10 weeks post TKR pain after exercising difficulty sleeping

Posted , 12 users are following.

10 weeks TKR and have been subjected to the worst 10 weeks of my life between a combination of pain in the knee all the time, initially bowel and bladder problems, side effects of feeling sick and shivery when taking pain killers, unable to get much sleep at night, tried sleeping tablets that partially helped but again had awful side effects during the previous day. I have decided to come off all medicine during the last two weeks. just wish i could come out of this nightmare since the operation so i could get on with my life again. i lost 5 kg of weight during my 8 days in the hospital although i was eating quite well, i have put on 0.5 kilo's during the past two weeks but feel very week. I saw Surgeon two weeks ago and he said that he was pleased with the outcome of the operation but he indicated that it would take from 6 months to a year before my knee would return to normal. Every day is either a bad day or a very bad day. Do i feel sorry for myself - you bet i do!!!, going from a healthy outgoing type to literally becoming a crippled non entity

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  • Posted

    So you have now joined our club!

    This is how it is until you get your pain relief sorted out.

    Try sleeping more up right, and sleep when you need to, it's a long road ahead.

    Im now near the end of 6 months and it's been hell on earth.

    You have got to persevere with physio, cycling and swimming pool exercise, walking and going up and down the stairs without holding on.

    Your Consultant is right in saying it could take upto a year, as mine said the same.

    Im only now just back to working and playing a little tennis.

    Had I known how it would be, I would have never ever have had it done.

    Use your ice pack as often as you need, but remember to elevate higher than your hip to take down any swelling.

    Your own Doctor can always give pain relief and if one is unsuitable, try another until you get on with them.

    Best Wishes,

    Sue

     

  • Posted

    Oh dear - you do sound in a bad way! Side effects from pain relief can be very unsettling especially if they were fairly strong opiates and you sound like you've not had need of them much before.....you should have tried a few different types to see what suited you best.....or just tried some over the counter pain killers...you dont say where you are from, so can't suggest something you could buy but you may still need something to take / help before you exercise to take the edge off. I did take the opiates but they made me feel poorly too, so ended up with Co-Codamol (a mix of codeine and paracetamol) that I take for my spine issues  -  I would never have managed without them tbh.....I was far from fit and able when I had my TKR in December 2017 and expected it to be painful but no where near as bad as it turned out to be, Several times I wished I'd never elected to have it done but now - 8 months later I am so good - better than I've been for years....I can walk without a stick and can do stairs like a normal person (after 20 years). Having said that I am not sure I would have the other one done in my experience but never say never....you need to look up Chicos posts on here...he is so full of excellent advice - an ex hockey player who's had so much surgery - and he really knows how to deal with TKR post-op.....look him up.....best advice ever.....

    Good luck and try not to be so despondent - it should all come right very soon, assuming all is ok with your surgery and you have no infection.....!

  • Posted

    Hi climber,

    I understand how you feel. I am two years post bilateral tkr and my knees are great. As you are seeing, it takes a lot to get through it. Keep doing your exercises and it will get better. It took me up to a full 14 Months to be back. The swimming pool was a game changer for me. I walked in there and exercised In there as often as possible. The first few weeks are the worst. The time will come when you can sleep through the night and you don’t have to take any pain killers.  

    One thing that helped me sleep was to ice my knees right before I went to bed and when I woke up I the night. It helped me get back to sleep. 

    To me, looking back, doing my exercises and icing and elevating really helped. After 2 months they said I could get to the pool and it really helped. Keep hanging in there and the discouragement will come and go— you can overcome this. Stay strong.

  • Posted

    so sorry to hear this climber.  I am 7 months po and am still hurting like hell.  I have appt in September with another ortho for a second opinion.  I had my surgery at a teaching hospital here in NC, and when I read my surgical notes, found out that the resident did my surgery.  Big Mistake...... I hired the attending physician to do my surgery.  Can't wait for my second opinion..  Take care and good luck.

  • Posted

    Hi Climber I do hope you feel better soon I can  definitely  understand how you feel I think we all do the pain is the worst ever I was stupid to think once the new knee was in I would be fine what a joke my consultant would not believe me that I was in so much pain he said you just have a very low pain  threshold  I said my knee is not right as as for pain I had 2  natural child births I’m happy to have another 10 but all he gave me was 2 paracetamol and  codeine joke I also said I think it’s infected no it’s fine and yes it was have ended up with a nasty abscess that has been packed 3 times a week for the last 6wks I have now dropped him and I’m now waiting for a new one my knee locks and clicks but I do my exercises daily try to work through the pain but some days it’s hard I get fed up with crying when I’m on my own but I try to keep positive as the only way is up as for having the 2nd knee done it’s on hold until end of next yr as long as I can cope 
  • Posted

    Your doc is completely right about this taking a year.  That is the most typical time frame; people report "starting to feel more like themselves" around 9 months and then dance at their one year anniversary party.  You still have a long way to go.

    First, concentrate on the PT to get your ROM back and then the exercise program to rebuild your dead quads, glutes and core.  You will need all that musculature to take the pressure off the knee, walk correctly, regain your balance and do stairs normally again.  This all takes a lot of time and work.  It's done gradually since you cannot push a knee like you can a hip or shoulder.  Your recovery is controlled by the knee...give up everything you've got stuffed in your head.  Irrelevant.

    Here's some ROM work...#3 will get you to zero straight...

    https://patient.info/forums/discuss/tkr-rom-work-at-home-620053

    Then the muscle rebuild...

    https://patient.info/forums/discuss/post-tkr-exercising-565527

    And finally stairs...

    https://patient.info/forums/discuss/mastering-post-tkr-stairs-552728

    Here are some ideas on sleep...

    https://patient.info/forums/discuss/trouble-sleeping-post-tkr--539591

    Finally, post this on your fridge...

    https://patient.info/forums/discuss/the-reality-of-a-tkr-recovery-in-one-picture-626038

    ...and don't forget your oars for the boat part.

