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Worried about large ovarian cyst, possible cancer and operation

Posted , 9 users are following.

Kath_T
Kath_T

Hi Everyone

I am 60 and was diagnosed with a large ovarian cyst on Tuesday after a routine scan on my gallbladder.  The cyst is 8.7cm x 5.5cm approx 31/2 inches by 21/2 inches)  I had a CA125 blood test on Thursday afternoon because, although most of the cyst looks to be fluid, there is a solid part to it too (but don't know the result yet).  I am really worried about what is going to happen to me, whether it is cancer or not, but also how the operation will be done with such a big cyst.  Could they still do this with keyhole or will it need to be the bigger operation?

My doctor has referred me to the consultant as urgent to be seen within two weeks, but she is now on holiday until Tuesday so I cannot talk to her..

Has anyone else been in a similar situation (especially at my age)?  How did they do the operation and what did they remove, just the cyst, the ovaries as well, or more?  How long did it take to get over it?

I would be very grateful for any information anyone can give me please?

Best wishes

Kathy

1 like, 220 replies

220 Replies

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  • Kath_T
    Kath_T

    Posted

    Just to let everyone know, my CA125 blood test came back normal.  I'm so relieved.  That's one hurdle over.  Still waiting to hear about my appointment to see the gynacologist to see what sort of operation I need though.
    • l95692
      l95692 Kath_T

      Posted

      That is wonderful news, Kathy! What a relief! (phew!).

      If your cyst is bothering, then likely they will suggest the keyhole apprach. If you are not feeling anything, then they may suggest waiting a bit.

      I'll keep sending positive thoughts!

      - Lorena

    • Kath_T
      Kath_T l95692

      Posted

      Thanks so much Lorena.  It is bothering me and is quite big.  Getting aching sometimes and pain others, and I can feel it sticking out, so want it gone.  Hope it will be keyhole.

      Hope you are doing OK today?  Positive thoughts to you also.

      Kathy

    • Tazchurch
      Tazchurch Kath_T

      Posted

      Keyhole(Laparoscopy), is the preferred option for NHS trusts as it  has many benefits for both the patient and the trust, (including a shorter or even non hospital stay), both mine were removed this way at the same time. One cyst was larger than usual but all they did was make one cut slightly larger, as in 2 or 3 cm as opposed to 1cm
    • Kath_T
      Kath_T Tazchurch

      Posted

      Thank you Tazchurch.  That's very reassuring.  But I do wonder if they will remove my gallbladder at the same time, as I have a polyp in it (only small and being monitored)?  I hope not though.  All these things are worrying me and I have still not heard from the hospital about an appointment within the two weeks to see a gynacologist. I suppose it is early days, was only referred last Thursday.  Perhaps it will come today.

      Thank you for your help.  It is nice to chat to someone who has been through it.

      Best wishes

      Kathy

    • Tazchurch
      Tazchurch Kath_T

      Posted

      Gallbladder removal is usually done keyhole these days. May be at same time if decide to so just one op, all keyhole
    • Kath_T
      Kath_T Tazchurch

      Posted

      That's good.  Thanks. But do you know if it would make my recovery slower?
    • Tazchurch
      Tazchurch Kath_T

      Posted

      Recovery times are shown as being the same so doubt it
    • Kath_T
      Kath_T Tazchurch

      Posted

      Thankyou Tazchurch.  Had a call from my Doctor just now.  She says the next step (after seeing the gynecologist during the next two weeks) will probably be a CT scan.  So more waiting I guess?
    • Tazchurch
      Tazchurch Kath_T

      Posted

      Probably, hopefully not too long, but at least moving in right direction. Scan merely so knows position better for any op and options got, may decide on another  ultrasound rather than CT, ovary specific this time though.
    • Kath_T
      Kath_T Tazchurch

      Posted

      OK Tazchurch.  Thanks for your help.  Will let you know how it goes.

      xxKathy

    • Tazchurch
      Tazchurch

      Posted

      Don't be surprised though if get scan appointment through for before see the gynaecologist so they have a clearer picture before your appointment. Mine was going to be after but ended up a few days before so had results infront of them.
    • Tazchurch
      Tazchurch Kath_T

      Posted

      Thanks Kathy

      Big hugs

      Taz xxx

      (real name Mandy if want it!)

    • Kath_T
      Kath_T Tazchurch

      Posted

      Ah I see.  That makes sense.  How long was it from the time you saw the gynaecologist to the time you had your operation please?
    • Tazchurch
      Tazchurch Kath_T

      Posted

      Thanks Kathy

      Big hugs

      Taz xxx

      (real name Mandy if want it!)

    • Kath_T
      Kath_T Tazchurch

      Posted

      Thanks Mandy

      How long did it take from the time you saw the Gynaecologist to the time you had your operation please?

      Kathy xx

    • Tazchurch
      Tazchurch Kath_T

      Posted

      Two months but I had to have extra tests due to having asthma and epilepsy as done GA, if not would have been about a month to 6wks, depends how busy hospital is as to the waiting list for you. Shouldn't be too long though.
    • Tazchurch
      Tazchurch

      Posted

      Sorry seven weeks saw him 30th July and op 15th Sept
    • Kath_T
      Kath_T Tazchurch

      Posted

      Have just received my appointment to see the gaenacolist next Wednesday. 

      Can anyone tell me how they managed to sleep before they had their cyst removed?  I can't lie on my sides as this is painful and if I lie on my back then I get a pulling sensation in my pelvis.  The doctor said the cyst is sitting above my pelvis  and pushing up because of the size.  I would just love to get some sleep.

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