Zero Prednisone Discussion
Posted , 53 users are following.
At the request of users I have started this discussion for users whose PMR/GCA has gone into remission and who are off steroids. It can also be used for users still on pred to ask questions of users who have achieved zero pred. I have added information to the pinned discussion for PMR/GCA Resources https://patient.info/forums/discuss/pmr-gca-website-addresses-and-resources-35316 linking to this discussion.
11 likes, 216 replies
pauline36422 Emis_Moderator
Edited
on my way down to zero and getting to 2mg, instead of changing weekly on the dsns i did 2 weeks then dropped .5 mg. i know it was a slowerway. but it was worth trying and it worked for me,i am in the middle moving house , stressfullisnt the wordbut trying to stay upbeat
pauline36422 Emis_Moderator
Posted
dont worry how long it takes, the slower better success you will have.at least your still going down,
it took me a long time to get to zero but still there, fingers xd I am still carefull of the amount preasure i put on myself.
Anhaga Emis_Moderator
Edited
Last year, fed up with hanging around 2-2.5 mg pred for years I decided to try something new. I then started tapering by doing each step of the dead slow nearly stop (DSNS) method twice. This means it takes twelve weeks to taper by .5 mg. Therefore it has taken me a year, longer in fact, to taper to my recently achieved zero.
This is by way of encouraging people who think they will never get off pred. Patience, patience, patience, as with everything else to do do with PMR!