Brain fog, dizziness, vision problems, head pressure, headache PLEASE HELP

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Hi everyone!

I don't know where else to go, and was hoping someone could please help me. I'll start off by saying I'm a 23 year old Caucasian female. Going on 5 months now, I have had absolutely debilitating symptoms which have hindered my daily life. I feel these symptoms every moment of every day.

It started with dizziness and a persistent brain fog. I just thought I had a bug, and tried to go on about my life. However, my symptoms have never gone away. This "brain fog" I am talking about is a feeling of complete mental confusion, I have no memory, I cannot concentrate on anything, it feels like there's a dark blanket on my brain clouding all my thoughts. I have extreme disorientation and haziness. I feel like I'm always in a dream like state.

I am constantly dizzy and feel a pulling sensation, as if I'm ready to fall over at any moment. It feels like there's air inside my head, and I'm always very lightheaded. Whenever I try to drive I feel this pulling sensation pulling me down.

Another problem I have is with my vision. I am having very blurred vision and have double vision. Everytime I look at something up close it is extremely blurry and I cannot see at all. My perception on things has completely changed. I feel like everything looks very odd and strange and I don't have the right depth perception. It's like I'm in a horrible dream like state all the time.

I have been having headaches and head pressure as well, and having horrible pains behind my eyes. The pin starts from the back of my head close to my neck and continues up my head and the sides of my temples. My eyes hurt so bad, and it feels like knives are jabbing my eyes. My head also feels extremely heavy all the time.

All these symptoms have been causing me severe anxiety, and I have been having panic attacks from them and feel like I'm dying. It is causing a strange disrespity sensation, where I feel like I'm not even here anymore and there's a detachment from myself and my body. I have had to drop all my classes at college and quit my job because these symptoms make me lay in bed all day long. I have been unable to drive for months and can barely get up to walk around. If anyone could please help me or know anything as a suggestion to try.

I have been to my general doctor, 2 ENTs, 1 neurologist, have had 2 MRIs, a hearing test, VNG, multiple blood tests, and no one knows what is wrong. I can't live like this anymore. Any help is greatly appreciated.

-Elise

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  • Posted

    I do encourage all who are suffering to find a good acupuncturist/chiropractor immediately. It will not solve all your problems but it does help to manage the symptoms. Mine cracks my ears and neck, and does acupuncture every time. I've been going twice a week. It's the only slight relief I've has in 2 years.

    • Posted

      Hi!

      I definitely agree with the whole Acupuncture.. it’s the only thing that helps.. I haven’t seen a chiropractor.. I should look for one. But my primary doctor suggested I don’t bc I have some type of bulging disk that’s minor in my neck and somehow seeing a chiropractor would make it worse.. ugh

  • Posted

    And I have the same kind of things going on with me like the blurred vision pressure on the top of my head behind my eyes my eyes are affected by this constant ringing in my head confusion brain fog anxiety that never goes away it has caused me to lose my job. I have spent plenty of money over the years and complaining to the doctors about this for years and getting nowhere I don't even know if they know what it is or what to do about it it's very frustrating

    • Posted

      Someone actually mentioned this book to me before . Just curious to see if anyone had any success ? Not sure about all the other stuff but Epstein Barr does make sense especially cuz I was severely immunocompromised at the time . 
    • Posted

      Hi Lnodes....yes I would say after 5 awful...and often scary months I am finally on my way to recovery. The only way to heal from Epstein Barr is through nutrition. I drink 1 glass of celery juice very morning- cleans out the gut, stopped eating pork and eggs...and tried to reduce dairy (esp cheese) and gluten and sugar as much as possible. Eat lots of veggies and frui5 and drink lots of water. Get some sun and go for walks. I have found that taking these supplements for the last 2 months have helped...vitamin c, Magnesium/calcium/zinc combo, vitamin d, selenium, L-lysine and bio curcumin. Good luck!!
  • Posted

    Hi All, I just noticed this blog even though I am a little late I felt I wanted to add. I have experience practically all the symptoms mentioned. For 21/2 years looked for an answer with every specialist, workup from spine to brain and no answers( I am making long story short) Finally went back to my original ENT who started me on the journey 21/2 years earlier and reviewed everything again. He then recomemened I see a doctor from the House of Ears Institute of LA as he just saw a paper he wrote.

