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Bisoprolol buddies

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Hello fellow Bisoprolol buddies - I cannot actually believe that I didn't think of doing a search on Bisoprolol earlier as it is so comforting to have discovered this web page. I have been taking Bisoprolol Fumarate 5mg daily for the past 3 years following a frightening episode in town which resulted in my spending a week in the Cardiac ward of our local hospital. I had SVT while in hospital and the 'specialists' couldn't actually put a cause to my soaring blood pressure and rapid heartbeat. So, I've been told to stay on these tablets for life... I'm 48 now, was 45 then.

The comforting thing about reading the majority of these posts is that so many people are feeling ridiculous levels of tiredness; I don't recognise myself from 3 years ago. This isn't whingeing, just stating a fact. I have piled on the pounds - particularly blubby around my midriff - yet I eat less than ever. I am sometimes so overcome by exhaustion that I have to stop even the most trivial of chores. I have lost my 'get up and go', yet used to be so active with my three kids. I used to be so house proud, yet now can'tbe bothered other than to 'keep on top' of the housework. I used to love socialising, again, can't be bothered most of the time and when I do, I am glad when it is over. I love the peace and quiet of my own company so much more now and feel exhausted by company. Yet I AM ONLY 48 YEARS OLD!!!

I realise I am lucky to be alive, to be uncursed by serious ills, but still, it is healthy to have a little moan now and then, and gratifying to feel online empathy with other 'sufferers'. I find that my partner and children don't really understand - can't blame them, I don't truly either.

Take care one and all.

28 likes, 428 replies

428 Replies

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  • Chicagousa
    Chicagousa Guest

    Posted

    Well, I was diagnosed with Afib 2 years ago - prescribed Xarelto, Bisoprolol and MicardisPlus. Thankfully the palpitations have stopped (for now), but every day is ALWAYS a chore -  shortness of breath, constant fatigue (and boy, do I mean constant), zero energy and the occasional woozies! Can't even get in a half-round of golf or do any significant cycling, and I won't risk driving because of the dizzies. Until reading your post(s), I thought it was just myself being a wuss! Better than the alternative though (a box in a 6 ft. hole in the ground). So: as Leonard says "Live long and prosper".

    • elizabeth_12
      elizabeth_12 Chicagousa

      Posted

      I don't want to snuff it either...but who knows the long term effect of the meds we have been prescribed. Believe me I've had my fill of side effects.seeing my gps and a cardio doc. I've not had any explanation or answers to my concerns. I've been a good girl,taken the meds as given. With time,I've got fed up of the symptoms you've described and started reading up a fib. I thought it was the a fib causing the tiredness,inability to think,walk,stand etc. So with GP permission the atenolol was reduced...I then have weaned myself off it. Withdrawal was no picnic....I still take rampril and xerelto. Do I feel better.....you bet I do. No doc will ever convince me that the bisoprolol and latterly the atenolol has not reduced the quality of my life for the past 6 years. 

        I'm no doc,no knowledge other than how I've suffered and how I feel now. I check my BP and pulse regularly. I still have to suffer the a fib, but I'm in a better place right now and it's not a 6 ft deep hole. 

        Hope you will read the article I mentioned in a previous post. It may help.

    • josephine32
      josephine32 elizabeth_12

      Posted

      Hear, hear Elizabeth.  I have done the same, simply refusing to suffer the side effects of Ramipril, Bisoprolol, Atenolol and the like.  I too still have the AF from time to time, but in between am my old self again.  I do check my BP and take my med for that and of course the blood thinner, Pradaxa in my case.  I have some Flecainide if I need it and now bomb along just fine a lot of the time.  Still struggling to take off the weight I put on on Bisoprolol though......
  • mutznutz
    mutznutz Guest

    Posted

    I have only just found this discussion and it was as a result of my search for a reason for why I feel so tired and wasted during the day after my prosthetic aoerta valve operation which was nearly two months ago, and, more specifically for a reason why I sometimes feel like I am suffocating if I have a couple of stiff drinks of an evening. I think I have found my suspect for my almost complete loss of smell and taste coupled with a runny nose and unstoppable sneezing at times, since long before the operation, symptoms that have worsened since it. I dont even think I need to be taking these beta blockers post-operatively, I was placed on them nearly a year ago due to the issues around requiring a new aorta valve. I have no breathing issues or shortness of breath when I am not drinking alcohol. I am 51 years old and before Severe Aortic Stenosis was diagnosed during an unrelated visit to the quack, I was extremely active and had just completely renovated a 3 bedroom house, including both front and rear gardens, single handedly over a five year period and while doing a full time job!! These days, I am knackered after tying my shoelaces...

