10 weeks post TKR pain after exercising difficulty sleeping
Posted , 12 users are following.
10 weeks TKR and have been subjected to the worst 10 weeks of my life between a combination of pain in the knee all the time, initially bowel and bladder problems, side effects of feeling sick and shivery when taking pain killers, unable to get much sleep at night, tried sleeping tablets that partially helped but again had awful side effects during the previous day. I have decided to come off all medicine during the last two weeks. just wish i could come out of this nightmare since the operation so i could get on with my life again. i lost 5 kg of weight during my 8 days in the hospital although i was eating quite well, i have put on 0.5 kilo's during the past two weeks but feel very week. I saw Surgeon two weeks ago and he said that he was pleased with the outcome of the operation but he indicated that it would take from 6 months to a year before my knee would return to normal. Every day is either a bad day or a very bad day. Do i feel sorry for myself - you bet i do!!!, going from a healthy outgoing type to literally becoming a crippled non entity
0 likes, 31 replies
susan47321 climber
Posted
So you have now joined our club!
This is how it is until you get your pain relief sorted out.
Try sleeping more up right, and sleep when you need to, it's a long road ahead.
Im now near the end of 6 months and it's been hell on earth.
You have got to persevere with physio, cycling and swimming pool exercise, walking and going up and down the stairs without holding on.
Your Consultant is right in saying it could take upto a year, as mine said the same.
Im only now just back to working and playing a little tennis.
Had I known how it would be, I would have never ever have had it done.
Use your ice pack as often as you need, but remember to elevate higher than your hip to take down any swelling.
Your own Doctor can always give pain relief and if one is unsuitable, try another until you get on with them.
Best Wishes,
Sue
missmagwumps climber
Posted
Oh dear - you do sound in a bad way! Side effects from pain relief can be very unsettling especially if they were fairly strong opiates and you sound like you've not had need of them much before.....you should have tried a few different types to see what suited you best.....or just tried some over the counter pain killers...you dont say where you are from, so can't suggest something you could buy but you may still need something to take / help before you exercise to take the edge off. I did take the opiates but they made me feel poorly too, so ended up with Co-Codamol (a mix of codeine and paracetamol) that I take for my spine issues - I would never have managed without them tbh.....I was far from fit and able when I had my TKR in December 2017 and expected it to be painful but no where near as bad as it turned out to be, Several times I wished I'd never elected to have it done but now - 8 months later I am so good - better than I've been for years....I can walk without a stick and can do stairs like a normal person (after 20 years). Having said that I am not sure I would have the other one done in my experience but never say never....you need to look up Chicos posts on here...he is so full of excellent advice - an ex hockey player who's had so much surgery - and he really knows how to deal with TKR post-op.....look him up.....best advice ever.....
Good luck and try not to be so despondent - it should all come right very soon, assuming all is ok with your surgery and you have no infection.....!
jen04209 climber
Posted
I understand how you feel. I am two years post bilateral tkr and my knees are great. As you are seeing, it takes a lot to get through it. Keep doing your exercises and it will get better. It took me up to a full 14 Months to be back. The swimming pool was a game changer for me. I walked in there and exercised In there as often as possible. The first few weeks are the worst. The time will come when you can sleep through the night and you don’t have to take any pain killers.
One thing that helped me sleep was to ice my knees right before I went to bed and when I woke up I the night. It helped me get back to sleep.
To me, looking back, doing my exercises and icing and elevating really helped. After 2 months they said I could get to the pool and it really helped. Keep hanging in there and the discouragement will come and go— you can overcome this. Stay strong.
martha08360 climber
Posted
so sorry to hear this climber. I am 7 months po and am still hurting like hell. I have appt in September with another ortho for a second opinion. I had my surgery at a teaching hospital here in NC, and when I read my surgical notes, found out that the resident did my surgery. Big Mistake...... I hired the attending physician to do my surgery. Can't wait for my second opinion.. Take care and good luck.
kathleen_65043 climber
Posted
CHICO_MARX climber
Posted
Your doc is completely right about this taking a year. That is the most typical time frame; people report "starting to feel more like themselves" around 9 months and then dance at their one year anniversary party. You still have a long way to go.
First, concentrate on the PT to get your ROM back and then the exercise program to rebuild your dead quads, glutes and core. You will need all that musculature to take the pressure off the knee, walk correctly, regain your balance and do stairs normally again. This all takes a lot of time and work. It's done gradually since you cannot push a knee like you can a hip or shoulder. Your recovery is controlled by the knee...give up everything you've got stuffed in your head. Irrelevant.
Here's some ROM work...#3 will get you to zero straight...
https://patient.info/forums/discuss/tkr-rom-work-at-home-620053
Then the muscle rebuild...
https://patient.info/forums/discuss/post-tkr-exercising-565527
And finally stairs...
https://patient.info/forums/discuss/mastering-post-tkr-stairs-552728
Here are some ideas on sleep...
https://patient.info/forums/discuss/trouble-sleeping-post-tkr--539591
Finally, post this on your fridge...
https://patient.info/forums/discuss/the-reality-of-a-tkr-recovery-in-one-picture-626038
...and don't forget your oars for the boat part.
