Worried about large ovarian cyst, possible cancer and operation

I propped myself up in a sitting position.

 

OK,will give it a go.  Thanks.

May find best for you is what would call semi-recumbant position, this is half way between sitting and lying

Have been to see the gyneacologist this afternoon and am still confused.  Unfortunately, he didn't speak particularly good English and even though I asked him to explain again I am still none the wiser about some things.

I couldn't work out if he was saying that I would have both ovaries and fallopin tubes removed, then, while under the anesthetic they would then look at the cysts under the microscope (or whatever) and if there was a chance of cancer they would remove everything (not sure what, but it included the lymph glands), but if there was no cancer it would just be the ovaries and fallopin tubes.  However, my husband, who was with me, thinks that he said they would do the full thing anyway including the lymph glands, and if it was cancer I would have chemo?

On a positive note, he did says it was a 98% chance it would be keyhole with a 24 hour stay in hospital.  Can you help at all with this?

Best wishes

Kathy

Sorry, also he is sending me for a CT scan next week but said I won't know the results of this, and they won't be conclusive about cancer anyway.

That is a common scenario and what they did with me. They remove as little as can then examine it while you are still under anaesthetic and do more if this shows should. If not will leave it there and sew up the incisions.

With me removed ovaries and fallopian tubes but as there were no indications needed to do more sewed up the incisions and that was that.

All keyhole.

Thanks Tazchurch.  I hope that's what they are planning for me.  But are there some people who have had everything out even if they don't have cancer do you know, because of their age (I am 60)?  I really hope that's not the case with me.

Kathy

The extreme that you describe is known as a radical hysterectomy and to my knowledge the answer is no

Thanks Tazchurch.  That's reassuring. Unfortunately, I couldn't understand the surgeon very well so my doctor is going to find out what he said for me.  Will keep you posted.  Waiting for the CT scan appointment at the moment.

Thanks Kath

Big hugs

Taz xxx

Hi Taz i had a full abdominal hysterectomy on the 12th Sep because of a 2lb cyst on my left ovarie.I went to see the gyni for my post op appointment on fri and she told me that there was early signs of cancer so now she as told me i have to have a CT scan to check everywhere else and i am so scared nott got the appointment threw yet.Do you no if this is common

Under these circumstances this is done as a matter of course. It is done to check there are no signs elswhere. However spread is so rare that in 30yrs my gynaecologist has not known it to happen. Given the length of time since the op they cannot be overly concerned.

However this is causing understandable concern so if you have not got a date for the scan by tommorrow or the day after ring them, you may find your gyni's secretary helpful here, you deserve this sorted sooner rather than later

Big Hugs

Taz xxx

Hi Kath, my mum had a radical hysterectomy a week ago now. Shes not recovering too well as the cyst/adnexal mass was attached to her bowel as well. At pre op they told her they would remove everything anyway as a precaution. They took a disection from her nymph glands, possibly for staging. After op surgeon cane round to my muks ward and asked how she was. We had to ask her how/what was seen in op. She said they removed everything that we discussed and mums appendix looked sticky so they decided to remove that as well. She had alot of endometriosis scaring and lots of fluid in pelvic region. The cyst ruptured before op which possibly caused mum to collapse a month prior to this op. It also ruptured again whilst thry tried to drain it. Now the mass has been sent off to the lab, she didn't say whether ir looked malignant or not which is worrying.  So its a waiting game again. Im worried we go back to post op appointment and they tell us mum has cancer. She has had fluid cysts in her breasts before. Hoping and praying for a positive outcome. Has anyone had anything similar to this?

Hi Livi when is it you mum post op appointment.How is she feeling now is she getting stronger xxx

Hi Julie no appointment date yet shes not recovering well at all at the moment.  Having a lot of bowel problems, she can't keep any food down. Where the cyst was also attached to her bowel which I think surgery is taking longer for mum to be able to go to the toilet properly. They have also said mum is anemic so shes been having these iron tablets which is making her have diarrhoea.  Shes loosing so much weight, very pale. Ive read you've got your ct scan due. I bet it will seem like forever. Its tye waiting that worries us all. My mum is being so brave about it all. Im too scared to mention the 'c' word to her but writing on here and talking to you all really helps. You've been Google ing like me too and im getting myself anxious state too. Well all do, we all think the worst. Im sure the worst part is over for you Julie and the surgery has done the trick. We are here if you need a chat. *sending virtual big hugs* you will be fine xxxxx