    PS: We had a guy on here almost two years ago who discounted everything everyone said.  His last post was that he was going back to mountain climbing that weekend...13-weeks post-op.  We never heard from him again, We all figured they found his body with a metal detector because of the knee.  Just sayin'...

    • Posted

      Now that is funny.....certainly made me giggle......shame we rarely hear from people once they re fully recovered - it would help some that are  really struggling....but then they only need to look you up - i recommend you for nearly all new posts I receive.....you have such great knowledge.....in fact recommended to a new post today from some called CLIMBER - 10 weeks Post-op!

      I finally got my knee cap replaced after the cement leak on 17th July and am doing so well now - if only surgeon had believed me a while ago instead of thinking I was such a whimp -  I'd have been in this postion some 4 months ago.....am 9 months now and managing to do stairs properly...although I do forget I can sometimes not having done normal stairs for almost 20 years.....old habits die hard.....

      My first day out today without my stick too.....my local pharmacist was amazed as he thought it was a permanent fixture and glued to my right hand...am still not taking anything for granted though.....thanks again for all your previous advice......xxx

    • Posted

      Opps - another senior moment - just realised this WAS in response to the CLIMBER thread-...ignore me....lol Must be euphoria being out without my stick....lol x
    • Posted

      good story CHICO, certainly maid me giggle, although the guy was going back to mountain climbing that weekend - 13 weeks post op, is it possible that his knee was OK,  the reason being that he discounted everything that everyone said and did was his body was saying - (see the post further down from clive whose knee was ok after 12 weeks) by not to all intent and purposes carrying out any exercises for 6 weeks post TKR. PLEASE COMMENT
    • Posted

      No, it's not possible.  First, the knee doesn't heal that fast.  Second, even if he had his ROM back, there is zero chance he had rebuilt his quads, glutes, core and more in that short of time.  I've read almost 5,000 posts and I can count the number of "miracles" (back to normal in 3-4 months) on less than one hand.  But back to mountain climbing in that time?  DELUSIONAL!!!

    • Posted

      PS:  You will also note that rock climbing is on the "Not Recommended" list...

      https://patient.info/forums/discuss/do-s-and-don-ts-after-a-tkr-a-typical-list-541794

      Why?  It puts undue pressure on the knee...a heavy weight load and/or twisting/torquing of the knee.  These must be avoided or your knee will last 3 years instead of 25.  After 45 years of hockey, I had to give it up after my hip was replaced or I would have destroyed the implant.  Everyone makes their own decisions.  Choose wisely.

       

    • Posted

       Chico you are right we do make our own decisions but when good advice is being given for free it does not hurt to take it on board I love reading your posts and I love reading everybody else’s I have learnt so much since I joined this group  please keep giving advice as it’s good to read many thanks 
    • Posted

      All I do is share what I've learned or was forced to learn in my 70 years.  First wife died at age 34 from breast cancer.  That woke me up.  Then married to a pharmacist for 25 years plus diabetes at age 41.  Learned a TON about drugs.  Now married to a great lady who was a psychiatric nurse in state mental hospitals for her 30 year career.  We were married for 6 months when she had brain aneurysm surgery.  You get very knowledgeable, very fast about the drugs available for depression.

      Me?  30 general anesthesia ops on 18 years.  I could write a book on pain meds and rehab.  Plus, I check everything with my cousin Greg who's been an ER doc for 50 years plus my friend Mike, my horn section leader in my 13-piece blues band in New Jersey, who has a Ph.D. in pharmacy, a Ph.D. in chemistry and a Ph.D in pharmacokinetics (how drugs work) plus a law degree.  Biggie in Johnson & Johnson in Jersey.  All my drug questions go to him.

      Finally, my wife's daughter is one of the top trauma nurses in Dallas/Fort Worth.  In an emergency, she's our go-to-guy.  Knows all the top docs in the area personally so we only see the best in town.

      If you don't have the resources I do, you'll probably try the Internet.  Here are some tips...been in IT for over 47 years...still working full time...

      https://patient.info/forums/discuss/reliable-tkr-information-582123

      Be careful what you read...look at the publication date...use reliable sources...just sayin'...

    • Posted

      Oh my you have been  through it I’m glad that u r so Knowledgeable and are able to ask other people that have the knowledge to the questions that we need the answers to thank you all 

      Regards Kathleen x

    • Posted

      Mmm - my first day out without a walking stick didn't turn out so well the next few days...pain in muscles, leg, groin and shin splints but probably my own fault - 1) for overdoing it but certainly 2) not wearing shoes giving proper support....silly sandals instead...foolish person that I am but wont give up...don't want what almost seemed a permanent appendage to my right arm anymore....expect I need to stregthen the muscles more......poo....and I thought I as soooo clever getting this far in 9 months after 2 procedures!

    • Posted

      Sandals?????  Spend the bucks on a good, supportive walking show...not the junk at Walmart.  Also, get a fit but or other pedometer.  Distance and time are irrelevant...it's all about the STEPS!!!  Track them...chart your progress.  Increase gradually or suffer "balloon knee"!!!  Then back off, note you limit and increase gradually.  Also have to do the muscle rebuild for your dead quads, glutes and core.  This will take the stress off the knee and put it back on the surrounding musculature where it belongs.  Then you can walk correctly, regain your balance and do stairs again.  Time, work, patience...

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