     

  • jane32307
    jane32307 Guest

    Posted

    hi im the same been on bisoprol 10 mg put weight on and out of breath when doing things
  • jane32307
    jane32307 Guest

    Posted

    hi there im 45 im on 10 mg of bisoprol yes i have lots of side effects too
    • linda30957
      linda30957 jane32307

      Posted

      Hi.This as got to be the worst drug i,ve ever taken.Dr prescribe a very low strength 1.5mg along with Apixaban for A/F.First 2 days fine then started with Bad Muscle Pains,constant Migraines,Dizzy and feeling Faint,cramps,and generally not feeling right.Spoke to GP this Morning and she told me to stop taking Bisoprol straight away and to ring again in 5days to see how i am.Hopefully no Nightmares tonight and none of the above side effects.I was on Propananol Beta Blocker when in Hosp 2yrs ago with A/F due to over active Thyroid and that had afew side effects but nothing like this Medication.Hope i never have to go back on it.Hopefully its just me that reacted badly and dare say theres alot of Patients out there that are fine on it.
    • pat69234
      pat69234 linda30957

      Posted

      Its a shame for the doctors because they want to help the patients but do not realise how the new beta blockers affect us. Thats why i came off mine

      I think a lot of patients dont report it because they think its their disease thats  making them feel awful.

    • doug89937
      doug89937 pat69234

      Posted

      What did you feel like coming off ?

      I was prescribed bisoprolol after Complaining that metoprolol...then diltiazem both caused me illnesses. I have a-fib with enlarged atriium. Difficult to see a specialist and warned not to suddenly stop .

      Feel for all who are in this situation.

      Thought bisoprolol was better after a couple weeks but after 3 months I am lathargic!

    • linda30957
      linda30957 pat69234

      Posted

      I agree.Think i felt so poorly the 1st time i started with A/F i put alot of the symptoms down to the illness and not the Beta Blocker.But cant tell you how Happy i am when the Dr said stop taking them.So fingers x,d but i already feel alot better.
    • linda30957
      linda30957 doug89937

      Posted

      I had only been on them 2wks and i,d had enough.So with not being on them long other than feeling abit shaky i just feel elated to have a clear Head and most of the side effects seem to of gone.
    • pat69234
      pat69234 doug89937

      Posted

      My doc did it gradually. My doc was horrified when he  knew how ill i had become from the beta blocker. I went from being able to work and walk before the beta blockers to being that breathless afterwards .  I collapsed in the supermarket. I remember thinking if this illness is what i will have for the rest of my life i want to die. The  Beta blocker had put my blood pressure dangerously low and my heart beat. My lungs filled with water and i could not even get up the stairs. My family had to look after me. My doc was horrified.   It took a few months to get back to normal and i can run, work etc even though i still have afib. I am not on any beta blockers now. Just generic heart meds and a duiretic . Everytime you report a problem it gets sent on to who ever is in charge of the NHS . I had 3 doctors writing down what had happened to me. If you keep it to yourself it doesnt get known.  
  • GarryF
    GarryF Guest

    Posted

    Hi Guest, I was admitted to a&e in jan with pneumonia and the folks there found I had several heart probs. I always knew I had palps and irregular beats but didn't expect what they found. AF (pretty common btw), mitral regurgitation, and an enlarged upper left chamber. The leakage has caused blood to 'pool' in that chamber and is congealing. To reduce the risk of some of that congealed blood leaving the chamber and making it's way to my brain I am on warfarin. Bisoprolol was prescribed for me after too high dosage (2.5) of digoxin which made me feel weird. I'm now on 1.25mg digoxin and 7.5 bisoprolol. Sore joints, trigger thumb and sometimes feel dread (like something bad is looming),

    and a bit panicky. That's it. Those wont kill me. Not a bad trade for a more stable heart I'd say.

    • pat69234
      pat69234 GarryF

      Posted

      Hi Garry

      Pleased to hear you are getting better.

      I had Afib with heart failure

      I am on Digoxin etc .   If you read my past messages.

      My heart is getting stronger after using a natural food for the heart .

      Yes its out there :-) Take care .

    • GarryF
      GarryF pat69234

      Posted

      Thanks pat. Just had a nose bleed and it was pretty scary, second in two weeks. I have had nose bleeds occasionaly all my life but I'm seriously thinking about stopping warfarin cause I'm just sitting in the house minding my own business and it starts to bleed. I've spoken to my GP about it and all he said is if it doesn't stop in 20 mins phone an ambulance. What if it happens in my sleep tho??

