Burning sensation

Posted , 13 users are following.

After 13 weeks.How can you get rid of the terrible burning sensation day & night. Also my scar tissue still cannot bear being covered. Died anyone else have this. ?

1 like, 56 replies

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  • Posted

    I cannot stand covers on the op leg or all itchy burning and eventually turns into neuro pains. Nerve endings it seems, some people suggest plastic film after putting cream on leg and covering it with the stuff used to wrap food. I have not tried it yet so cannot say more - there is a video on line.

    ​I leave my leg out of the covers at night and have an ice gel pack when it needs it.

    ​Have some oils and creams that seem to help. Also magnesium oil spray helps reduce the effects. Good luck with your recovery.

     

    • Posted

      Cynthia Isnt it just awful. I saw the video about the cling film & I tried it but it didn't work for me at all. I'm like you sleep, if can call it sleep, with my leg out of the covers. I guess different things help different people. Let's get over this SOON

    • Posted

      Indeed. It is the cruellest thing losing sleep, you can put up with the rest better after proper sleep, but it is a dealbreaker being up all hours on top of everything else. Fingers crossed for us, Eileen.
    • Posted

      Cynthia, It can't go on forever, it will get better , seems ages but I know there is light at the end of the tunnel ,we'll get there

  • Posted

    I've going that when I go to bed at night I put a wash rag over my knee and a small ice pack in a cloth cover. When the ice warms up it still keeps the covers off. Very comfortable.

  • Posted

    Just went to breakfast with a couple and my knee started burning and hurting sitting at the table.  I kept trying to move it to a comfortable position without drawing attention to myself.  They finally asked, are you "still" in pain and when was your surgery?  Should you "still" have that much pain.  I thought, here it comes.  The inevitable comment about someone they know who is doing better.  They never said anything but they kept asking if I should still be in pain after all this time.  I told them it would take a full year to get the full effect of the surgery but I really think people figure a knee replacement is no big deal.  It makes me want to stay home until I'm no longer in pain.  I hate the feeling that  I'm somehow not doing enough.  

    Sorry.......rant over🤓

    • Posted

      I'm curious - where exactly is your pain?  And what is it like?  I'm asking because I had an undiagnosed pain for 14 months (assuming we do have it correctly diagnosed now!), and finally found out it could likely be a severed Infrapatellar branch of the Saphenous nerve.  I had an arthroscopy last year, and the pain has never ceased.  I"m going to get cryoneuroablation soon, I hope and that will be the end of it, but I"m reading that many people have pain after all kinds of knee surgery, and that it could be this nerve which gets severed or nicked, and is quite difficult to diagnose.

    • Posted

      It's on both sides. I just assumed that at 10 weeks pain is normal.

    • Posted

      Duckfan, please don't listen to those who don't know. I say to people like that they should try it & then they WILL know what it's like & how it feels. I'm 14 weeks & I also get remarks like that , "aren't you over it yet" gosh who would put this on or like my husband thinks that I'm " milking it " wow , if only. We would all like to be 100% & be getting on with our lives. Duckfan, be like me, take no notice , they are just ignorant. My husband just doesn't want to know from day one . Keep your chin up & live your life best way you can for now, it may take a year or even longer but we WILL get there.

    • Posted

      Thanks for the encouragement. i just need to stop feeling guilty because I'm not 100% yet.

    • Posted

      I've said it a hundred times on various posts, friends and family can be great allies but they can also be the biggest pains in the a** you will encounter. I finally used "how many of these have you Been through" as my reply. I then yell them, till you've experienced it just stay out of the advice giving. If it comes to someone being offended I'd sure as hell it is them and not me. Ive told a couple, if you really want to show you care, bring by a meal, pull son weeds out of my yard or offer to drive me to a Dr's appointment. You soon find out who your friends are and who are pretenders. You find out the average person doesnt want much to do with the sick and infirmed.

      You are an individual, just like your fig Dr prints and dna and because of that you will recover as your body and brain allow. Your only concern is you and not what anyone else thinks. Quite frankly, I think you might be pushing it a bit going out at this early date. Next time they want to get together, ask them to pick up something at the deli and a bottle of wine so you can enjoy their company and not have to worry about the pain and being comfortable.

    • Posted

      Thanks Old. You're so right. I do need to get tougher. My husband is super supportive and keeps telling me to take care of myself. He has ms and he's gone through the "I have a friend that has ms and they don't have any trouble walking" story. It used to bother him but doesn't anymore. I'm finding the "I have a friend that had her/his knee replaced and it didn't work out very well, they had nothing but trouble". Well gee, thanks I needed to hear that story, you've really encouraged me.

      I do have so many great friends that have shopped for us and cleaned the house. I'm very blessed by that. Love this forum though. Your posts are so funny.

    • Posted

      Sorry to hear about you husband. I have a 56 yo daughter with MS and as I've mentioned all to many times, my wife is in the advanced stages of Parkinson's. These diseases are so full of twists a d turns that even the professionals don't k ow how to explain them and then for someone who knows someone who read a story about someone who had the disease just makes you want to scream.

      A friend of mine from elementary school days ( we've been friends for 75 years) has Alzheimer's and had to be put in a memory unit about 3 yrs ago as his wife became ill and couldn't care for him for awhile. By the time she was back on her feet he had gone down hill so far they had to leave him there. I got a call Thursday telling me they were calling in hospice and starting morphine. Apparently something has invaded his system and the pain is to a level they have had to up the care. I have never heard of this before but it sure wouldn't do any good go tell her that...she definitely doesn't need another non professional with an opinion. She just needs to know we are with her if she needs us.

      Best wishes to you and your husband.

      I don't think I've ever seen you mention if you are in the US or UK or one of the many other countries on here. I'm in the US.

    • Posted

      I'm in the US, Oregon Coast. My cousin died a year ago from Alzheimer's, horrible disease. 

    • Posted

      Were getting Oregon weather. Rain, rain, and more rain.

      My son travel up your way a lot. He sells to the food industry. Has a lot of packing, canning, baking operations all The way from the coast over the Idaho. He lives south of Sacramento. I live about 30 mi S.W. of downtown Kansas city.

      Its a crazy spring. Just saw where Denver has 6" of snow on the ground with more coming

    • Posted

      Yep we're pretty sick of the rain. My husband and I both spent 35 years in the seafood industry. He was s commercial fisherman and I sold seafood wholesale. Interesting work.

    • Posted

      Hello Sarah...my husband has had burning/stinging in both TRK for approx 2 yrs now and surgeon keeps telling him there is no problem...Well there is a problem when you have pain. Did you go to a specialist of some kind to find out the nerve? We are trying to find out who to go see as surgeon now acts like he doesn't believe my husband and it is getting out of hand at this point. Thanks.

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