Bisoprlol withdraw,any help please

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Im A 54 YEAR OLD BUILDER HAD AN MI ON JAN 15TH 2018,SENT FOR ANGIOGRAM AT JOHN RADCLIFF HOSPITAL IN OXFORD,ALL CORANY ARTERYS WERE ALL GOOD ,AS IVE NEVER SMOKED AND BEEN QUITE ACTIVE.

SO I THOUGHT I WOULD GO BACK TO WORK I A COUPLE OF WEEKS,THEN THEY PUT ME ON THE DREADED MEDS,AFTER JUST 2 DAYS,I COULDNT EVEN WALK MY DOG WITHOUT FEELING DIZZY,AND MY LEGS FELT LIKE LEAD WEIGHTS,I THIUGHT WOW ,MY HEART MUST HAVE TAKEN A BEATING BY THE MI,EVEN THOUGH I FELT GREAT LEAVING THE HOSPITAL.

AT MY 1 MONTH REVIEW AFTER ECHO,MY COSULTANT AGREED THAT ALL WAS WELL AND I COULD COME OFF RAMPIRIL AND THE STATIN OF 80MG.

THIS HELPED A LITTLE ,BUT STARTED WHAT I HAD FELT SINCE THE DEPARTURE FROM HOSPITAL,THAT THE DRUGS,AND I MY CASRE BISOPROLOL WAS MAKING THIS NORMALLY ACTIVE BUILDER WHO WENT FROM 18 HOLES ON THE GOLF COURSE TO A NON BREATHING ZOMBIE IN JUST 10 WEEKS,SO THIS IS DAY 4 WITHOUT BISOPROZOL AND IM SHAKY AND ANXIOUS AND MY HEART IS A BIT FLUTTERY,MY WIFE GAVE ME ONE OF MY VALIUMS THIS MORNING AND I MANAGED TO SETTLE AND GO OFF TO WORK,IM DETERMINED TO NOT GO BACK ON THIS ZOMBIE POISION,PLEASE EXCUSE ME IF THIS DRUG WORKS FOR YOU,I AM GETTING MY ENERGY BACK BUT THE WITHDRAWL IS TOUGHER THEN EVEN THIS HARDENED BUILDER EVER THOUGHT.

I WOULD BE GRATFUL OF ANY ADVICE GOING FORWARD,I REALIZE WHAT IM DOING IS NOT HOW NORMAL PEOPLE ON MEDS ACT,BUT I WOULD RATHER DO THIS THEN BE A BREATHLESS ZOMBIE FOR THE REST OF MY LIFE.

SORRY IF IVE DRAINED ANYONE...

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  • Posted

    Not sure how long you were on biso.  i was on it for about 3 months, I think I was taking 2,5 mg.

    I had to stop it in order to have an ablation done. I asked the doctor if it was okay to just stop it,   He said no problem

    Well it was a BIG PROBLEM.  I went through withdrawals.  Legs shaking and jittery, and many more symptoms.  The anxiety was through the roof.   Not knowing what it was from, I was put on 2 meds for anxiety,   Trazodone and Clonezepam

    Well that put me in a terrible situation then trying to withdrawal from those.  It took 10 months to wean off, and it has been 4 months since I finished them but still going through withdrawals.    Worst time I have ever gone through.

    If I had known about the biso withdrawals, I would never have gone on those other nasty drugs.

    No one tells you any of this........

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  • Posted

    Just click on my name to see the posts I have commented on regarding the horror story that is Bisorolol. Most people recover after coming off, but if you are one of the rare unlucky ones who still feel like a drunk breathless zombie after being off them for a year now, message me.
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    • Posted

      Hello Peter, I was on bisoprolol 1.25 for 9 months, I felt terrible on them,affected my breathing, lightheaded, dizzy, I had another svt attack one month later and went back on them, saw the electrophysiologist 3 weeks ago and He recommended an ablation and stopped the Bisoprolol, 3 weeks later I feel terrible, I wondered if I,m having the same reaction as yourself.  I can honestly say I feel like a zombie, it’s affecting my life, most of the time my mind is whirling thinking why do I feel like this.
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    • Posted

      Hi Ann been off it for 5 days now but still have my heart pounding and feeling like am so sick. I feel cold chills. Been doing ECGs and all ok.  In the morning anxiety is up the roof. Muscle pain and legs.
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    • Posted

      There are some on this forum who talk about it being up to 9 months before they are fully back to normal. Hopefully you will be one of them, though a shorter space of time would be nice.

