Posted , 8 users are following.
I have had funny eyesight for several months now. Im 8 months in to GF. Everything looks very vivid and highly contrasted and its really overwhelming me, think it may also be giving me headaches. Im going for an eye test next week but has anyone else experienced this?
0 likes, 23 replies
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craig07920 maisie51387
Posted
So sorry to hear you're having this problem Maisie, thankfully it wasn't something I experienced during the virus but I know it can do all sorts of strange things so it may well be connected, have read a lot of people saying they have blurry vision and headaches which seems to be occurring a lot in the forum here.
Really hoping you feel better soon and thinking about you.
Craig
isabelle54481 maisie51387
Posted
I have had mono for about the same amount of time and I have also had very strange thing happening to my vision. In the beginning I had blurry vision, especially in one eye. After that however I have become very light sensitive and even color sensitive. You know when you light at a bright light and se spots afterwards? I have that times 50 when looking at lights but I ALSO have it when looking at bright colours. I have also developed extremely sensitive peripheral vision, I can see a tiny dot on the wall beside me with pretty great clarity even when looking straight ahead. So yes, it is like my vision have become super sensitive. I don't get headaches from it but it is very noticeable and quite freaky.
craig07920 isabelle54481
Posted
Goodness Isabelle this sounds horrible to deal with, really hoping these strange effects with your vision settle down, this virus is so nasty and causes so many strange things - that's a few people I've read now who say their vision has been affected, so really hoping and praying and believing that this will be one of those horrible symptoms that pass over with time as recovery takes place in your body. Thinking about you and don't give up hope - there is always hope thanks to God.
Craig
mia09164 isabelle54481
Posted
hiii...how long did you have eyes problems? my eyes are so blurred almost all the time,also bright light make me feel so terrible,like everything is blurrred and with some shadow. i checked oftamologist and neurologist,i did MR and everything is feel execpt that mononuclrosis i have for the second time
mia09164 isabelle54481
Posted
hi was your vision blurred all the time? how long it last? i have big problems with eyes,it is blurred,expecialy outside on bright light
kikisan maisie51387
Posted
Hi Maisie,
I can relate....I am almost 5 months in - I have had a migraine-type headache and eye problems for the past 3 months. I am sensitive to light and feel like my sight has deteriorated slightly with an inability to focus. My worst symptoms now are neurological...I will be getting an MRI this week to rule out neuro complications.
....This could all just be inflammation from the virus that will resolve.....so frustrating not knowing what's going on!
Kiki
maisie51387 kikisan
Posted
Hey, your the only other person with funny eyes! I went to the opticians, he said my eyes are perfect and recommended getting polarised sunglasses. I got them off amazon for £16 and hardly ever take them off, they really help with my sensitivity and the headaches i get from that. I hope ur mri goes okay, u should be fine glandular fever messes with everything.
Best of luck
Maisie
kikisan maisie51387
Posted
Hi Maisie!
I've been wearing my sunglasses all the time too! People think I'm a diva
....I know I have a pair of polarised ones as well somewhere - I might try to find those.
Thank you for the encouragement. I have to say, I am feeling incredibly discouraged these days as I sense that my symptoms seem to be locked in and not changing. I am doing IV vitamin C drips, thinking they can't hurt. The MRI will be early this week . Hopefully it will be ok and that everything is just taking time to resolve....if I am not mistaken, didn't you have pins and needles and weird neuro symptoms too?
Take care,
Kiki
kikisan
Posted
Have a good day,
Kiki
craig07920 kikisan
Posted
Really hoping the MRI goes well this week, still really rooting for your recovery, thinking about you and Maisie and everyone on here who I know has been through such suffering - praying for a breakthrough and turning point and new hope and peace.
Craig
maisie51387 kikisan
Posted
My polarised sunglasses have made all the difference i can outside and enjoy the weather now. Im 10 months in to mono and i relapsed after the first 2 months after that i was in bed for 4 months. Progress is so slow with this virus, now i suffer from fatigue and brain fog i honestly feel like the shadow of the person i was before but heyho everything happens for a reason. For me ive struggled to feel myself getting better, but if you think how you felt 1 or 2 months ago its a big difference (hopefully 🤞
youll get there in the end, just focus on what you can do and try not got get weighted down by what you cant.
Hope the scan goes okay
kikisan maisie51387
Posted
Hi Maisie,
Getting support from fellow sufferers means so much these days! Thank you for sharing your experience....it really gives me hope even though the struggle for you continues. I am on the couch and was just thinking about the notion of being ill for another 6 months (I am 4 months in). The recovery process is so confusing. I feel better in some ways but way worse in others. I feel more exhausted and unable to do anything than I was when I first got ill and was pushing through at work. While the fatigue is very debilitating and as you say, makes us shadows of ourselves, it's the neurological symptoms that are the most anxiety provoking for me. I was always so healthy and loved exercise. Now I can barely take a shower.....sigh!......I feel your struggle and wish us both incremental, baby steps towards more optimal health...I have started to do high dose vitamin C therapy. It can't hurt!
Take good care,
Kiki x
craig07920 kikisan
Posted
Hey Kiki,
I know you're struggling right now, I totally understand it's so hard when you've had such an active and healthy and happy life and then it seems to all start to fall apart. It's an awful feeling, I've been going through it too with my back and things and it's hard to keep positive and optimistic when things go on, even when people tell you things will be okay, it's not easy and your confidence takes a real dent.
