Posted , 22 users are following.
I posted this in another converstation but thought it might be fun to start a 'whinge' post. 
What do you 'hate'?
You know what I hate?
People who, even when they know I have PMR, suffer fatigue, on a cocktail of medications - all of which have caused a huge weight gain, tell me I need to go for a walk as it will make me feel better!!
AAGHGGHHHHHHH
3 likes, 120 replies
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faye______00403 FlipDover_Aust
Posted
I hate that I finally gave away all my "good " clothes because with the weight
gain they didn't fit anymore. Finally decided that at my age (80) that i wasn't
going to get back down to previous weight. I hated when I caught my husband
rolling his eyes when I complained one time too many, I guess....I hate that he
says' he'll help me if I show him what I want him to do.....DUH....might as well
do it myself....on and on.....thanks for the chance for a little rant this a.m.....
constance.de faye______00403
Posted
Rather rash! I am 77 and after 5 years on high doses of Pred (now down to 5 mg) I have got 'below' my previous weight. Age and eating less helped.
faye______00403 constance.de
Posted
How does age keep you from gaining weight? If that's true I should
be going down on a daily basis......I don't over eat. If I could get down
to 5mg maybe could lose but having difficulty reducing.....
and......at my age I have other health issues.
constance.de faye______00403
Posted
Me too! OA, OP, Tendonitis, high blood pressure, kidney problems - I'm still alive and kicking though (well 'tottering'
.
Perhaps the low Pred dose is helping. How long have you had PMR?
EileenH constance.de
Posted
So pleased you have managed to get to such a low dose! Good old Lodotra isn't it? It may be pricey but it does seem to have some advantages.
constance.de EileenH
Posted
Do you have to pay for it? I don't, so lucky I suppose.
I was informed (on this forum) that you shouldn't 'mix' Pred and Lodotra. However, when I was in the Rheumatisum Clinic recently, they put me on Lodotra, 3mg, at night and told me to take 2mg Pred in the mornings.
What do you think about it?
EileenH constance.de
Posted
No, not here, just the prescription charge.
Why not - what difference does it make? It is only effectively splitting the dose. The Lodotra will work nicely overnight and you'll be able to function in the morning. The 2mg in the morning will keep the effect going longer through the day and cost far less. There's no point using a 2mg Lodotra to work during the day - the idea of Lodotra is to be raring to go at 6am without having to get up in the night to take it.
I tell people to mix enteric coated and plain pred - exactly the same concept. If I needed to split the dose I'd do it too - except here I can only have Medrol which was poison to me and the reason I'm on Lodotra as the only other option.
constance.de EileenH
Posted
That's another expression I've forgotten "raring to go".😀
Juno-Irl-Dub constance.de
Posted
Well, I've never had that one applied to me!!
faye______00403 constance.de
Posted
I;ve had PMR almost three years. Initially went right down to 4mg but
had bout of sciatica that really put me down.....sed back up so pred
back to 20mg and hard time reducing. I have COPD, high b/p
herniated disc in back, chiro says rotated pelvis that causes numbness
below waist whenever I stand for long. Osteo in several places,. worst
of the pain in the shoulders, wrists and knees . I'm alive but doubt that I
could do much kicking.....
lodgerUK_NE faye______00403
Posted
Please give Bowen a whirl. I did just to make Eileen happy. I should have listened to her earlier..
faye______00403 lodgerUK_NE
Posted
I checked and could not find one in my area.....I don't want a long
ride. Thanks for the info......but I've read from some on the forum
it did nothing for them.....
EileenH faye______00403
Posted
Where are you?
faye______00403 EileenH
Posted
dea13 EileenH
Posted