Worried about large ovarian cyst, possible cancer and operation

My mum had op 2 weeks ago today. Some of you I have been chatting to and it has helped me so muchm just quickly updating... we have been ringing hospital for any news of a post op. Mum had some biopsy samples taken from her total hysterectomy and we have not heard a sibgke thing. Today, we spoke to a receptionist of the gynea/onc who has been working mums case. Apparently the biopsy results have arrived back TODAY but they haven't been checked. They have given mum an appointment date of 27th November (which is ages!!!) Esp if she needs chemo ir something after.

So mum said, "what if my cyst is cancerous and I won't know until a month away, will they move my appointment closer" and the receptionist replied "oh ermm didn't think of that...well your consaultant is going to Australia for a holiday so you wont be seen till later anyway. .."

So badly organised! !!!!

The receptionist/mcmillen burse said they will look at my mums results and phone us either tomorrow or next week with results. ..how disgusting to be told over the phone. My mum has had nothing but bad luck throughout all of this. NHS for you lol.

So now we are sat at home scared to deatg every time our phone rings...waiting for news. Just awful

Hi Kath and Taz hope you are well just to give you a up date about my CT scanThe consultants secratary phoned me up and told me the consultant as had a look at the CT scan reults and shes not concerned about anything it all looks fine.But the results have to go to a meeting with all the speacilist next Thursday to just take alook at mine and othere peoples.Ive never heard of that but apparently thats what they do.

Hi ladies I have some really sad news. My mum was diagnosed today with Stage 1c Ovarian cancer. She needs to have chemotherapy starting December. I feel so gutted and were all in shock. The cyst had cancer cells around the edge so the chemo will hopefully kill off any floating cells in her body. Fallopian tubes, womb, cervix, abdominal fat and nyph glands were all clear though.  I feel devastated,  and disgusted its taken hospital ages to deal with it xx

Oh Livi am so sorry to hear the new's big hugs my love to you and you mum xxx

Hi, 

Sorry too hear what you are going through, I'm new too this and came across your discussion.

In May this year I had a borderline ovarian cyst measuring 22cm and filled with 5 litres of fluid removed keyhole surgery I was very lucky I had a great surgeon willing too do it keyhole as I'm hoping I will still be able too conceive a baby, unfortunately I had too have my right ovary and fallopian tube removed which has resulted in being referred too fertility. 

The recovery after surgery wasn't too bad but there is swelling and you will be tender, plenty rest after. It took pathology a few weeks too get back to me which was when I found out it was borderline, I have been recommended to have a hysterectomy if we are lucky enough too fall pregnant as we would be happy too have no more children after that, apparently if it happens too one ovary it may happen too the other, I have too have scans every 3 months too keep an eye on my left ovary, so far so good.

I wanted too share my experience with you, I know what an anxious time, try not worry and i wish you well for your surgery and a speedy recovery 

😊😊

Hi Kathy, 

I did have too stay overnight as they like too make sure you can urinate 3 times normally before going home, I made sure I kept drinking loads and I mean loads of water, jugs of it, as they will put a catheter in during your op, you don't need too get up to go to toilet over night.

I had 4 incisions made, one on either side of my stomach at 1cm, another one on my lower abdomen 3cm (where they would give you a c section) and one inside my belly button, when you wake up there is no pain but swelling, they will keep you topped up on pain relief, I got oral morphine and tramadol with paracetamol and ibuprofen so didn't feel pain, I stopped the morphine in the morning as it prevents you from going home tbh other than pain relief it makes you sleepy so can actually sleep in hospital too recover from the general.

When I got home I had discomfort more than pain, it's like trapped wind all around you abdomen, this I because at the start of surgery they use air too extend the stomach to give them room to move and to see what there doing, the best way too relieve this I would say try when you feel up to it go for short walks it helps to move the bagged up air left behind, it only lasts a day or two, then just take it easy and stick to the rules .........no heavy lifting or hoovering, really anything that will cause you to strain tummy muscles,I also went and bought antiseptic wipes to keep incisions clean I was scared of infection, I had disolvible stitches but the were irritating me kept catching my trousers so had what was left on the outside removed about 3 weeks later.

It took me about 6-8 weeks in honesty too feel more myself but I'd went through so much with it being 22cm I couldn't eat or breath as it was squishing my other organs, I lost alot of weight from being sick after eating, so your recovery may be quicker, unfortunately iv had more issues not relating to the op but still gynie, so still going through it but as of removal surgery it went well and recovery wasn't as bad as thought my fiancé has been a complete star looking after me, so make sure you have lots of support, I'm only 32 and never had any problems before so it's came as a complete shock too us, its been going on 9 months now but I keep just plodding on and try be positive. Since I found out iv stopped smoking (15years I'd smoked for) I know terrible, eating healthy and taking vitimans too and soon start exercising (docs orders not too just now) and I do feel alot better

I hope iv not rambled on too much and iv answered all your questions and not too detailed to add too your nerves and sorry your feeling unwell, try taking it easy, I understand it's a nerve wracking time  I felt the same but looking back, I wish I'd relaxed a bit I'm sure you are in great hands

Best wishes

Kira 😊