    • pat69234
      pat69234 GarryF

      Posted

      Do you have regular checks?   If you dont then your warfaric INR may be to high. Make sure you have a check . INR should be point 2 to 3 
    • GarryF
      GarryF pat69234

      Posted

      yes I get checked every week or two. It's usually between 2 & 3. The nose bleeds are a worry tho as I live alone and they can happen out of the blue. Don't know if it's worth it. I had my jacket and shoes on last night after bleeding for 40 mins, ready to phone an ambulance but luckily it stopped. Not sure I can live like that. The warfarin is to stop the congealed blood in my heart from reaching my brain if some happens to get out. I think I need to check how likely that is compared to having to take warfarin.

       

    • pat69234
      pat69234 GarryF

      Posted

      Find out exactly how much the INR is when you have your check. Just over the 2 might be better instead of nearer the 3. Mine was reduced because of nose bleeds.
    • pat69234
      pat69234 GarryF

      Posted

      Warfarin works on a day to day basis . My friends and i have tested it. This message will probably be taken off. :-( 
    • GarryF
      GarryF pat69234

      Posted

      got my INR tested today and was very low only 1.1. The nurse went to ask my doc what she should do and told him I hadn't taken it for a couple of days cos my nose. When she came back she said the doc was not happy with me and that I MUST take the warfarin as told, regardless of the nose bleeds. The risks of clots and stroke are too high he said. So I suppose I'd best do as I'm told. I'm at high risk of stroke he told the nurse. I didn't realise I was THAT bad. What's goin on, I was ok 10 months ago! BTW  when you say tested it , how?

    • pat69234
      pat69234

      Posted

      If you take a low dose every day then a high dose on the morning of your clinic . INR  shows high . This shows the effect is daily.
    • pat69234
      pat69234 GarryF

      Posted

      what dose are you on when you get the nose bleeds and what was your INR onthat dose?
    • GarryF
      GarryF pat69234

      Posted

      I'm on 6g daily for a week cos my INR was low. When I had my nose bleed I was on 5 at 5g and 2 at 6g and the INR was 5 cos I had a cold and the doc gave me co-codomol and anti-biotics. NHS choices website says if your taking warfarin then not to take more than 2500mg (5 tablets) of paracetamol in a week, I was taking the normal 8 tablets a day that's 4000mg a day! for over a week That combined with the anti-biotics was stupid and the doc should never have done that.

       

    • GarryF
      GarryF pat69234

      Posted

      I never read the NHS choices site till after it was too late.
    • pat69234
      pat69234 GarryF

      Posted

      Hi Garry . I used to get nose bleeds. Something i have never had before . This message might get taken off? . I took homeopathic Arnica which stopped it and i havent had  a nose bleed since. i have always used Arnica  for my kids nose bleeds and bleeding incidents. Read up on it :-) I hope it helps. I need something for the dratted headaches i get since starting on the Warfarin. I havent had headaches for years and wake up every morning with one now.

       

    • GarryF
      GarryF pat69234

      Posted

      Thanks I'll look up on Arnica. I'm on 7.5 biso but most folks on here are on less, I'm also on 1.25 digoxin, I think together they're supposed to slow my heart rate I was 190-200 bpm now I'm bout 80-90, also I take Losartan for high blood pressure, I hope the doc's not over meding me. He doesn't tell me anything really. I'm 47 and not overweight. I feel kinda like it's a case of just take the meds and go away.

    • pat69234
      pat69234 GarryF

      Posted

      The docs have a set menu to work to. They only change it if the patient complains of side effects. I was taken off two duiretics and the beta blockers because i mentioned it. Some patients. A lot-  i think -never complain they just put up with it and so its not the docs fault if he doesnt know.
    • pat69234
      pat69234 GarryF

      Posted

      None of us do. We go in as an emrgency and we are expected to just follow orders and not know anything about what we are taking.
    • pat69234
      pat69234 GarryF

      Posted

      The only think i can recommend is look up American integrative cardiologists and research on feeding the heart to make it stronger . Its what i have done. And it works so far.
    • josephine32
      josephine32 pat69234

      Posted

      Yes, I got moderated off too.  But I will try again to say (without any links) that there is now an accepted antidote to dabigatran.  The main criticism of dabigatran (Pradaxa) is that some people have experienced bleeds and indeed there are some lawsuits in the States about this.  Warfarin can be reversed by Vit K, but not Pradaxa.  However, there is now this new antidote called Praxbind which my doctor now stocks, so I now feel just as safe as on Warfarin - and again, there is no monitoring, no blood testing, nor dietary restrictions.  I had a very unstable INR and the blood tests were becoming such an ordeal - I thank the day I was put on Pradaxa.

      Research, research is the motto here - new stuff all the time!  I had to motivate my GP and not the other way round.  I am not at war with him however, he is really nice, but just overworked and not finding the time to know even as much as we can find out on the net.

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