PS: We had a guy on here almost two years ago who discounted everything everyone said. His last post was that he was going back to mountain climbing that weekend...13-weeks post-op. We never heard from him again, We all figured they found his body with a metal detector because of the knee. Just sayin'...
missmagwumps CHICO_MARX
Posted
Now that is funny.....certainly made me giggle......shame we rarely hear from people once they re fully recovered - it would help some that are really struggling....but then they only need to look you up - i recommend you for nearly all new posts I receive.....you have such great knowledge.....in fact recommended to a new post today from some called CLIMBER - 10 weeks Post-op!
I finally got my knee cap replaced after the cement leak on 17th July and am doing so well now - if only surgeon had believed me a while ago instead of thinking I was such a whimp - I'd have been in this postion some 4 months ago.....am 9 months now and managing to do stairs properly...although I do forget I can sometimes not having done normal stairs for almost 20 years.....old habits die hard.....
My first day out today without my stick too.....my local pharmacist was amazed as he thought it was a permanent fixture and glued to my right hand...am still not taking anything for granted though.....thanks again for all your previous advice......xxx
missmagwumps
Posted
CHICO_MARX missmagwumps
Posted
After the muscle rebuild, you will never need a walking aid for the knee again. Get strong!!!
...and stay happy...
https://patient.info/forums/discuss/two-guys-with-canes-limp-into-a-bar--534980
climber CHICO_MARX
Posted
CHICO_MARX climber
Posted
No, it's not possible. First, the knee doesn't heal that fast. Second, even if he had his ROM back, there is zero chance he had rebuilt his quads, glutes, core and more in that short of time. I've read almost 5,000 posts and I can count the number of "miracles" (back to normal in 3-4 months) on less than one hand. But back to mountain climbing in that time? DELUSIONAL!!!
CHICO_MARX climber
Posted
PS: You will also note that rock climbing is on the "Not Recommended" list...
https://patient.info/forums/discuss/do-s-and-don-ts-after-a-tkr-a-typical-list-541794
Why? It puts undue pressure on the knee...a heavy weight load and/or twisting/torquing of the knee. These must be avoided or your knee will last 3 years instead of 25. After 45 years of hockey, I had to give it up after my hip was replaced or I would have destroyed the implant. Everyone makes their own decisions. Choose wisely.
kathleen_65043 CHICO_MARX
Posted
CHICO_MARX kathleen_65043
Posted
All I do is share what I've learned or was forced to learn in my 70 years. First wife died at age 34 from breast cancer. That woke me up. Then married to a pharmacist for 25 years plus diabetes at age 41. Learned a TON about drugs. Now married to a great lady who was a psychiatric nurse in state mental hospitals for her 30 year career. We were married for 6 months when she had brain aneurysm surgery. You get very knowledgeable, very fast about the drugs available for depression.
Me? 30 general anesthesia ops on 18 years. I could write a book on pain meds and rehab. Plus, I check everything with my cousin Greg who's been an ER doc for 50 years plus my friend Mike, my horn section leader in my 13-piece blues band in New Jersey, who has a Ph.D. in pharmacy, a Ph.D. in chemistry and a Ph.D in pharmacokinetics (how drugs work) plus a law degree. Biggie in Johnson & Johnson in Jersey. All my drug questions go to him.
Finally, my wife's daughter is one of the top trauma nurses in Dallas/Fort Worth. In an emergency, she's our go-to-guy. Knows all the top docs in the area personally so we only see the best in town.
If you don't have the resources I do, you'll probably try the Internet. Here are some tips...been in IT for over 47 years...still working full time...
https://patient.info/forums/discuss/reliable-tkr-information-582123
Be careful what you read...look at the publication date...use reliable sources...just sayin'...
kathleen_65043 CHICO_MARX
Posted
Regards Kathleen x
missmagwumps CHICO_MARX
Posted
Mmm - my first day out without a walking stick didn't turn out so well the next few days...pain in muscles, leg, groin and shin splints but probably my own fault - 1) for overdoing it but certainly 2) not wearing shoes giving proper support....silly sandals instead...foolish person that I am but wont give up...don't want what almost seemed a permanent appendage to my right arm anymore....expect I need to stregthen the muscles more......poo....and I thought I as soooo clever getting this far in 9 months after 2 procedures!
CHICO_MARX missmagwumps
Posted
Sandals????? Spend the bucks on a good, supportive walking show...not the junk at Walmart. Also, get a fit but or other pedometer. Distance and time are irrelevant...it's all about the STEPS!!! Track them...chart your progress. Increase gradually or suffer "balloon knee"!!! Then back off, note you limit and increase gradually. Also have to do the muscle rebuild for your dead quads, glutes and core. This will take the stress off the knee and put it back on the surrounding musculature where it belongs. Then you can walk correctly, regain your balance and do stairs again. Time, work, patience...