Bisoprolol Fumarate
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After a trip to A & E and short stay on cardiac ward, tests showed I had an episode of Coronary spasm.
I have been given Bisoprolol Fumarate 2.5 mg for this. I am on my 2nd day of taking and I have felt a bit spaced out and weird. I hope it will pass when my system gets used to it.
0 likes, 33 replies
denise41938 angela192
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Hi Angela, just wondering how you are and if you got sorted. I had been on Bisoprolol for 5 years and they have me some horrendous symptoms. I had no idea it was the drug, I thought my heart was still bad! Came off it (with permissions), but various tachycardias arrived. Cut a long story short, I am back on - this is day 11. I am astonished how bisoprolol made by the different pharmaceutical companies varies. I am now taking 'Sandoz' and on day 4, I had so many missed beats, then what seemed like hardly any beats. My GP was very irritated that I should be concerned. However, my Pharmacist - a lovely Irish girl, said to give it a few days, I might settle. And settle it did. I am ridiculously tired in the main, started getting night cramps, together with a little memory loss. My BP is low and pulse low, but it's not causing me any problems. No where near as bad as before. I have no light headedness - that emptyness you feel, so that is an absolute bonus. I'm telling you this Angela, because I am wondering if a different brand, could be better. Having said that, how do we know which one as it is also out of our control. Might I suggest you have a word with your Pharmacist, Angela. Let me know how it's going. Kind Regards, Denise.
jenny61596 denise41938
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Chilbill angela192
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jenny61596 Chilbill
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sue42907 angela192
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Just noticed the mention of Amlodipine. After I'd been taking htis for a while I noticed mylegs were swollen. I mentioned it to the doc, who cheerfully said We're poisoning you, stop taking it. I did and the swelling went down.
ann82027 angela192
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tammy52696 angela192
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jenny61596 tammy52696
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jenny61596 angela192
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peter01729 angela192
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I have been told by an Autonomic Neurologist I now have Autonomic Instability, my work on learning such is incurable are going through the process of medical retirement. Any activity on my part now make me sickeningly ill. My only respite is to spend the day in bed.
jenny61596 peter01729
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peter01729 jenny61596
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Hi Jenny, pretty much by the following day of first taking Bisoprolol, I was telling people I felt like a drunk zombie, like I had been turned into an old man overnight, like my lungs no longer felt as if they were working and breathlessness.
You will find lots of people say the same thing about Bisoprolol, fortunately most of them recover when the come off.
Unfortunately for me the side effects seem to have become permanent. Beta blockers disrupt the Autonomic Nervous System by blocking adrenaline receptors so the fight/flight-rest/digest is tilted out of balance to protect your heart. Autonomic Neuropathy can be triggered by the most minor of things, certainly by a drug that effects that very system.
The hardest part has been in getting the NHS to do anything about it, I suppose they are worried I am going to sue them or something as first of all the cardiologists would tell me to see my GP and say beta blockers come out of your system in 12 hours, (even though you take them every 24 hours!!), so it must be something else, then the GP's would say "we are waiting on your cardiologists" even after I explained I was being passed from one side to the other.
Next fob off they tried was to say I had anxiety which a psychologist reported I plainly didn't, and sent me back to the GP's.
As time was marching on and the NHS were not even looking for anything, I had to research for myself so I could logically reason with GPs, for instance I bought my own oxygen monitor which revealed a possible cause for my now permanently feeling drunk and dizzy, low oxygen content at night when my ANS doesn't detect low oxygen content and get me to breathe more when I am asleep. (see attached graph of mine, the red line at 88% is the danger line, you will see I spend a lot of the night under this).
The trouble with doing things yourself because nobody else will, then labels you with "Health Anxiety", another good excuse to fob you off and save money.
At the moment, I have managed to get an assessment with an Autonomic Neurologist who did a five minute Autonomic Blood Pressure test that demonstrated I now have Orthostatic hypotension and an initial diagnosis of "Autonomic Instability", something I actually worked out myself from Doctor Google and my symptoms, wrote on a piece of paper with a flow chart, presented to my GP, doing their job for them, and it still took nearly a year before anybody finally listened and did a five minute test!
Trouble is, it takes the NHS months to do anything, I am still waiting for a follow up re Autonomic Neurologist, I have a sleep apnea clinic appointment 31st May though I do not consider my low oxygen to be under the remit of a sleep apnea clinic but rather a neurologist, but my GP wants to wait for the results before having a brain scan MRI.
It has taken such a long time, despite my own efforts, even seeing my MP, that I have now lost my job, am too ill to go out but live alone, I consider Beta Blockers have destroyed my life as I felt so fit and well the day before I took them and have felt progressively and sickeningly worst since.
By all means take beta blockers if your life depends on it, and I am sure you will be one of the vast majority who will get over the side effects, but protect yourself just in case. Take a copy of this letter, show your GP or cardiologist and ask them to put i writing that they will take care of you if you suffer as a result of taking them.
If they poo poo this in front of you, you can be sure that if you suffer as I have, you will get no help from them.
ann82027 peter01729
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peter01729 ann82027
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jenny61596 peter01729
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ann82027 peter01729
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