Worried about MS or Brain Tumor

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6 weeks ago started waking up with numb hands and they persisted for a few weeks so went to see gp. Examined and questioned and and was sent to physio .So 3 weeks in I start physio and numbness starts a bit in right leg. Starting to get anxious and worried now.....A week later I start to feel a little dizzy occasionally and off balance. Have had very comprehensive blood screening and 2 neurological exams and all normal . I'm getting mouth infections , throat infections and dizzy a lot. Every week I have another symptom. ...even slight numbness in tongue and now persistent headache and feel brain fog . Worried sick it's a tumor or MS. Help ! Symptoms calmed for a week after the blood results etc but within a few days think I had a panic attack and have not been right since. Taking a half Xanax now and again to keep a lid on things. Doc prescribed a month of Lexapro but im not happy to go on anti depressants. Sending me to a neurologist to rule everything out but appointment not forthcoming til June. I'm going out of my mind.....

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  • Posted

    Has your gp checked your bloods low b12 and vit d could be the cause
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    • Posted

      Yes I had full bloods done and everything was totally normal. Had two neurological examinations after that too ...One by the doctor and one by the physiotherapist and neither were concerned. The dizziness on particular is very worrying for me as it's new and fairly constant but not really bad either. It's just a feelng of being off balance and as if something doesn't feel right. If I'm not moving I'm ok but any form of movement or long periods of standing I feel it...but only in last 3 weeks. It wasn't present for the first 3 weeks until I think my anxiety went haywire.
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  • Posted

    Check for Guillain Barre Syndrome. Could be a mild case. I had a mild case with similar symptoms. It's hard to determine though. You can see a physical therapist who specializes in vestibular disorders and they can fix the dizziness even if you are unsure of the cause. I'm seeing a specialist now about that after a reflare of symptoms. You don't have to just live with it.
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    • Posted

      Is it possible to get a mild case of Gullane Barre syndrome. ...I thought that was very serious and almost always required hospitalization. What symptoms did you have ?
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    • Posted

      Yes, it is possible. It's difficult to diagnose and oftentimes missed but it can really throw you off for awhile. Only about 30% goes on to having to be on a respirator in the hospital. I've met quite a few people with variations of GBS. Some are lucky to get diagnosed while others struggle with symptoms and rush from doctor to doctor with little help. The good news is that there is often quite a bit of recovery especially with milder forms but even with the more serious cases. Did you have any illness (stomach or sinus), injury, or vaccine before you started having symptoms? I had ascending numbness/weakness that started in my foot and moved up my body. I could feel the nerves firing/twitching like crazy too in the affected area. It affects so many parts of the body many times. It affected the nerves in my face too causing me to have numbness and weakness in my face and dizziness. That's why I thought you should check into it. Do you have any muscle weakness? Of course, anxiety causes a lot of similar symptoms. The whole GBS experience causes quite a bit of anxiety though when you are so worried and it's hard to get medical assistance with it. There are some great sites for information.

       

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    • Posted

      I actually mentioned to the doctor at one point but she didn't say anything. ...I kind of thought she was under the impression I was googling a bit too much . The numbness started in my hands when I woke in the mornings not in my legs which I think is a typical symptoms of GBS. ...eventually after about 2/3 weeks I hot some tingling or pins and needles in one foot and a kind of numb sensation in parts of that leg. At times I felt as if I might topple a bit to that side going around corners. But physio and doctors checked my arms and legs and said they had good strength in them and showed no signs of nerve damage. They felt it was was a fleeting condition of some sort as all neurological signs were really good. I'm really at a loss but now my anxiety is almost out of control and I have three young kids so need to get sorted out. I'm getting really down over it and beginning to fear things I normally enjoy. It's an awful feeling.
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    • Posted

      I have met other people at an online GBS site who had an atypical presentation where it started in their hands too. Sometimes the reflexes are still there and it's difficult to get diagnosed. They usually don't treat it really if it's mild. Just supportive therapy for symptoms as they come up. Physical therapy can be helpful if there are strength issues. I would rule out big things with the doctor and try to keep the anxiety down because that just adds to the problem and interferes with diagnosis. But I know it's scary because I've been there with similar symptoms and when you don't know it is hard.  Just know that he right physical therapy can help down the road. Are you having any muscle weakness?

       

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    • Posted

      I know what you mean. The anxiety just drives everything through the roof. Well I'm in the process of doing all that you say... doc is booking me in now for mri so hopefully will have it done and dusted within the week. She says it shows up a lot of things and that it will rule out any major concerns. She said she still isn't worried that it's anything major so hopefully this woman knows her stuff. I'm still going to go for the neurological appointment when it becomes available too. I can discuss other things with him when u get there if mri is clear. God the thoughts of getting the mri results is making me feel ill and I haven't had it yet.
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    • Posted

      Good luck with the MRI. It's not too bad at all. They had music to listen to. I had 6 of them during all of this and none of them showed anything. Good news that nothing bad was wrong but tough when you still have symptoms and aren't sure what to treat. Hope yours shows nothing major, as well. It takes so long to get in with a Neurologist. I wish I had checked with an Immunologist. That is who eventually knew what was wrong with me. Something to check into if you don't find your answer. Your symptoms came of acutely and not really gradually like I would think with something chronic. Good luck and try not to worry too much! 
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  • Posted

    It sounded to me like a deficiency - B12 or otherwise...or Coeliac Disease effects. GBS does sound likely from the rest of this thread.  Hang in there and GL!
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    • Posted

      Thanks Aveline. B12 apparently is ok according to bloods. Doctor is currently arranging for me to have an mri so fingers crossed it will be clear. I'm normally an active energetic healthy person....hoping this will be restored ASAP.
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    • Posted

      GL on clear MRI findings and a treatable diagnosis, soon!! Saying a prayer that you'll be well!
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