Advice please

Posted , 7 users are following.

How do I get my doctor to consider a diagnosis of ME :?:

We actually have some transport again now so I have an appointment to see my GP next week to plead my case but I am worrying about how to do it.

I have constantly told him about my loooong list of aches, pains, chills, brain fog and frequent bouts of exhaustion and so far he has stuck with prescribing antidepressants and yet more blood tests for thyroid, anaemia etc, etc :vampire:

Does anyone have any advice please on the best way to plead my case?

Do I ask him outright for a referral ....... I am worried he might think I am telling him how to do his job ....... or do I bombard him with yet another long list of ailments and hope he takes the hint :roll: :roll: :roll:

It's not that I actually WANT to have [b:98b213e9bf]ME[/b:98b213e9bf] but I am desperate to know why I feel the way I do before I lose what little sanity I have left :?

Any suggestions would be most gratefully received :D

Kind regards and hope you all have a good weekend

Kristal

xx

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  • Posted

    I am so lucky with my Dr John. He's only about as old as my son (so I won't see him for girly things :oops: ) but he's great with other stuff. He always asks me what i think.

    Thanks Dr John, you are a star :doctor:

  • Posted

    Kristal, I am absolutely fuming :steam: so I can't begin to feel how you do :evil:

    I find it hard to believe that having listened to you your GP is still maintaining you are depressed :shock: How on earth does depression have anything to do with severe dental pain for goodness sake, for a start :evil:

    Right then gang .... READY FOR ACTION :grrr:

    Instead of a coach trip to Dales's shopmobility, we're all going to join force and go down to the West Country and sort out that so called GP :doctor:

    We'll teach him a thing or two!! We will beat him to a pulp with our ME bibles ...... that'll learn him :evil:

    NO-ONE MESSES WITH US :evil: :evil: :evil: :evil: :evil: :evil:

    I feel so upset for you Kristal .. have only just got in from a meeting and I'm still sitting here with my coat on :steam:

    We will find a way of helping you somehow :evil:

    Katie xx :cuddle:

  • Posted

    Kristal, that is just not good enough. Just :bleep: ing tell him you are not depressed and can you have a second opinion :roll:

    That makes me so angry :twisted:

  • Posted

    Kristal, do you know of any local ME support group .... there must be one in your area ..... I am sure they would be able to advise you.

    You absolutely must find a GP who is able to distinguish ME from a state of chronic depression ..... your's is obviously incapable of doing so by the sound of things :evil:

    We won't give up on this one until you get the right diagnosis :ok:

    Katie xx

  • Posted

    Kirstal contact the m.e association on their web site there is information of all support groups. I go to mine and find it very useful.
  • Posted

    i'm with katie - i'll pick everyone up in the new chariot and we'll go and give him what for :bus: :evil:

    seriously though kristal, i think you need to change doctor which you are more than entitled to do.

    i am really lucky with my GP, especially after hearing that not all doctors are as sympathetic to CFS, and considering i have a history of mild depression. the first doctor i saw definitely thought it was just depressed and told me to eat more tomatos :tomato:

    Trees x

  • Posted

    Morning

    Sorry I didn't reply to all your lovely messages yesterday but I was depressed :cry: :lol: .... I suppose the doctor was right really because if I wasn't depressed when I went in to see him I certainly was by the time I came out :twisted: :twisted:

    Thank you all for the fantastic messages of support, I have had a good old cry plus a good giggle at the thought of you wonderful bunch of people beating up my GP with your handbags :lol: :lol: Do you think we could borrow a few mobility scooters to round him up with first because he is quite young so I suspect he can be a bit nippy :lol:

    Not that I want you to get the impression that I have been wasting much time or energy plotting revenge on him of course :x

    I don't think my hubby could understand why I was so nervous about the meeting but after witnessing it first hand even he is flabbergated at the absolute denial of ME or any associated illnesses and he even spent time last night plotting plans of contacting other professionals for help .... I suppose he (hubby) can't be all bad then.

    Anyway I feel pretty pooped today, plus I have a dentist appointment later sad so I don't know how much I will get done but I have the idea that I could contact the local ME support group and chat to them about their GP's to try and find a more sympathtic one plus of course following up on your other suggestions.

