would increasing pred help

Not a theory MrsCJ - absolutely spot on!!

We had stress this weekend.  Finally, after a couple of years af talking about it, my son took a day off work and he, hubby and I headed off to the countryside on what was going to be a pleasant daytrip.  We had no sooner pulled into the parking lot beside the Vineyard we were starting our day's adventures than our car literally went up in smoke.  As I stood there watching all this, having retrieved what I could carry from the interior of the car, I suddenly reaized I was going to have to sit down somewhere or collapse on the ground.  Moments like this make one so aware that you are not really a completely healthy person any more.  Anyway, sitting on a big rock under the trees with a nice view over the Annapolis Valley while my menfolk dealt with the disaster was all I needed.  

Nobody need that kind of stress, especially with PMR. How are you doing today?

I kno! You get lulled into a false sense of security, feel you're on top and managing, have what you would think is a 'normal' day - and suddenly you're exhausted and feel you can't move a step. And that's not when something shocking happens like a car blowing up!! Hope there are no ill effects today!

Hi Michdonn.  The car issue has been up and down.  the collision centre we went to first said there was something melted on the heat shields and they surmised layers of rust protection, and sent hubby home with the car, having cleaned it up.  He checked with the rust protection company and they said they'd never heard of such a thing, suggested he go to dealer for second opinion and get back to them if there ws a problem with the rust protection.  Dealer said it was in fact a protective layer on the heat shield which had melted, and that some of the wiring had been damaged.  

PMR wise I've had a nice visit with a locum for my regular gp, someone who showed much more interest in how I was getting on and expressed concern that my inflammation markers are somewhat elevated (they always have been although much beter than at diagnosis).  She went so far as to say I should have the blood tests done while she was still in the practice so that I could see her again, and she would discuss results with me.  This makes me feel a lot more supported.  While I've always been grateful to my gp for taking me on as a paatient and diagnosing me apparently accurately and allowing me to manage my own dosage, she hasn't really given me any other support or helped with any of my concerns (skippy heartbeat, aches in legs, injured shoulder, inability to regain weight, etc).  I hadn't realized just how insecure I'd been feeling until this other doctor was so supportive and apparently actually interested in what I've been going through.  Wish she was going to be around permanently.  

That is a shame Anhaga, good caring doctors are very hard to find, take advantage while you can. Good luck Lady, keep smiling! 🙂

Hi Anhaga,

i live in BC, and about a year ago we flew to the Maritimes for a couple weeks for our first visit.  I remember the Annapolis valley.....it's so lovely there.  If u r going to have travel issues, at least u had a very peaceful location!

i believe that is where there is a winery that has a red London phone box out in the middle of the field of grape vines. You can call anywhere in the world on the phone, which of course we had to try!  And the food there was very good, too, and served on a patio overlooking the valley. 

We hope we can visit the east coast again!

Hi MrsCJ.  That was the vineyard!  Lucketts.  We had got there, parked, after noticing the car labouring up the incline to get there, and a smell and smoke, or steam, coming off the hood.  So we thought we'd need to let the engine cool down, wandered down the slope to the red phone box thinking we might call my brother in law and wife (they live in BC) but there was someone using it, so we wandered right back to the car, only to find people there with fire extinguishers, frantic because they were afraid the car might explode into flames, and they couldn't find the owner!  So as the menfolk started to become involved I retrieved what I could from the car interior and stood there rather helplessly, and suddenly thought, I'm going to have to sit down or I will collapse.  I found a big rock under some trees and sat there, sipping from my water bottle and enjoying the very lovely view and thinking maybe we'd been lucky, if something were going to happen we were safe and no one had been hurt.

" I'm going to have to sit down or I will collapse."

Adrenals objecting to stress...

Yes, this has become a rare but recognisable part of my life....

Yes, unfortunately that is part of this illness for me.  The trick is for me to recognize it's starting to happen....and to do things to stop the progression.  Like resting, taking deep breaths, removing myself from the bad environment, etc.  

Yesterday someone sent sent me an email that wasn't very nice - a dispute over an issue at the golf course - and it arrived just before my bedtime.  So of course I couldn't get to sleep as I mulled over all my options for facing her this morning. Stress + adrenal issues = a day with more fatigue for me. Ugh!

PS:  this morning she totally ignored me so I tossed and turned for nothing. Sigh...

It happens to me every 2 or 3 weeks, unfortunately - and if I don't sit down I faint.  Hospitalised 3 times because of blackouts in public places.  Doctors can't find out why I blackout.

This isn't just to Constance:

It is your body telling you that it isn't back to normal yet - but especially to those on under 10mg and who have got off pred in the last up to a year (or more). But that doctors either don't think of it or ignore it is not a good sign!!!

It really is disturbing, isn't it?  I haven't actually keeled over, the worst really has been the need to just stop moving and rest, which is inconvenient if you are only halfway home from a walk!

Had exactly same reaction some time ago over civic issue - nothing directed at me personally but it was upsetting.  From that I learned to avoid stress.  As I tell hubby sometimes I have to pick my battles.  For example I can argue that we should not be filling in the harbour and building highrises all along the waterfront because if enough citizens speak up this is somthing which can be changed.  On the other hand I can get upset about the way the engineers are redesigning our water/sewage infrastructure.  

had to leave quickly, hubby wanted his computer, before proofreading - I can't and won't get upset about the engineering inadequacies....

The. "only half way home" doesn't bother me much as I never go out of the house without my walker, which means I can sit down whenever necessary.  I bought one the second time I was hospitalised after collapsing in a publc place (some 'kind' individuals insist on calling an ambulance (they mean well I know, but if I can struggle home somehow I don't need to spend two weeks in hospital)!!!  Now I sit down wherever I am and REST before it gets too bad.