accepting fibromyalgia

i woke up this morning with this awful pain all over(realised i took a period) the pain is always worse... i was that fatigued that tryin to put one foot in front of the other was so so hard, i started crying i looked around saw all the things that needed done in my house and i thought..i cant cope anymore.. i took all the pain killers that im allowed and sat for a hour or so and tried to get my head and body sorted.

My teenage kids dont help me at home with chores but do where my personal being is.. I cant do it all myself..does anyone else feel like me?

my husband doesnt make me feel good i need him to say well dont do it but he doesnt so i then feel guilty. i also live my life feeling guilty.. my best friend keeps saying give them jobs to do but i cant help feeling cause they have a ill mother they have got enough to live with... can anyone help me on this matter as im at the stage im feeling so lost and alone suffering with this horrible disease and the fatigue is so bad.. love di x

You have got to stop beating yourself up about your illness. You didn't ask for it so be a little kinder to yourself :lol: I think maybe you should try and sit the whole family down and see if they can take some of the load of jobs from you. :cry: You do need their support as it will make you feel better about yourself and you won't keep feeling so guilty. :cry: Probably your children and husband don't truly understand how this is getting you down. Maybe when they realise how ill it is making you feel and guilty they will try and help you more :lol:

Please try and keep your chin up! Easy for me to say as my children have all left home. I have felt like you in the past and sometimes the children don't realise how bad you feel. Especially if you carry on the do all the housework. Its only when we take to our bed they start to think well maybe we are not feeling too well. :cry:

Try not to bottle your feelings up and come on here and have a good rant!

Love Tess x x

thank u thank u so so much for replying to my post.

i think i am going to have to sit them down and ask them to hear me out..

i think ur advice is prob the best way to start.. will let u know how i get on

sweet dreams and hope u have a nice sleep xxx

Linda have you not thought hun to show them either a booklet on how fibromyalgia effects you as you can get them from any health dept as I got mine form the physio dept some time ago, and if you have the fibro poem I found sometime ago maybe print it out and leave it on you fridge they may read it ? ......

[quote:c50f9ce40a]Imagine never feeling good, when you know of no reason not to feel good.

Imagine feeling pain in multiple areas of your body for no apparent reason.

Imagine feeling like your verbal and motor skills are impaired when they were fine a minute ago.

Imagine feeling like you have missed sleep for a week when you have just gotten out of bed.

Imagine something going wrong with your body everyday, when you have done nothing out of the ordinary.

Imagine having uncontrollable shakes and tremors and shocks of pain run through you, and disappear as quickly as they came; leaving you awaiting their return.

Imaging having to live a \"normal\" life in society, yet knowing your abnormalities will mess that up for you anytime of any day.

Imagine striving to be the best Mother and Wife you could be and being left to feel useless many times over awaiting to feel normal again.

You have now imagined what it is like to be me. I live with Fibromyalgia. [/quote:c50f9ce40a]

I think this hits the nail right on the head!!!!! I have been again in so much pain it is so bad in my left side in my back in the hip area and the pain is radiating to my knees so I am not having what you call fun at the moment!!!!!!! the weather has been crap so I guess why the pain is like tooth ache :cry:

Tess I do hope your Dad is ok xxxx and the stress from it isn't causing your pain to increase xxxxxx

Thank you so much Linda for your kind words, yeah I am 36 and I feel 86, I feel the doctor looks at me as though I am stupid or something, I am so sick of moaning!!!!!! sat here now with a hot water bottle as the pain is so bad ......... I do hope your hubby is coping ok too xxxxxxx

I am lucky Di I have a fifteen year old that worries about the state of the house but the 11 year old is the opposite so they scream at each other as melissa (15) like to have everything neat and Olivia likes to just throw her clothes on the floor and not think to put them in the wash basket...... Melissa then goes mad and then there is war!!!!!! and then my stress levels get up and then I am more aggravated....... so by this I try to keep on top of things myself....... but on a bad day (which it has been a lot lately) I just do what I feel I can, like just straighten up, having laminate flooring is a nightmare!!!!!

Anyway folks it is 2.55 am and I guess I better goto bed and try to sleep as Ethan will be up at 7.30 ish and so I bettter try eh xxxxx I do hope you are all sleeping now xxxx take care everyone and sweet dreams xxxx

I really hope things get better for you Di and you can get your family to listen to what you have to say :lol:

Ses are you up so late as you can't sleep with your pain :cry: You must be really shattered bless you :cry:

Thanks my dad is doing ok now. Going to see him early this afternoon as Stewart on nights then chilling out tonight :lol: Need to as not been sleeping to well and keep waking up with a headache :cry: Think it probably is to go with the added stress! But can't be helped. Checked to make sure my doctor in this week so think I will still make appointment to see him about iron levels. Got physio on Friday as well :lol:

Well I do hope you got some quality sleep!

