Wrong diagnosis?

Posted , 7 users are following.

Wow where do i start..................it all began about 6 weeks ago driving early one morning and had a violent dizzy spell so bad had to stop the car.

Anyway drove home and just felt muzzy headed all day after that so went docs on wednesday he said it sounds like labyrinthitis to me anyhow cut a long story short went private after having another violent dizzy spell where i felt like i was being swung around by my ankles where he diagnosed bppv..... done epley manouvre but no change had MRI scan all clear went to hospital again last week another doc says bppv aswell.

But i cant sem to make them realise i just feel really foggy and probably light headed in mornings untill about midday when it seems easier feels like real heavy head cold where your head just feels completely bunged up but with lightheadedness thrown in aswell.

some days feel about 95% next day feel bloody awful and its starting to make me depressed now as there seems no end in sight!!

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  • Posted

    BPPV is positional vertigo on moving head, especially when crossing the road. Labyrinthitis is generally room spinning vertigo when you are still.  But positional vertigo can come at the end of labyrinthitis.

    BPPV can caused by an ear infection.  BPPV can be also be caused by crystals in the ears coming out of position.  The epley repositions the crystals.

    I've had both of these before.  I can understand it is making you feel down may be anxious too. As dizziness would often come with anxiety. 

    Meditation has really helped me and I was a sceptic too at first. But it helps reduce anxiety, stress and is calming.   You can find free guided meditations to listen to online.  There are free Mindful guided meditations if you websearch UCLA and free guided meditations.  UCLA is University of California, Los Angeles.

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    • Posted

      Hi Helen seems ive had both violent dizziness  when driving and more light general dizziness at other times or

      When they peform the Epley manouvre it brings on the dizziness but nothing like the room spinning attacks that ive had prevoius .

      Plus ive always suffered wiv bppv if i place my head in a certain position for years but its not often you are required  to go upside down is it??   hahaha!!!

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  • Posted

    I have similar. For 3 months last year had light dizzy spells lasting 30 secs, one where I had to steady myself and also after rising first thing slight hangover feeling fo a few hours. Not every day though. Then nothing until July this year waking up feeling travelsickness during am then usually clear by pm. Some days OK though. Ears blocked so had those cleared and then hearing test proved OK.

    went to doctors and put me on course of infection removal but was not infection and had no effect. Then Tinitus started both ears. Now waiting ENT appointment supposedly for a scan.

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  • Posted

    PS, I do not get dizzy when I have this by moving my head in any way and can move quickly like playing table tennis or just spinning round. Thought I'd add that as perhaps I do not have BPPV!
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  • Posted

    Hi stevie,  I was diagnosed with BPPV about 10 years ago, I have had the epley treatment twice over that time and to be honest it never helped.  After an MRI scan the consultant said it was due to the crystals in my ears.  I was in a very stressful job, and I do think stress plays a part in the number of attacks I had, but I also became aware that various movements of the head triggered it off, some times just turning over in bed or lying in the wrong position, tilting my head back to look up, really little things that we all do daily, trips to the dentist and hairdresserswere a nightmare as well, so 10 years down the line I avoid anything that will do this. I think because I do these things automatically now my attacks are few and far between, but the one lasting thing that is still with me is that I am unable to lie flat on my back. I don't think GP,s and medical professionals no so little about it and don't realise how horrible it is, mine is more like being on a huge sponge so when you move you go backwards and forwards and side to side.  I recently had to have X-rays for another condition, and I really had to stand my ground about lying on my back, but at the end of the day you have to do what is the best for yourself.  in the early days you think it will never end, but you can have a life alongside it.

     

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    • Posted

      Hi Eileen yea mine seems to come on gradually if i lay in bed on my right hand side i can feel it slowly building up over a period of time its not like turn over and whoosh its like i say a graduall thing not sure if that bppv/

       

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    • Posted

      My consultant showed me the scans and pointed out the crystals, he also did the eye thing so seemed quite sure of his diagnosis. I find if I concentrate on the corner of the room with my eyes it helps.  In the early days the attacks could last for days, but now it is usually just a day.  I was told that it could stop as quick as it starts
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  • Posted

    steve i've been diagnosed with bppv.  Went to be bed one night with no problems woke next day turned over in bed and the room turned with me.  Got out of bed and crashed to the floor. They would have checked your eyes for nystagmus(rhythmical eye movements) when they did the Epley which is part of the diagnosis i understand.  Hope you recoversoon but it could take longer than a few weeks which was my initial hope.

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    • Posted

      Hi Anne ,was going to PM you but thought would share this with ,some one on a tinnitus site they took Dimista nasal spray ,and it stopped the balance not come back ,and they'd been on different stuff ,but this worked for them ,husband just popped out to get some ,Hope Darren looking in today.Will let you know how I go .Ive got eczema inside ears ,so think this could be my problem to daily balance prob ,need to find out what allergy I've got that's making eczema so bad . Has anyone tried ear poppers ? 

         Wonder how Darren is now Anne,had bad couple weeks .Be in touch .x 

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    • Posted

      think it's part of the diagnosis that confirms BPPV.  The Epley manoeuvre has never worked for me, it just eases off over time and then have a few clear days/week and then it comes back again but always less severe than the first time i experienced it. Triggers for me are lying backwards and looking upwards.  It's apparently known as 'top shelf vertigo', looking upwards and stretching upwards. 

       

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    • Posted

      From my experience the Epley manuvere doesn't work for everyone with bppv. Some people rave about it, while others only say it makes it worse or feel no change at all. For those that find it does make their vertigo worse it’s still possible you’re dealing with loose ear crystals, but you need a doctor to confirm this.  Either way the vertigo won't always let up right away after maneuver is done, It's recommended to do it for up to a two weeks to feel the best results, but since it isn't always comfortable to do, it’s best to know that crystals in the ear are your problem before putting yourself through it all. Some can do the maneuver and feel results right away. It just depends where the crystals are lodged or moving around.My friend how issues with this for years and then found a simbalance pillow that was designed to help with this form of bppv. It's not for every case of vertigo, but it does work.
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    • Posted

      same here.  Had the epley done twice with minimal if any benefit.  Bought a dizzy fix hat on internet with is meant to help do your own epley manouver which made everything worse.

       

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