Always short of breath, yet not qualified for Oxygen?
Posted , 12 users are following.
Hello gang,
I have COPD (30% lung capacity) and have been reading/posting on this site for some time now. Each day is a new challenge. What used to be simple, is now a seriously planned military operation. Shopping, bathing, household chores, etc. get broken down into small movements. Sound familiar?
Even short 3 to 5 step activities have me leaning on a counter or wall as I catch my breath. My Dr. tells me that my O2 level is too high for him to recommend Oxygen therapy. My question is if my O2 level is in the 90s (with activity), then why am I still out of breath?
I'm sure that it's not an airway restriction issue or a mucus issue, as I have a handle on those symptoms. I just can't grasp how O2 would not add to my quality of life. I know that exhaling CO2 is a priority and I do the in 2 and out 3 to 4 breathing method. It does help relieve the breathlessness quicker, but I can't help but feel that O2 would help me when I am active.
I just can't resolve what I'm told, with how I feel. I've yet to hear/read an explanation for COPD's shortness of breath that satisfies me. Treatments do deal with airway restriction and mucus issues, but they do not treat shortness of breath.
I understand that O2 therapy enters a patient into new medical issue areas, but used carefully would it not serve to do more good for more desperate people. I welcome a discussion on this issue and hopefully I'll finally get a better explanation that makes sense for me.
All my best
3 likes, 48 replies
amkoffee larry49033
Posted
Since you live in the US you might try the National Jewish hospital in Colorado. I contacted them and talk to them and I chose not to utilize their services simply because I'm on Medicare and Medicare would not pay for me to have an evaluation done and it would have cost me several hundred dollars. I don't know what type of insurance you have but you might give them a call at least.
larry49033
Posted
I'm fast approaching my 3rd anniversary for quitting smoking. The 45 years that I did smoke have placed me in my COPD condition. I fully understand how hard quitting can be and just how Important it is to stop as soon as one can. So good luck to those of you that are trying to quit.
I have had the O2 therapy discussion with my Dr. more than once and it just makes him mad each time I bring it up with him. The explanation is all about how O2 would not serve to help me. That basically I'll just have to do the best that I can with my Ventallian and Mucinex. In addition, I have a nebulizer that I also use to deal with the Bronchitis. There does not seem to be much out there for the emphysema though.
I would go to physical therapy if I had reliable transportation that I could depend on. Also, I'm not quite sure that Medicaid would pay 100% of such a bill.
I fully understand about exhaling CO2 with breathing rhythm exercises. I perform it many times each day. So when I read where people are helped with O2 and see the TV commercials that tell me that O2 therapy is safe and effective. Yes, I do question my Dr., and the pharmaceutical companies, and the whole same story that I keep hearing. There should be a more reliable test for O2 saturation short of a full cardiopulmonary exam.
amkoffee larry49033
Posted
I have to brag little bit. When I had just quit my husband smoked in the house but he did not smoke in front of me. But as time past I would actually ask him to smoke a cigarette so I could at least smell it. But now I've got lung issues (some caused by my smoking, no doubt) so he can't smoke in the house anymore. Well he still smoked in his man cave.
martin63346 larry49033
Posted
Would someone direct me to any authoritative research that says that supplementary oxygen is harmful
martin63346 larry49033
Posted
My question posted earlier today seems to have gone astray. I am seeking somebody to point me in the direction of authoritative research which suggests or proves that supplementary oxygen is harmful or dangerous to ones health. I tried to find but can find no reference.
larry49033 martin63346
Posted
Authoritative , I've read a lot that was not. I do know that athletes recovering from serious injuries do use oxygen as a therapy to help them heal faster. Also there was a time when Astronauts flew into space in an oxygen rich environment. That changed with the Apollo 1 fire that saw 3 good men die horrible deaths. The O2 was safe for the men to breath, but was a fire risk and was changed to a normal air mixture.
I'm not a Diver, but I do know that the US Navy and Coast Guard and other highly respected organizations utilize O2 in connection with their very healthy personal. Airlines carry O2 for emergency breathing for their passengers and crews.