Love Tess x x

Jeezo SES, I hope uve managed to get some sleep. Night owl... Its awful when u can`t sleep...I find that particularly hard to cope with.

Tess, so glad ur dad is feeling better. My ex had an ulcer which caused him to be hospitalised. Like ur dad, he had lost alotttt of blood. Required a transfusion of 5 pints. He got antibiotics also and was a different man afterwards (pity it didnt take change the a**hole in him.... :lol: oh god forgive me... :oops: ) Im sure ur dad will be as rite as rain once the hospital sorts him out.

Di, I really felt for u when I read ur post. I hope uve sat ur family down and gave it to them rite between the eyeballs. I know that sounds harsh...but sometimes, people just need to be told. Perhaps they haven`t quite realised just how poorly u feel sometimes. So, let them have it girl!

If u need back up...just shout...Im not far away from u.. :D

Take Care All

Lindy...x

Thats ok Dad is doing well and looking a lot better now went to see him this afternoon. Going to have camera test tomoro to see whats going on.

Had a chest xray today as well. He seems to be enjoying his hospital stay and enjoying the food lol :lol:

My pains in my knees and ankles not too bad at the moment. I have a horrible headache today that I think was made worse my the heat in the hospital and possibly the strong lights. :cry: Just hoping doesn't turn into a migraine. :cry:

Taken some more tabs for it so see what happens. Got a chill out evening tonight. Like you said about your husband. Stewart my husband is on a sleepover at work for the next four days :lol:

Well think i shall have to try and have early night. Not going to hospital tomorrow my eldest sister is going as she has been away over the weekend. I am having a day off now my sister is back. :lol:

Take care

Love Tess x x

So glad your Dad is doing ok. Hope your headache didn`t turn into a migraine, I can definitely sympathise with you over that, have had them since I was a teenager!!

Ray has his x-ray this afternoon, been compaining of backache this morning, that`s how all this started several months ago, with a kidney infection! What a lot we are, do you think many families suffer like we all seem to on here? Expect we`re just the unlucky ones. Lol

Fatigue is still dreadful, almost fell asleep eating breakfast this morning!! Very stiff but not too painful, just doing essential things this week with so much else going on. Used to worry if I left things till another day, that just made everything worse! Have learnt over the last months to leave the unimportant things and chill.

Di, I know you worry about not getting things done, and I really don`t know what happened or how I managed it, but think maybe its just come with time. Also I think its better since I gave up work, I don`t have to worry about being so organised, and can just do things as and when I can manage. Hope you`re feeling better today, Di

Well going to be brave and leave Ray for an hour this morning, while I have my usual tuesday morning coffee with my best mate. He`s usually at the club. Feel a bit guilty about leaving him, but I`m only down the road, and if I`m honest I need a break!!! We`re together 24/7 since I retired and I need a few minutes of me time! hopefully it will help me to keep going.Lol

Take care all, hope your pain isn`t too bad

Love Linda

No luckily didn't turn into migraine. Didn't clear though until just before bedtime. Once Stewart went off to work as he is on nights this week I just sat down and had a rest that seemed to help. :lol:

Hoping to have a chill out day today! Going to see my dad tomorrow. My sister will ring and let me know how he is today. He is having the camera test. I think there must be a lot of families like us with lots of health problems. Other people are very lucky if they haven't. :lol:

I am really tired today didn't sleep too well. Kept waking up overnight.

Did have awful aches and pains all over body! Think I woke up cold as well and that didn't help. I have noticed since been doing the exercises I haven't had any stiffness in the mornings. Don't no if that is a coincidence or not. :cry:

I hope you enjoy your cuppa with your friend. You shouldn't feel guilty. :lol: You need time for yourself with looking after your husband 24/7. At least you are not far away if he needs you. I hope Ray xray goes ok this afternoon.

Well take care and talk soon.

Love Tess x x

You are probably right in thinking the exercises help with the morning stiffness, they are also meant to help with fatigue. Glad it`s working for you! That was the plan with my exercise program at the local gym, only problem for me is, the girl who did my assessment and exercise plan said I wasn`t to exercise when I was fatigued!! Lol How is that for a vicious circle. I have more days than not when I am fatigued, so I`m not quite sure how to get around that! she also said that the pain might get worse to start with but once in a regular routine it should help.

