18 year old with Lichen Sclerosus

Hi there, Glad you have found the forum.  The figure of 8 you describe is text book LS.  Sounds like you have finally got a good doc and the clob should stop it in its tracks.  We're all different but I do know that with young people treated LS can go into remission for many years and with good management you might be able to stop it in its tracks and reverse some of the damage.  There's a lot on this site to read and digest and please remember that even though it feels bad now, finding out is the way to get early treatment.  Lots of us on here have much more damage because we didn't get a diagnosis until late in life.  Every best wish.

Hello Livelovelaugh, I'm so sorry you have joined us, but this really is a great place to share ideas. We are all different so everyone will post how they take care of themselves, and you can try out things and work out your own care programme. It takes a while to find what works for you, but I forget, for days at a time now, that I have LS, and my care routines just fit into my daily life.

Clob is your friend, it will halt progress. It is strong but that's what's needed at the start. Don't be afraid of it. A very small number of women have had a reaction to it, but many people here swear by coconut oil and I have a reaction to that, it's a long process finding what suits you personally. Have you watched the video by Dr Goldstein? Here's a link from this site https://patient.info/forums/discuss/dr-goldstein-lecture-271556

One of the arguments against using Steroids is that it thins the skin, but LS is thought to thicken the skin, so the thinning element is part of the cure. There's so little research done, which is why this forum is so good. We share our own successes.

I have had good results with borax, as have many women here. Here is the link from the discussion https://patient.info/forums/discuss/an-experiment-with-borax-502021 I used Clob at the start and it stopped it in its tracks, though I rarely use Clob now, and my specialist doctor is happy with that. If you do decide to go free range with your treatment, do stay under a specialist for observation, even if you don't tell them what you're doing. Just as an insurance policy. Keep the area moisturised; find two or three different oils that you like and rotate them, your body gets used to it if you stick to one thing only. People here swear by coconut oil or emu oil, I like avocado oil with a few drops of chamomile essential oil in. Experiment, buy nice things, treat yourself, though stay away from fragrances and soap, they can be irritating and drying. You can get specialist washes for eczema, though check for fragrance. I am in the UK so can't suggest what I use as I don't think you can get it there. There will be a discussion thread on this.

Hugs to you, and things will get better as you find your own routines and things that work for you. All the best to you.

Bridge

I have had lichen sclerosis since I was in my teens. I’m resistant to all ointments. I was the 1st person to participate in Dr goldsteina prp clinical trial. I had short term relief with that. Recently o gave up gluten , dairy and went very very low carb. It’s been tremendous . I had lesions for 6 month so that healed in 4 weeks and my itching is minimal . I had to use ice packs nightly prior to this. I highly recommend a complete diet overhaul . 

M

Looks like LS to me. White areas involving vulva and rectum.