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Thanks Shazzy. . I've looked online at benefits and it's so confusing. I thought I'd  only get pip (if they award it that is) which would no where near cover my outgoings. I didn't know you could claim esa aswell. I really feel for you it's so frightening. I'm lucky to have a partner who covers our rent but I have my own bills too. I hope you get some help tomorrow x 

Thank you. As long as you have paid national insurance you would  qualify for esa also. I went to an advocacy who filled my forms in for me, then had to go to see a nurse at ASOS. Luckily she was very sympathetic and could see how I was struggling. I have applied before and the last  guy from asos came to my house and thought i was lying and putting on my mobility problems. He even stated I was able to walk upstairs-I live in a bungalow due to my illness! Priceless some of these people! But with doctors and specialists having losts of information about your illness, should you not be awarded it right away, appeal. The mistake I made last time was that I didnt bother appealing. I was so worried about my finances I struggled back to work, vut only lasted a few months before I was off again and stuck in bed most of the time. I am making sure I move about as much as poss now and even manage a short slow walk some days, but I think its so important to try to if I feel up to it, assome days its just impossible. Take care x

I'm glad you got sorted and hopefully when the time comes I will too.  It's all so worrying. I can get upstairs just about but on my hands and walking is a real struggle as is standing. I think the problem with fibro is that if you just look at us we look ok. People don't see what's going on inside xx 

Thank you. Exactly right, people only seem to notice when I have to use my stick! I havent had to the last few times which is good, but as you say, people just think ypu are as healthy as them. Well I wish you luck and hope you get sorted soon! X

Thanks Tina. I'm just terrified of the whole system x 

you and me both my bennifit runs out next july ,from the old system ,

so i have no idea whats going to happen or if i am going to get the new bennifit,  but i do know that i shall be going to scarborough disability action group , who will do my forms , you have no chance if you do them yourself,

i am in the same position as you ,iv got a partner that covers my living cost motgage etc , but i have my personal bills to pay and my pain relief to buy  so i am scared to ,as if we dont put up with enough already.this kind of stress just is unbearable on top of everything else we sufer

Your right there Tina. It's a nightmare. I hope you get sorted quickly and without any stress x 

i do my treatments the alternative way , so i just came a cross an article that might be useful

the article states that theAMERICAN COLLEGE OF RHEMATOLOGY S HAS PUBLISHED CRITERA FOR FMS THUS ESTABLISHING IT AS AN OFFICIAL ILLNES SINCE 1990.PAS IT ON

Thanks Tina I'll have a look x 

Jan that seems so unfair. If you've paid stamp surely you should be entitled to something! I can understand you struggling at work. I'm a teaching assistant in a high school and work with pupils with behavioural problems. I was struggling to keep up with lessons and walking around school was a nightmare. That's when I managed to get out of bed! I know there have to be rules because some people abuse the system but it makes it so hard on us genuine cases. I hope the preglin works for you. I'm waiting to see rheumatologist and I'm not on any pain relief at the moment as my doctor wants them to prescribe. I rely heavily on sleeping tablets to get me through the night x 

You really can claim for PIp and esa. None of those benefits depend on anyone elses income. They are about you and your illness. Please look into it properly, I used to live with my partner and I still was entitled to incapacity benefit at the full rate when i was housebound for 4 years after the accident that caused all this in the first place. Do you take prednisolone for the polymyalgia? 

hope you and jess had a good night.

i left my scarf in water all night in fridge iv just tested it it lasted half an hour on me , just sitting, must be hot stuff yeah i wish hahah.

might order another and try wearing  two togther .

 

Thank you Tina. Jess was a little restless through the night but settled eventually i gave her some tramadol just before bed. I have woken in agony with my hips again so hit the oramorph already. How are you feeling? Xx

unless they have changed the rules ,there is no reason you cant claim bennifit, i dont know what the new name is , but under the old bennifit of disability and inconpacity  you could claim . even if your husband was working.

hot , oh i will be glad to see autumn that and spring are about the only time of year that i am any were near comfortable.

glad jess had a farley comfortable night,, i picked  a pale blue candle for her i dont know why i have many colours but pale blue was the one i was drawn to ,i said a pray to the angels again last night, for blessings and comfort for you both. 

your proberly very tense at the moment worring about jess ,we all no it makes our pain worse but sometimes theres not a lot we can do about.

the heat is making my hands and feet very painful but apparently etremes of tempertures do that to people with this and other simuliar conditions . did i tell that [fms] is an official illness .

after the American college of rhematolgy pulished its critera for diagnosis.

 

Yes, i did notice that thanks, its about time it was taken seriously! I am sorry you are suffering with the heat. Its actually quite cool here today.

thank you so much for thinking about me and jess. She seems comfortable today too and has eaten well, just seems quite tired so sleeping next to me on my bed again.

i hooe you get some relief, and I too will ask the angels for some healing for tou. Take care xx