Without the biopsy results they have put down that I have vulval eczema

Wait for your biopsy results, request a copy of your records and RUN, don’t walk to ANOTHER Dr! 

I received a portal message saying “ your biopsy results are in, there is no sign of cancer, congratulations, hope to see you soon”. So I called and said “ okay, what do I hv?” And a NURSE attempted to read the report to me over the phone! When she got to LS and no follow- up notes, no prescription and no help, I knew I was on my own! 

Finally seeing Dr to go over report this Friday - 5 weeks later! This site  saved me! 

Get results and get going! 

I would do as Karen says...how awful to have a doctor like that! Get your results and change doctors. Its bad enough having this condition without a GP patronising you like that. Let us know how you get on?

 

That kind of behaviour from the Drs is unacceptable! Poor you. The dermatologist obviously has no clue. It is not uncommon with LS among young women and also children can be affected. LS can be difficult and frustrating but I would nevertheless not call it serious. It is not a life threatening disease. With that said I hope your do not have LS but rather something less chronic. However, if it is LS, you will learn to cope with support from a real dr. Hopefully, you'll find the help that you need. Concerning biopsies, I wonder whether one always can trust those? I clearly have har LS since the age of 13 with shrinking and destroyed architecture, scar tissue, white skin etc. Anyway, my only biopsy years ago only showed unspecific inflammation. Strange. My docs still believed in LS though. All the best to you Gemma!

I’m new on here to and am waiting for biopsy results consultant was terrible but my GP is very supportive I’ve been reading about lazer treatment and my GP I is going to read up about it and get back to me

best of luck. 

 

Did you get a biopsy ? You need to do so and stop stressing until the results are back . I don’t that mean I am jut saying that worrying what it is or is not is not helpful. Get and exact diagnosis and then and only then can you and the divtors treat your condition. You areNOt too young to have LS . It may be unusual but I’m 54 and wa diagnosis via biopsy at 22. But I had it for many years and was misdiagnosed and mistreated for years prior to the diagnosis. d for your doctors - believe me I’ve suffered and a can tell you so many doctors have so

Little knowledge or experience with Ls. I read every piece of research and was the first person in the whole USA to participate in the clinical trial for platket rich plasma . I’m one of the first 15 - the very first. Ive spoken with dr Andrew Goldstein when I participated in the trial - he was impressed how much I know . He is the countries leading expert and I jokingly say I’m the second leading expert he went to led school but I have it. Get a precise diagnosis na then figure out the treatment . Don’t let them bully you into a diagnosis. Biopsy hurts but it is bearable and needed. I wish to add I’m treatment resistant to clobatesol and any topical ointments . I’ve had extensiv skin allergy testing done I think for either of the conditions you mention it would be wise to have that done by a dermatologist as solans things may irritate either condition further. I’ve also recently went on an auto immune diet and had food allergy testing done. I am allergic to so many things and yes it’s so hard but ivehad lesions that wouldn’t heal for 6 -8 months and I’m allergic to topical anti biotic ointments so I was desperate to find help. The platket rich plasmahelped )you can read about dr Andrew Goldstein study) but it only lasted about 1 to 1. 1/2-ndky symptoms came back much worse , probably due to my age . I hope I helped. 

Dear Gemma -  now breathe it all out, again.. breathe and let it all go.

My feeling is what you are angry about is that as a woman, our culture is still so misogynistic and we grow up to be polite etc that we don't call men on it when we hear/see it.  You've already got things under control girl, you've done the biopsy you KNOW in your heart that your symptoms match LS. NOw just TRUST your own knowing and move on to one of the doctors who DOES know that this is what you are dealing with.  

We don't have to be angry with the people who don't know yet, we just don't want to stress our own systems.  I know you know this... falling into anger only hurts ourselves.. keep that immune system strong.  

What we don't know yet, is whether any of your new docs know how to TREAT it any better than others, right? Is one of them a functional medicine doctor or naturopath? that is what you'll need... or just start reading up here. we've got lots of things that help. 

I hate to keep bringing up the nutritional aspects that I researched and made a list of. I really am not coming from ego girls - it's just that I"ve been bound and determined to  understand the WHY and FIX it from that point of view. So no matter  how long it takes you to get to a new doctor, Gemma, you still are going to have to take your own health into your own hands. And that mean nutritional supplements that most doctors don't know diddly about. I'll leave it up to you to decide if you want to go the steroid route, I didn't so I don't speak from that aspect. But even if you DO want to try that route, you still will be left with needing to bring your body back into homeostatis (balance) and that means topping up your nutritional status.  

https://patient.info/forums/discuss/aloe-vera-gel-with-tumeric-essential-oii-best-healing-ever--667353

I agree with Gemma there is a huge nutritional component to this. I’ve been to a functional medicine doctor who put me on the auto immune diet , ordered food allergy testing and put me on supplements. 

Gemma do you follow the auto immune diet protocol? 

M