CFCs and dating

Posted , 11 users are following.

Hi fellow sufferers of CFS/ME

I suffer from CFS which as you all know is very exhausting, frustrating and isolating, particularly for those of us who aren't married or in a relationship. I get really lonely when I have days stuck at home with no one to talk to because I have no energy to go out. I'm feeling very down at the moment as a result. I'd love to share my life with someone as I have a lot of love to give and lots of interests. I don't feel that a 'normal' dating sure would work for us because of our limitations but if we could meet a fellow sufferer, we could both help and support each other. What do people think? 

This has got me thinking about whether there might be an on line dating a website for people with CFS/ME ? Does anyone know of one? Maybe we could start one?!

be interested to hear what you all think on this matter.

Mary

3 likes, 276 replies

276 Replies

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  • Posted

    hi mary. great idea. i loved reading all the positive responses - v. uplifting.

    Caitlin.

    • Posted

      Hi Caitlin, Mary has a great idea eh.

      Maybe if we could all make it on the day, we could nominate the man or woman with the best way of expressing themselves on the day, to do the talking - or at least start us off?

      xx

    • Posted

      absolutely, she's got a great idea there. sadly, i'm afraid i wouldn't have the reserves to make it to London, but am happy to do regional stuff or stuff from home.

      Caitlin

    • Posted

      Hi Caitlin,

      Actually, thinking about it now, I don't have the resources to get to London either!!  I wonder though, if "This Morning" lays on door to door transport for guests to their show? If they do, I would try my best to go.

      Like you, I'd definitely do anything from home or my area (Portsmouth, Hampshire) to help with anything.

      That's funny isn't it, that your Bach Flower ingredients are Impatiens!!!

      You might be right about the 'A' and 'B' types of M.E/CFS?

      I must go as there's a cup of tea with my name on it (literally - I have a mug with 'Valerie' on it!!!!), so I'll bid you farewell until tomorrow.

      Have a good evening and excellent night sleep (if possible). x

    • Posted

      Yes I too wondered about the long journey to London! Hopefully if they were interested they might lay on transport for us. I'll put this suggestion in my email! 😉
    • Posted

      hi LTV. hope u had a good night's sleep. re the Bach Flower Remedies: ues Impatience was always thrown in, often 'tongue in cheek' fashion as i was so impatient with myself & this illness.

      Caitlin

    • Posted

      Hi Mary and everyone, G'day to you all!!  I've just been on Facebook and there's an M.E/CFS/FM singles site on there - it's the first time I've seen it, and someone sent it to me via Facebook!!  They must be reading our stuff on here as well??  Or it's a massive coincidence?!!!

      It says it's a 'closed' group', so I expect we'd have to join it. x

    • Posted

      Thanks Val. I'll definitely take a look at that. Shows what a need there is for this sort of thing, 😃
    • Posted

      Wow I don't beieve in coindidences; do you mean the person sent it to you without you mentioning that we've been talking about it?
    • Posted

      I take Valerian at night for a good night's sleep; it's excellent! And I use the Bach Rescue Remedy sometimes when I go hyper stressed.
  • Posted

    Sounds like youve put forward thoughts and idea,s of many, me included,

    lve been widowed many years, sons adults living away, few family left, and the few that are along with few old friends are difficult to keep friendship with due to distances or just being unreliable through chronic debilitating health probs, It is restricting, lonely, frustrating, depressing at times,  battling to overcome the bad days. l talk to my little dog often, at times the washer also. l looked on conventional dating sites but for older age group, l found many of simular age go hill walking, play tennis, go swimming or to gym, l,m thinking omg,  what about a 100yd walk and sit down on a good day. Also like others on their own, you have to use the little energy to do essentials in home, garden gets beyond, left wild, its true many dont have people to delegate jobs to.  Also thought wonder if there,s such a thing as a crocks site, friendships are not just about being active, also company, mutual support, but not dependancy, intallectual.

    Well done for posting what many agree with, obviously a need, even a site for those with restricted lifestyle,s.  l hope the response has made you feel less down, just knowing others simular helps, and youve helped others express it, hope it helps.

    • Posted

      Hi Lynne,

      I am so sorry to hear of your loneliness too.  Life can be a struggle eh.

      Mary has certainly come up with a great idea, and gradually, lots of us are agreeing and liking the idea.

      I get quite down and despondent, but I have to say that interacting with everyone today, has lifted my spirits and hope.

      It is SO good to have a laugh isn't it.

      I think that Mary has done a magnificent job today in giving us all hope and maybe a goal to aim for.

      Lets all keep in touch and between us, see what we can do?

      Take care Lynne, and everyone out there in any awkward or horrible situation too.  Even if nothing comes of this, at least we can 'talk' to each other and somehow support each other, even if just to bring a smile on someone's face eh.

      xx

    • Posted

      hi Lynne. think u touched on something important there. i, too miss the intellectual banter/exchange. having a chat about what's happening in the world & putting the world to rights when the energy's there can make one feel as though they've still got a fragment of brain and are still a part of humanity albeit a peripheral one.

