4 litters of water a day
Weight gain from 12 stone to 16.5 in one year
Restless leg syndrome
Headache/migraine - ALL DAY EVERY DAY
Glazed eyes when wired, family notice it and can tell straight away
Last 6 months
More wired than a year ago / Happens a lot faster
Legs feel weak and shaky
A lot more fevers
Dizziness – Pretty constant
Personality changes, more aggressive, agitated
Generally feel weak
0 likes, 39 replies
terrie27149 Guest
Posted
Guest terrie27149
Posted
Yep, literally gave him that list and he read it and said after reading it 'if it was a neurological disorder you'd be dead by now' so i don't believe it's that.. 'i was like what about a nervous system one' he just kinda shrugged it off and said he didn't think so and like the rest, it was clear he had never heard of anything like this.. but yeah shocked myself, i say shocked, i go to doctors every month, between GP and specialists for 3 years, still yet to find the answer, spent 2.5k last year..
caroline70988 Guest
Posted
terrie27149 Guest
Posted
Oh wow..that's awful..just terrible..I think it's time for a homeopathic..I'd be finished with the others..that is just horrible. So sorry..I can't even imagine. I know my head buzzing, and like waves going off in my head, and sometimes I awake to almost convulsing in my limbs, and to me it's almost unbearable, but you..omg..I so feel for you..
Guest terrie27149
Posted
Awh that doesn't sound nice either. Nothing like feeling healthy, not that i can remember that feeling. Never took 'your health is your wealth'.. turns out to be true.
I've just emailed a homeopathic doctor, it's worth a shot you know, thanks, i'll keep you updated! think they will get back to me today.
terrie27149 Guest
Posted
caroline70988 Guest
Posted
Guest caroline70988
Posted
I'm so sorry to hear that. I am going to my doctor monday, he has kinda subtly said about admitting me to hospital, but he said he doesn't know where i'd even go... i think it's time to just find a bed and let them figure that out when i am in there, this can't go on, it's killing my body.
Issue is it comes in waves of no sleep, slightly okay, wired, no sleep for days, then the fevers, shakes, so it's like if they give me 2/3 days they will see it, if they give me one night, they might just think there is nothing wrong. I know at least my doctor would write a good case i guess
caroline70988 Guest
Posted
You know hun if that’s the case but do they have any idea I’ve had sleep test I’m like u in sleeping department I sleep 2/3 hr wake up then can sleep then up all hr finally get to sleep sleep only one hr that’s not normal they say I don’t have sleep apnea thrn I said the it’s sleep somnia I swear these dr are so ffff bad word but hey you get discourage . I was in hospital 5 months civic 6 months rehab still half paralyzed when I told my dr there’s some thing wrong same dr 10 days in emerge I New from active to being that sick if they would of got it on time I would of not been as bad as I was on life support . So I’m walking u dam right I’m still pushing but taking one day at a time going gym just can’t walk fast long long distance use wheel chair only when I go shopping or things take long time so I don’t fall stuff maybe this summer I’ll do better for another gym pass so bring it on lord lol . Listen if they want u to go in the hospital even week better then them just not doing any thing right Hun. Keep me posted free internet lol . Good luck let us know plz🤗😊
caroline70988 Guest
Posted
Guest caroline70988
Posted
my doctor actually suggested it saying he is on the fence, but considering it.. so we will find out Monday, i'll try reply to the other messages tomorrow
caroline70988 Guest
Posted
Guest caroline70988
Posted
Since been to my GP, was up all sunday, all monday, slept tuesday and all of wednesday, two days in bed, two days awake, this cycle makes no sense.
I have been up now since 5am, about an hour after I got up this 'wired' has just kicked in, feel out of it now. My GP and me had a big conversation and read the notes of the Neurologist, he thinks it's 'hyper stimulation', where adrenaline etc kicks in and keeps me up, which makes a lot of sense, just my Physiatrist doesn't take anxiety seriously and thinks it's all to do with therapy, when i've a blank mind and nothing i need to talk about, no social anxiety what so ever... even my GP agreed that anxiety such as this is more chemical... 5 weeks time I see my physiatrist, hopefully he will listen to the Neurologist recommendations... who knows.
How are you Caroline?