Brain fog, dizziness, vision problems, head pressure, headache PLEASE HELP

I'm not positive but it does sound like intracranial hypertension for some of you. its also known as pseudotumor cerebri. they can only test it by your spinal fluid.

I went to ENT and did MRI but it was normal. Only saw my cyst. I want them to remove it. I'm now found out I have H pylori. My stomach is bloating, cramp that come and go. Pressure my stomach and pain after used restroom. I have constipation. My back is burning pain. People who have the same issues. have another issues like that. I never listen to my body. I will have neurology this thursday. I hope you feel better.

ask the neurologist about abdominal migraines.........

Hi Elise93

your symptoms sound very much like mine. I've only had this for 5 weeks now so feel for you having had it that long. I'm not yet at the point where I'm having to give up work but don't think it'll be long. my symptoms have never disappeared and never eased. The only time I get respite is when I lay down. it's definitely starting to affect my mental state. I feel as though this is changing my personality, I'm no longer the bubbly person I used to be. I've had blood tests and an ECG and my doctor can't find anything wrong. I was about to be referred to an ENT specialist but that's now on a back burner because of the corona virus. all future appointments are cancelled until God knows when. they prescribed me Betahistine tablets but they made absolutely no difference. I literally feel like I'm no longer in my own body if that makes sense, just very detached. my doctors attitude seemed to be that there is nothing wrong so therefore just continue with taking the tablets (which aren't working). it's quite lonely living with this and just glad I found this forum as until you have it you don't realise how debilitating it is. did your doctor prescribe any medication??

those of us with this variety of symptoms are truly overwhelmed when they seem to linger without some known "cause" .I've put out a lot of information recently regarding a "newer" understanding of VESTIBULAR MIGRAINES which many ENT are learning more about thru the Migraine summit meetings. For the majority of people it was once believed these strange symptoms stemmed from the inner ear....now increased knowledge of these Alice in wonderland syndrome things that don't seem to have a visible cause such as tumor or other diagnosed .actually stem from the brain you can research this very informative ... I can validate with all of you no bizarre symptom is to be disregarded, or treated as non existent we all are "triggered" by barometric pressure; food sensitivities, anxiety which increases more symptoms as well as a full moon. These symptoms can improve by going on "vestibular rehab exercises which will help support that delicate balance

Hi Elise,

Can I ask if you get relief from any of those symptoms when laying down?

I recently went through a CSF leak, where spinal fluid leaks out of the dura mater around your spinal cord. It happened when I feel on my hip, wasnt even a bad fall just unlucky.

I was getting pretty much all your symptoms and a chronic headache and tugging feeling in the back of my head down my neck, basically my brain sagging from the low spinal fluid.

It is really challenging to get checked but if you can find a doctor that takes you seriously then I would consider asking. Because its very rare, doctors tend to brush it off.

Anyway, If you get relief form headaches and pain when lying down, or slightly inverted I would seriously consider investigating.

Good luck!

Simon

We all see the complexity of symptoms which are different and yet similar.....there is much more understanding than before due to the Migraine summit meeting, and several Neurologists Ent. field seeing more of us. The strange phenomena of migraine does have huge relativity to Anxiety and panic, because the fear of strange symptoms that that co exist, it is an inflammation problem too, and all these strange feelings, are like a "brain storm" with differing triggers. The feelings of unreality are so common, and part of the anxiety with "co-morbidity" of several things happening at once. There is a lovely support on line "The dizzy cook" who describes her symptoms and found food groups are sometimes the triggers, as is "flying" which as in my case, exacerbated the symptoms. There are quite a few discussions of "depersonilization or feelings of unreality on Utube describing these sensations. For me prescription "lorazepam was a god send to help with the anxiety. There is a belief that Nortriptylin 10mg. is useful for this condition. Some other antidepressants are recommended but you have to be patient for them to build for a few weeks. The benzo class of medications are very useful for those with anxiety, and the feelings of unreality. I was told to search for my triggers, which were salt weather, Santa Anna's chocolate caffeine again the dizzy cook shows foods we tend to want to avoid.

I started to have these symptoms almost 5 years ago following a night of heavy drinking. I was always a heavy binge drinker but i guess this night was the straw that broke the camel's back. I blacked out on the train and I had been sleeping in a very uncomfortable position (neck) for a prolonged period of time so it is one of the many possible reasons for this problem. When i finally woke up my vision was impaired and my fingers/toes were tingling. This was not an ordinary hangover.

Decided to quit drinking from that point on but all these mysterious symptoms started to occur which set my anxiety through the roof ( note: a reaction to but not the cause of these symptoms). I saw many neuros and doctors and eventually turned to alternative medicine because modern medicine had no answers for me (I actually am a healthcare professional myself so you can imagine my disappointment).

I'm noticing a lot of people start to experience these symptoms immediately after some physically stressful event (e.g drinking, heavy physical exertion, post-surgery, pregnancy/labor). To me it seems our bodies were pushed to the limit which caused our immune system or something else to go haywire. Essentially we are off balance in some way.

symptoms: Brain fog, head pressure, tinnitus (resolved), feeling of fullness in ears, migrating pain in lymph nodes of groin , navel , armpits (resolved), cough, mucus drip , shortness of breath, fatigue, weakness in arms/legs/behind the eyes, facial tingling, formication (feeling of bugs crawling under skin (resolved), heartburn, pain in neck and head ...did i miss anything ? Probably.

I have a pain specifically in what is called the greater auricular nerve (please google location) right around where the ear and jaw meet ... predominantly on the left side of my neck but sometimes on the right side as well. I am curious to know if anyone else has this pain. I have heard it described as a twinge or others have referred to it as a guitar string like sensation. Initially thought it was my lymph nodes(hence my name) and of course the thought of cancer crossed my mind but later realized it isn't likely because it probably would have grown in size by now.

Another possible theory i have is this is actually an internal problem related to the gut (google gut-brain axis), gallbladder or liver. Along with these neurologic symptoms i also started to experience many digestive issues at the same time which leads me to believe they may be connected. I tried dietary changes (e.g gluten free, vegetarian, etc) but had no significant improvement. Many acupuncturists have confirmed that the location of my pain points to a gallbladder issue. Liver problems can also cause a lot of neurologic issues such as hepatic encephalopathy. It is a reasonable suspicion due to my prior drinking habits. I'm just throwing theories out there and would like others to share as much of their experience as possible. Ideally i hope we can connect the dots and solve this thing together. Most importantly don't lose hope and if there is any time to turn to God .. no better time than now.

THIS IS EXACTLY WHAT IM GOING THRU......... I have all that symptoms........ 2 weeks ago i started having blurred vision and double vision and pain in my eyes and horrible headaches and pressure in my head and i feel like its pulling me to the left side when i walk and i have all the other symptoms that you wrote......... When i was reading your post i felt like I wrote it myself...... Tomorrow im going on MRI of Brain because im scared to death that i have some brain bleeding or some problem with my brain...