      If you do find you are at the stage I am, one year later and things connected to my Autonomic Nervous System are still getting worst, then please do keep in contact, well you dont have to wait a year to keep me informed. If you are in the UK, you are going to need all the help you can get just to show your doctors that such a reaction in possible. They like to say you have anxiety and to go home and stop bothering them.

      Took me nearly a year of showing my GPs that I now had problems with my ANS, they took no notice, in the end I got a cardiologist to listen to reason, he said I might be right and apologised for using the anxiety card, had a referral to an Autonomic Neurologist, and guess what?, took them five minutes to confirm what I had been saying all along. 

      Everyday now seems a new symptom to add to the many. I normally feel the cold, but I am finding it odd that other people are complaining that it feels so cold, whereas now I have no heating on, and am sweating with the heat at night, outside with a tee shirt during the day, and thinking its really mild.

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    • Posted

      i went to my doctor Wednesday because I was getting long pauses in my heartbeat, nearly passing out with it, I also have a slight leak in my mitral valve, I came away very angry because I get blank stares from the doctor and I also find it very hard to understand what he is saying, he is Sri Lankan.  The electrophysiologist said I should have the valve checked but he took no notice.  His answer was to get the ablation done but I read so many comments about it being unsuccessful it made me hesitate, I do not know what to do for the best, will it make me feel better than I do now or will it make me worse.  I,m usually quite active but this problem is affecting my life.  Thanks for your reply I mainly shadow on here most days. I live in Romford essex
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    • Posted

      Difficult to know whether the problems cause anxiety or anxiety causes the problems, feeling absolutely terrible just makes you feel fed up with not being able to live a normal life.
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    • Posted

      Hello Ann

      An ablation is always worth a try, even if unsuccessful - it can usually buy you months of sinus rhythm happiness, even if it fails later.  Some find it is a cure for good, others are unlucky enough to find it only lasts a few weeks.  I opted to have an AV node ablation eventually, against the advices from some as it is an irreversible procedure, but have since had three years of heart peace and no Bisoprolol as I opted not to go back on it after the procedure..  The ablation procedure itself is nothing to be scared of and you can even watch the screen as it is carried out if you like.

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    • Posted

      No, I can,t say I get chest pain, I have when I,ve had a short svt attack.  Just feel so tired and weak, I,m trying to drink a 

      lot of water to flush the Bisoprolol out of my system, I,m sure it lingers in the blood stream for a long time and the funny heads must be damage from it.

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    • Posted

      i am feeling a bit depressed this morning,I say to myself be strong several times a day, ectopics firing away this morning. I pray you will recover soon, I,m 71 soon and don,t look it, I don,t know your age but life goes so quick so we must try to make the most of it.
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    • Posted

      Am feeling better today but still get eptopics beats there are really irritating. Am 36. Am going to focus on the positive and pray. Am great full for life. 
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    • Posted

      I feel a big thud then my heart races at 191, 197,  after half an hour I have to go to a and e to have it put back, the dreaded adenisone pauses your heart momentarily , I was given it 3 times, they can,t do it more than that, but it didn,t go back into normal rhythm, they then put sotalol in my drip and it went back slowly, it was 4 hours before I went home.  The small attacks happen when it feels as if my heart has stopped, they last for a couple of minutes.  You can feel your heart racing when it happens, chest discomfort , can,t breathe.  I,ve had ectopics for 43 years, I was very alarmed when I first experienced them at age 28 but over the years I have had to accept them or go under.

       

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