      Caitlin

    • Posted

      Hi Val, Thanks for response, Mary has certainly got quick responses, lol, never seen so many in 4hrs, wonder how many there will be by tomorrow, l hope she realises she,s now the official founder lol, made me smile. But as you, or whoever posted, `we live in hope`, l do, and l,,m more a realist than optamist, but still think there,s wonder treatments just around the corner, energising, l might travel the world to all those wonderful places, preferably by public transport, l,ll say no more lol,  and have the active lifestyle you see others having, fatal to look in on fb, exotic places and activities, they take for granted.  But lve not had a bad day today as days go, minor achievements, cleaned a window, can see through it now, small mercies, But we live in hope for better days, might help if we got a summer to at least sit out in and enjoy, be able to take off my fleece, Yes its brought a smile and laugh, Best wishes to all, will look in tomorrow, see how many respond.  Well done Maryxwink
    • Posted

      I used to enjoy gardening, luckily enough I designed my garden to be nearly hands-off and the newts seem to enjoy the bits that have turned a bit wild now...

      I now get my gardening fix by keeping Bonsai, they are the one type of gardening that you can do comfortably sitting down .. biggrin

      I know what you mean about the conventional dating sites, they are all such active people, it's a wonder they have time for a love life... ! ... rolleyes

    • Posted

      Hi Lynne,

      Yey!!  Good for Mary eh.  I can't wait too, to see other responses tomorrow to her great idea.

      I think she's lifted so many spirits today hasn't she - all hail Mary!!  Thank you Mary for your excellent idea, even if it 'just' makes us all smile.

      So glad to hear you've managed to do a few things today Lynne.  I've done a batch of cooking, for meals for the next 3 days (to just 'shove' in the microwave each day!!!), but am 'wiped out now'.  

      Like you say, I am positive that there is a cure or prevention just waiting to be discovered.  If they can send a man to the moon, and cure some cancers, oh boy, we have hope eh!!

      I'm gonna sit in front of the TV now with a cuppa and slice of home-made cake (made by my sister, not me, LOL!!!!), and hope there's some comedy on the tele!!

      Take care Lynne and everyone, may 'talk' again tomorrow?

      xx

       

    • Posted

      Hi Caitlin, yes l think we miss the stimulation of discussions, l,m always putting the world to right, l sometimes look in on news mbs, but heavy going at times, can be draining, lot of extremists on.  My son visits, not often enough, but once every 7-10 days, he,s actually a therapist, so really doesnt need it from me, but he gets it, big rush of thoughts and feelings, but we can have good discussions at times, depends who,s most tired or falling asleep. l know what you mean about being still part of humanity, easy at times to feel invicible, more so if a bad day when its easy to close in, and guess it shows, barrier up. l can talk to the dog as if it understands me, it looks as if its trying to, quizical, probably thinking whats she talking about, is there a sweet at the end of it.  l hope lots post to show the need.  Back to pride and predjudice, wrong D,arcy for me. best wishes
    • Posted

      Thanks for your response Lynne. I feel so excited about all this. Together I'm sure we can all get something going, though not quite sure what yet! Crocks  site sounds like a good idea! 'm glad you have a dog for company. I have three cats and used to walk my daughter's German Shepherd dog when I was well. Really miss doing it now.   I know what you mean about wild gardens! I've done too much in mine this week as I was fed up with looking at it so overgrown and untidy but boy have I paid for it! Take care and don't lose hope, I feel so much more hopeful after all the replies. X 😀
    • Posted

      Hi Mary,

      I just read your reply to Lynne.  I think that all of us like the sound of your idea, and we'll back you all the way.

      I'm lucky that I live in a block of Council flats, so the Council do all the gardening!!!  But I do like to get out there and try to sew a few flowers and edible stuff too, whenever I can.

      My younger sister is just getting over 3 years of breast cancer and she loves doing her gardening and says it's helped her immensley, through periods of exhaustion etc.  She says it's great exercise if you can do it.

      xx

    • Posted

      l also loved gardening, countryside, walking, and my garden was always a bit wild, cultivated wild, had dug out for pond rockery etc, your lucky getting newts, not seen any in years, get frogs and toads in abundance, they certainly have a love life, orgy in spring, love  bird watching, put seed out. Big problem now is hedges and shrubs growing too quick, even with power tools, and lve plenty of them, still too much, used to be the cordless batteries that ran out, now l run out of energy before they do, and its only half an hour battery life. ldealy l,d like a slave, cheesygrin, but l guess there,d be no challenges then, but fat chance, as with delegate to who, me.   `Sitting down`, my life seems to revolve around looking for a sit down, anywhere at times, door step if need be.  But glad lve a garden to look out onto, concrete would make it even worse, soul destroying for me. Bonsai certainly wont take a hedge clipper to keep in check, sounds good.  good wishes.
    • Posted

      Hi mary  Definetly brightened me up,  Like you l loved gardening, and dont like to look out on hedges looking overgrown straggly, sit looking for hours or day,s, did just half hour, and even potting on re lifting winter pansies, to replace with bedding in a few tubs, sat down, felt like l,d been hit by a bus next 3days, but its done and felt better l,d done it, and will be able to look at bedding plants in flower when summer finally arrives, l think gardening is theraputic, good look to your sister val, fantastic advances in breast cancer treatment.  lve also 2 cats, 2 old girls, 13 and l5yrs, sleep near as much as me. easy care.  We do have bad days feeling down, but hope springs eternal they say, think its true. Yes, cup of tea times, but choc for me.  x
    • Posted

      hi Lynne. it's good u have the Mutt. think they are very attuned to their owners emotions. great companions. sadly, yes we can become rather invisible in to-day's values of all that counts is 'quantifiable productivity'???

      Caitlin

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