Ray is worn out now after his x-ray this afternoon, I think parking at Addenbrookes must be more stressful than what the reason you are going for is. It`s an absolute nightmare. After circling all the disabled parks around the site four times, I gave up, dropped him off and went to park, trouble is I struggled then to walk from the main car park!!

Anyway, results will be faxed to health centre and will be there by tomorrow night, so if there is anything needing treatment, should know on Thurs.

How are you Ses? Hope pain and sleeplessness is not too bad

Love Linda

well i finally started my xmas shopping today my 16 year old son came with me but now i have been left with a stinking headache. see doesnt matter how much u try and do u still feel ill at some part of the day.

I have a couple of hours myself this evening so im just going to chill out and let this headache settle by watching some tv.

i wish i could sleep at night like a lot of u it really gets me down, i have my appeal for dla on the 19th next week so im really worried about that, so might be a bit touchy on here next week lol

hope u all are coping ok and thanks for talking on ur posts and trying to help me.. xx hugs xx

No what you mean about the headaches. I have had one for the last three days keep coming back. Been better this afternoon though. :cry: Seem to keep waking up with headache most mornings lately. Not been sleeping too well overnight. Don't no if subconciously I am worrying about my dad. He is a lot better and had his test. Could be coming home tomorrow. :lol:

I need to do some more Christmas Shopping only got two so far. You deserve a chill out evening. I am on my own tonight again as Stewart on nights. Only one more night to go. :lol:

I hope your appeal goes well on the 19th and don't worry if you get a bit wound up you can take your frustration out on here and have a good rant lol.

Hope everyone else is keeping ok

Love Tess x x

I have been in this pain for days now and it is worse than ever, I am so sick of moaning about one thing and another and to top it all my water sample came back ok? so I am guessing the pain is from my hip/osteo, it is near my waste line near the side somehow, anyway I do hope you all are having a better time than me????

Tess, I hope you are resting, and I hope your dad is picking up too :cheerup:

Di, I do hope you are ok for your appeal too xxx a friend in my Support Group won her High rate Mobility and she sufferers with just FM so if she can do it so can you hun xxxxxx :cheerup:

Linda I hope you are taking good care of yourself too as I bet there is not alot of rest for you hun xxx you deserve a good pampering like all of us xxxx :cheerup:

Anyway folks I am not with it today as I have a fuzzy head due to the pain I think so I will say to you all take care and hoping we all sleep well tonight xxxx gentle hugs to us all xxxxx

Thank you for your kind words Ses, I`m begining to feel the strain this morning! Totally exhausted, and stiff all over. Ses, my first attack of intense pain started in just the same place you are describing, that was about a month before my diagnosis. Had been feeling lots of other symptoms for months, aching, stiffness etc.

Well GP is phoning us this morning with Ray`s x-ray results! I think he must at least have a chest infection as I`m sitting here with him asleep on the settee and can hear his chest wheezing! Well watch this space.

I spoke to a lady I had known for years, but had not seen for a long time, and she has fibro, also gets high rate mobility and care!!! Her grandson claims carers allowance for her!! So there must be a knack in filling in the forms somewhere I think, because she gets around the supermarket better than I do most of the time, and walks without a stick. Oh well ther`s no justice in this benefit at all.

Well glad you Dad is doing ok Tess, you could be right about worrying about him, I think we all do that without realising it sometimes.

Di, glad you had a good day, I like you, think it must just be me and if I made an effort I could do more. It always ends up with me feeling ten times worse and do nothing for ages to get over it.

Take care all

Love Linda

Hope your pains in your hips improove for you Ses. Dad is doing well thank you everyone he could be out of hospital today. Got to ring after two to find out. Claire my daughter will take me to pick him up and take him home. :lol:

Linda I hope Ray gets his xray results today and it is good news! He must be feeling poorly if he has chest infection. How are you coping with all your pain as well :cry:

I have been to see gp today and was really good. Told him how I had been feeling since having my three heavy periods and is going to do a full blood count and glucose blood test. Tried to make an appointment for this for tomorrow as got physio at the doctors practice at 10.30. Told me would have to wait two weeks to have a blood test. Or I could go to the Walk-in-Centre in Peterborough. :cry:

Luckily had a blood test pre booked for 24th November at 10 o clock so asked if the other bloods tests could be added to that. Might as well take my blood all in one go :cry: Only got to wait ten days. :cry: Then when results are back for thyroid tests a week later need to go back and see gp.

Didn't fancy a 7 mile trip into Peterborough for a blood test when only takes about 5 mins. :cry: I can wait until then if I have to. Dr also told me I could up the ampytripline to 20mg a night if I wanted to if my sleep was getting worse. I can then go back down to ten on normal times.

Well I hope you all have a quite not so painful day!

Love Tess x x