My point is that very healthy people utilize O2 all of the time, but suggest that someone suffering with COPD be supplied with O2 and instantly there are hundreds of medical reasons why you should not have it. Carefully and prudently used I believe that O2 therapy may help many to regain some of the quality of their lives back.
I too would like to see an official authoritative presentation covering the question of how O2 is harmful. Perhaps Phillips or Intogen, makers of O2 generating products, could offer some answers. Most Dr.s, health insurance providers, and such would be to fearful of going to court and would not want to break from their place of safety on this subject.
Finally, I saw something recently that might be of aid to myself and other COPD patients. I read where Vitamin D supplements have helped relieve some inflammation in the lungs and airways. I've yet to buy any for myself as yet, but I plan to and will report any benefits that might occur. Additionally, a healthy diet is said to be a helpful in dealing with COPD. I do my best to eat healthy, but I know that I can still do better.
All my best
aitarg35939 larry49033
Posted
Gosh, Martin and Larry, one might think that y'all disbelieve the tons of authoritative texts, based upon yet more tons of rigorous, scientific research, which docs/surgeons/ specialists/consultants must learn in their training. Here in the States, all those folks must complete a certain number of Continuing Education credits in their field every 1 - 2 years. Alabama may hold the low spot at a mere 20 credits required every year, versus California, which requires 40 credits. Most good licensed folks also read a number of med journals every month, and thus they keep up to date on new research.
On the other hand we have pro athletes who are paid outrageous sums to abuse their bodies. They suck oxygen so they can be forced to return to play more quickly, or because they play in an oxygen-poor locale. That may only be "oxygen-poor" by comparison to where they live/train, so a team from Houston, 105' above sea level, may need a lot of oxygen in a game set in Denver, elevation 1 mile. But the question is why they use it. Everything i've read says it's helpful with muscle recovery but that the lung benefit disappears when oxygen is stopped, at least in healthy athletes. I no longer watch the Olympics as religiously as i did when younger but i see enough to know that oxygen tanks/masks are not in visible use everywhere on the sidelines. Gasping figure skaters are left to recover their breath on their own as cameras stare them down. Not once have i seen O2 masks on player faces at pro hockey games i attend.
Many athletes believe that training at higher altitudes gives them an edge. Many American athletes aren't well read, to put it kindly, and they have no clue about cause and effect but they do believe in superstition. They assume that O2 from a can helps them more than ambient air because one person somewhere online said that it did. If we believe in it, a sugar pill may help what ails us.
Divers need oxygen for several reasons. First, not many people can hold their breath for a minute; nobody can hold it for 5 minutes. Michael Phelps can't even manage 3! Can't get much done underwater in 30-45 second segments. One also can't go very deep if you can only use 20 seconds on the down trip and need equal time for surfacing. So much energy gets expended in the constant down/ups that even to work for an hour at a 7' depth, SCUBA tanks make sense. To work deeper without them is nigh impossible. I'm from the Gulf coast and my family includes both recreational divers, oceanographic divers, and pro salvage divers. They laugh at the idea that the oxygen tanks are just there for some sort of slightly improved breathing. "Haul all that g*d d**n heavy effing equipment around just for a little boost? Having to refill it all the time, watch your gauges, make sure you're not so deep as to suffer oxygen toxicity? Are you NUTS??? Without it, we can't go down 30' or more, period."
As to NASA and oxygen, it has all been trial and error, with a lot of scientifically-based guessing to start with and a ton of engineering genius. Oxygen was used in the test planes flown superbly by almost all the early astronauts. It was there because one passes out from oxygen deprivation at a certain altitude and/or from pulling too many Gs. It was assumed that oxygen would be as safe in space as in those military fighter & test jets. Bad assumption but a risk all astronauts assumed up to that point when 3 died. Right now, the US military finally admit that there has been a fault in the oxygen supply systems for at least 10 years in all their trainer planes. This fault has caused many trainees to pass out while wearing oxygen masks with O2 ostensibly flowing. It took Congressional hearings to get the military to commission a study. (Yes, Virginia, i grew up next to a Naval Air Base on the Gulf coast, my granddad owned the first airplane factory in Nebraska, my dad was flying at 12 before there were licenses and was a commercial pilot for many years. Two family members became Navy contract trainers on simulated flight apparatus after doing their 20 yr stints. (Yes, HUGE family.)