    Fast forward gathered all the test results, MRI, CT scans etc and was able to get appointment with specialist in Tampa whom had been at the House of Ears. After spending 2 1/2 hours with him and his PA he said " you might think I am crazy I believe your symptoms are caused by Shingles Virus that went into my ear and has been feasting for the past 2/12 years" . He then told me how I felt since it was difficult for me to describe he said I felt like I was drunk all the time, which was an accurate description of my feelings. Lost of balance, brain fog, effective speech, disoriented, lack of concentration, visual distortion etc. At that time I could not spend more than 5 minutes on computer, TV was out, shopping at the market was brutal as crowds,noise all affected me. I could drive at the most 20 minutes, then would have to pull over for at least 20 minutes another my life was miserable and severe depression was starting to take over. Bottom line he said we would not know for months if not a year whether his diagnosis was correct he put me on large dose of antiviral after six months started to notice a difference but had to stay on for another year and a half in order to find out how much permanent damage was done. There has been permanent damage but I am 60% better can function now except Barometric pressure changes especially high pressure, bring on the symptoms due to the damage done by the Shingles Virus to my middle ear but not as severe. I hope this helps someone. Just to be fair the doctor said if you take a million people with my symptoms bring it down to 30, I would be 1 of the 30.

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    • Posted

      Hi just reading your symptoms and I been feeling this way for a month in a half now it all started in may on my 26 th birthday it’s been the most terrible month in a half of my life and I see you been feeling this way for years It have affected my daily life so much and I have two small children my life has  drastically changed and it has been such a struggle for me my doctor has no answers I feel it’s just the beginning I wake up everyday hoping it has gone away but it seems it never wil some days are better then others but it’s causing me to be depressed also .
    • Posted

      Also did you ever changed your diet to see a difference I don’t know if that’s it I’m not over weigh or nothing the doctor says  my test are all fine I’m healthy but I don’t know what to do anymore . 
    • Posted

      doctor just said to limit salt intake. If you haven't already you should go to best ENT you can find

    • Posted

      Wait so you had shingles, was that what was causing all of your problems?? I feel drunk all the time and I dread going to markets, malls, or anywhere where there a big crowd it over stimulates my eyes and they’ve feel tiredzz ugh 
    • Posted

      sorry for the delay Vanessa. Yes it was shingle that settled in my ear never any signs on my body. I had the exact symptoms you are feeling. 2 plus years on anti-vials help reduce the symptoms so I could function. Have been off the drugs for about 1/12 years had a return of symptoms lately went back on the anti-vials for a couple of weeks and symptoms reduced again
    • Posted

      Omg I feel the same way I hate going to places like grocery store the mall my eyes like wonder and get so heavy I use to love shoooing and looking around now I can’t even barre it then I end up getting a migraine 
    • Posted

      Yep , anything that takes alot of eye movement or concentration with my eyes, like computer work is hard.. i feel like my optic nerve and brain aren't communicating at the same time. And bright lights were almost unbearable.. my fatigue is getting better and i dont have the dark heaviness in the front part of my head anymore.. but the process is slow and on bad days i wonder how much more i can do.. my friend in Hawaii is on the final stage of her treatment and assures me that i will get back to a normal life. Do you have any certified functional doctors close to you?

    • Posted

      Is it possible that you've been exposed to mold or heavy metals or chemicals? At work, home or other places

    • Posted

      That’s how I feel all the time I hate going to stores I don’t even enjoy shopping anymore because of that I feel my eyes like wondering and can’t focus or something and they get real heavy I don’t feel that like drunk feeling much but I still don’t trust myself to drive far it use to not be so hard to concentrate to drive now it feels like it’s to much concentration and that doesn’t feel right to me. Does your vision ever go out of wack sometimes like gets fuzzy ? I am not familiar with any certified functional doctors, I am barly I guess you can step 1 which I just had a CT done a Ekg and a EEG now waiting to see my doctor for results She said if everything came back negative then she was gunna probably have to send me to a  neurologist . I don’t get dizzy anymore like I use to but I think I feel like a slight dizzy when I’m at the stores trying to concentrate I also feel my brain is not functioning right with my eyes . 

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