    Thanks again everyone, you really are a unique bunch of people and you somehow always manage to make me smile :D :D :D

    This is what you all are :angel:

    I hope today brings good things for you all

    Kristal

    xx

  • Posted

    Hi Kristal

    So pleased that we were able to make you smile a little after such a negative GP visit. I was really surprised to hear he is a youngster ..... I expected some old fuddy duddy well overdue for retirement and totally set in this ways :shock: I just find it hard to believe that any youngish GP would be in complete denial of ME.

    But don't you worry ..... we can still see him off good and proper! :evil:

    Thank goodness your husband did go with you .... he can now see first hand what you have been up against.

    Good luck with his search for help.

    Take care

    Katie xx

  • Posted

    Kristal, Sorry your GP is a :bleep: He seems to think you cant accept being depressed somehow :? He needs educating :shock:

    I can provide the scooters, just tell me when yoy want to go and sort him out :bus:

    At least your spirit is intact and you have got us :P (Is that a good thing :nahnah: though) !

    It makes me realise how lucky I am with my Dr. Jenny :doctor: :cupid: She is a star and never makes me feel like I am wasting her time. She says she admires me for being so strong, even though I always think I am a wreck :oops: Thanx Jenny :ok:

    Dale xxx

  • Posted

    Dr Jenny sounds like my Dr John. He says I can always go for a chat and to book a double appointment so I don't have to rush. I have one next Tuesday.

    Thanks Dr John x :cheerup:

  • Posted

    That goodness some of us as understanding doctors. My doctor has stood up for me and being fightening my corner to try and help sort things out for me. He id currently going to refer me to a neurologist out of my area because we feel the one in my area was no help. The pain management clinic would help either. It's onlt thanks to be gp I think I am still sane, well at least I think I am.
  • Posted

    Well, my doctor is a complete non-starter ....... but, with the help of my friends on this forum with their wit and expertise ...... who needs doctors :nahnah:
  • Posted

    Doctors .... pah :bigeyes:

    Some of you seem to have really struck lucky with your doctors ...... this is me green with envy :mrgreen:

    I agree with you Katie, I would have thought that my [i:79fc9bc4b5]young[/i:79fc9bc4b5] doctor would have more forward thinking ideas but he seems adamant in his views, although he is part of quite a large practice so perhaps he is towing the line with the group decisions on expenditure & policies etc :?:

    Anyway I have actually managed to do something positive today (brain firing a bit better), I have contacted a local support group to ask if they can recommend a doctor in the area who is supportive of ME so I have my fingers crossed and wait to hear back from them.

    I hope the sun is shining wherever you are today

    Kristal

    xx

  • Posted

    oh that's really great kristal - i think it's definitely the way forward. i have everything crossed for you!

    makes me want to turn up to see dr peck with a large bunch of flowers :cheerup: not only did she diagnose me within 6 months, but i think she gave me a double appointment last time and really chatted to me about how i was feeling, and is chasing up my referral to the specialist.

    but it does make me cross that this should be a 'lucky' experience :evil: i really think that today there is absolutely no excuse for a doctor to be ignorant about ME/CFS, or unsympathetic. we should all have access to doctors who are at least prepared to entertain the possibility.

    im also feeling a bit cross because there still seems to be this belief that it's a 'new' disease. :roll: just doing even the slightest bit of research shows that people have been suffering from this type of thing for a long, long time (please read, ricky gervais!). it's also not just a 'western' thing, and just because something is not named elsewhere does not mean it doesn't exist.

    it's like so many other 'new' diseases. people often think depression or eating disorders are modern ailments, but women have always pined or wasted away for 'love' or sadness, and people have always suffered from melancholia or low mood. grrr. :grrr:

    sorry to get on my high horse, i just hate ignorant people, and it's particularly outrageous when it's your doctor, who you have to be able to trust.

    going to go and calm down now.

    Trees x

  • Posted

    Trees, Last Xmas (thats Wham!) I actually bought my GP a pressie cos she has been so good. I got her a Leicester City reindeer which is on her desk as we speak :lol:

    Dale xxx

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