All of this is to say that oxygen isn't used in healthy people the way it is used in less healthy folk. Because of my bronchiectasis, my pulmonologist now won't sign off on non-emergent surgeries requiring more than 60 minutes of oxygen. Period. He says spinal-block surgeries only unless it's life or death because my lungs can't handle the oxygen.
I guess that you don't have BX, but it would be unwise to assume that the absence of dead areas in your lungs make you a 100% better candidate for O2 than i am. I trust my pulmo's judgment in this matter and am sorry that you have zero confidence in the highly educated opinions of your medicos.
larry49033 aitarg35939
Posted
Posting an opinion is why this forum exist. Assuming that you are an authority concerning my daily medical challenges or that of others is unwarranted. Commenting on your own condition, or posting your experience is a part of this threads purpose. Sitting in judgement of me or others is neither your place or assumed authority.
Exercising is important, but placing trying to dictate to others that they must do as much as you is just wrong. Many of us are alone and we get a load of activity each and every day. Some of us don't have our own transportation and just shopping and Dr. visits require making transportation arrangements. Also, I and others I'm sure stretch and lift and stair climb on a daily basis.
Breathing techniques to exhale CO2 can be learned from your Dr./Therapist as I did. I preform these breathing techniques daily and without having to travel to therapy class. That said, I'd enjoy attending COPD Breathing/Exercise classes, but it would just be one more thing to pile on an already full schedule.
Finally, Dr.s are real people too, and they will/do act in their best interest first. Few, if any are willing to step from behind the safety of the industry established and medically approved COPD protocols. Afraid of Lawyers and review boards, some document verbatim the consultations with their patients. Their livelihoods depend on playing it safe and not putting their wealth generating carriers in danger. They are looking out for their own best interest first.
martin63346 larry49033
Posted
All I know is that I am classified as very severe EMPHYSEMA and 22% capacity. I have coils in my right lung.
i feel much improves with supplementary oxygen especially when exercising on my exercise bike. I also use it at night which has enabled me to get a good night's sleep which was previously not the case. This talk of oxygen doing my harm is unsettling but i'm not about to change as quality of life is more important to me.
larry49033 martin63346
Posted
Martin,
I've 30% capacity and each step starts me to breathing heavy, so exercise would be a torture and not the therapy it should be. O2 might just help with my quality of life as well.
Coils, not familiar with that. I will have to look that up.
All the best to you Martin and lets both feel better moving forward.
Reglois larry49033
Posted
I have Pulmonary Fibrosis, Bronchectesis, Emphysema, and just to be really greedy Systemic Schleroderma (internal), my oxygen sats are in the low to mid 90s most of the time but descend to the mid to low 70s on physical exercise, so I am on O2 and I can assure you that you feel no better with O2 when exercising and I try very hard not to gasp for breathe (must breathe through my nose) as that would defeat the object of having the my portable oxygen concentrator on so as to protect my organs and that is all it does. I have to really force myself to stay active, I take my dogs walking most days for up to an hour even though I have to drive to find somewhere flat as I live in mini mountains. I mow the grass, with a mask on, I get the logs in and have found ways to even stack them when delivered as I now cannot bend. I live alone as my husband died 7 years ago of lung cancer, we both worked in the same place !!!
larry49033 Reglois
Posted
Thank you for sharing. We are all different and yet we all share the need to breathe O2. Some of us are lucky to be well supported by family and/or friends. Some of us pretty much go it alone for one reason or another. All of us battle our disabilities as best we can. I welcome you to our group and as for me, I'll try to be as supportive for you as any other member.
We will try to be of help if we can, and a good listener at all times.
All the Best.
aitarg35939 Reglois
Posted
Bronchiectasis, Chronic Bronchitis and Sjogren's. i lost my significant other last year after 22 yrs together. He was quite unwell the last 9 years, COPD & heart, and felt much as you do about his oxygen.
Like you, if I don't do it, it won't get done.