Hold on Kiki, please remember that this phase you've been through, the first 4 months is by far the worst, that was by experience, and even if it did take another few months, the intensity lessens until you get to a stage you feel real recovery is happening. I just want to encourage you not to give up, and remember not giving up doesn't mean to say you have to be out there active fighting or pushing through, sometimes and especially with this virus it means rest, looking after yourself, being kind to yourself and allow yourself time and space until you get through this.
Good luck with the Vitamin C too Kiki, thinking about you today. Still struggling myself right now so any thoughts and prayers also appreciated!! Praying for you and trusting in God to pull you through this awful time and bring new hope and strength and health and happiness again.
Craig
kikisan craig07920
Posted
Hi Craig,
I really appreciate your support. I am also thinking about you and your very challenging back issues...hoping that every day brings us that much closer to more optimal health....I know my body has taken such a hit with these viruses but I can't help to think that my immune response is abnormal....I feel like I am having a major setback. Aren't I supposed to be getting better after 4 months? I am struggling to understand what's going on in my body and find the medical system here quite frustrating.
I haven't decided whether I should go private with an MRI scan which is very costly (I was leaning towards this route last week) or to wait until July 15th when I have one scheduled and is covered by medicare.....sigh....I will be going to the vitamin C therapy tomorrow and to see an osteopath.....trying so hard to stay positive and believe I can be myself again....so hard to imagine.....this anxiety is like nothing I have ever experienced. 
Wishing for health and happiness for both of us again.
Thank you again for your support.
Kiki
craig07920 kikisan
Posted
Hi Kiki,
I can really relate to all the things you write there, thank you so much for thinking about me at this time too especially when feeling so unwell yourself - it shows what a good person you are Kiki and I'm very grateful, means a lot. I am the same just trying to believe somehow I can get through my back problems and be back to my happy self again instead of being so miserable and fearful and tied up, feel like I've put my life on hold right now and don't want to live in those chains any more!! Praying God helps set us free from these things holding us back Kiki.
Really do want to reassure you that after 4 months it is normal still to feel this way. I remember still feeling terrible at that point wondering why I wasn't getting better. Please be assured that this phase passes over, it's just so frustrating it takes so long. This first 4-5 months was by far the worst for me, and although it still took some months for full recovery after that, it became more bearable bit by bit, in amongst some setbacks, and then all of a sudden I took a big step forward in a short space of time. That kind of thing can be quite common Kiki I've read with this, it can be normal to feel like you're at the same level not seeing much change for ages and then suddenly jump forward. Really hoping and praying for that breakthrough in your situation and remember hang in there you are going to get better and get through this, I have confidence in that knowing the way the virus went for me, I know it's different for everyone but there is plenty of hope for full recovery ahead and please be reassured what you are going through for the stage you are at is normal for now, but then it is normal to go on and fully recover after this!!
Oh I have spent so much money on private doctors and MRI scans in the last year too, it's sad you have to do this nowadays. Do what you feel is best for you Kiki, I know waiting for another month can be terrible when feeling so bad, just wish these things weren't so expensive
hoping it can bring reassurance and hope when you do get the MRI.
Absolutely agreeing with you in wishing us both and everyone on the site good health and happiness again! Putting that into God's hands, I know we can trust Him with that.
Thanks for your support too and thinking about you today!
Craig
kikisan craig07920
Posted
Hi Craig,
I am working hard to stay positive!...I went for my vitamin C drip today. I like my naturopath and at minimum it is a positive experience being there for the couple hours that I stay for the therapy. I also got an MRI appointment (covered by medicare) tonight! Who knows what will show up but at least I got it.
I am in the groove of eating a very good diet - lots of greens and supplements.....hopefully it's helping even though I can't feel it now. I appreciate your encouragement. It really helps to know that others have felt really crappy at month 4-5 (although I wish that no one had to go through this)...I can really relate to your back issues. I have always been very body (and specifically back) conscious because I have mild scoliosis and a disc bulge. I have learned to manage with a chiropractor, acupuncture and exercises over the years.....stay positive!....the body can heal and you know it better than anyone!
Take good care,
Kiki
ravyn04436 kikisan
Posted
Hi Kiki I'm 4 months in also and my only symptoms are neurological also please do let me know how your MRI goes hope it all goes well.
kikisan ravyn04436
Posted
Hi Ravyn,
The neuro symptoms are awful. I am sorry you are going through this too. I am getting the MRI in a couple of hours. I likely won't have results for another week or so (Canadian healthcare is free but slow!)...take good care....breathe...
Kiki
craig07920 kikisan
Posted
Hi Kiki,
Oh that is good you managed to get a MRI so soon, I hope everything goes well and that you can get the results soon too and it can be really reassuring and put your mind at rest. You're doing all the right things eating well and doing your best to stay positive! I know it's hard to do that, lately I've found some of my positivity slipping because things going on so long, it's easy for that to happen and just praying God can help us to maintain the right attitude and be positive and hopeful always. That's so important, wish I was better at it! It's easy to tell others not so easy to apply yourself this is very much true! Definitely want to reassure that what you're going through is normal for this stage, in many ways this is the hardest period because things have been going on so long and you feel weary and start to wonder if things will change, etc - THEY WILL!! They definitely will Kiki and you are going to get better I truly truly believe that! Thanks so much for your kind words about my back too Kiki, it means a lot and really need that encouragement right now also!
So sorry Ravyn to hear you are going through a horrible time with this too, hoping these awful neurological symptoms settle down and you feel much better soon. As with Kiki, remember this virus will pass and after 4 months I was still struggling quite bad, it still took a few months after that but I did get back to full health thanks to God - truly believing that you will too, hang in there and thinking about you!
Craig
mia09164 kikisan
Posted
hi,how is your vision now?