chronic pain from head to toe just on left side of body
Posted , 156 users are following.
I am 26 yrs old i first went to my doctors 18months ago with pain in my neck, at first they thought it was a traped
nerve. when i later went back and told them i had not gone away but infact was getting worse. i now have pain all the way down my left side of my body. i have pins n needles in my hand sometimes goes numb my bones hurt its as if they are being pulled and twisted i am alot weaker now in my left side also that side of my face hurts aswel my musles at the back of my shoulder and my neck often spazrm.i was sent for an xray which nothing showed up they then sent me for a neck mri scan when the scan finnished the people that did the scan on me asked me what was going on i told them and they said to me they thought i should be having a brain scan by the sound of it not a neck scan.
i am so confused my doctors say they dont know what is wrong so now just say oh you have chronic pain we think. but i dont understand why when i had my MRI why they said they thought i should be having a brain scan can anybody help me with this or give me any advise? i am so stressed out with all this i know something is not right i know my know body but its as if know body wants to find out know that they have put down that it maybe chronic paini would be so greatful if someone could explain
17 likes, 216 replies
cooper_39520 lauraspot
Posted
cooper_39520 lauraspot
Posted
Remember these symptoms are alot like Parkinson disease but it isn't mystic gravis is glycophates poisoning
FaustoBraz lauraspot
Posted
Hello, i am froum Brazil. And i was reading this post and it seem so related to my problem. I am suffering with this left body pains for 11 years. It started somewhere in my left neck or arm, maybe because of gym or sitting too much at computer.
As everybody i went to too many doctors, took too many MRI(Cervical spine and lumbar spine) and it all was normal estructures.
For physical therapy i did a lot of things like swimmimg, pilates, massagens, osteopaths, Mckenzie method. I found that what works for me is some light funcional exercises with rubber bands, some very good stretching. Along with some self massages.
I also tried some "melt method" and other methos of self massage and self treatment. But the reality is, my left side is still very sensible to pain and weak. This affected my wole life, and i am always self concious of it. My mom have Fibromyalgia, maybe i have some form of it in me. My left side is painful and nothing seems to work.
If someone find a worthwhile treatment, post it please.
hilda54591 lauraspot
Posted
hilda54591
Posted
I forgot to mention, for more than a year, I've had had a weird pain in my left arm, now I have on my left hip as well and tonight it started on my head. Im sorry to hear that there seem to be not a reliable answer from doctors as to what the problem stems from.
marisol39404 lauraspot
Posted
I think for me it's a bit different like a mixture of things, constipation, need for a nightguard/retainer to help my jawline, and not drinking enough water. I recently got my appendix removed and the pain medication they gave me helped with my left side of the body pain. Although I need to get into the habit of doing things more routinely it's helping to a degree. Also, stress was a factor I believe. I try not to think about the pain so it can stay away more often. Been having this pain since I was about 16 or 18 currently am 23 and I just started to do something about it..... Hope you guys are lucky!
hilda54591 marisol39404
Posted
Only 23 and you got the appendix removed? did the doctor said if it had to do with your diet? when you have time and dont mind to share, I'd like to know more about it.
marisol39404 hilda54591
Posted
The appendix removal had nothing to do with my diet, but he did say it's just an abnormal thing that could just get blocked or explodes for no reason at all. The medical world honestly has no idea what the appendix does just that if it explodes the potential to die increases a crazy amount
marisol39404 lauraspot
Posted
I think for me it's a bit different like a mixture of things, constipation, need for a nightguard/retainer to help my jawline, and not drinking enough water. I recently got my appendix removed and the pain medication they gave me helped with my left side of the body pain. Although I need to get into the habit of doing things more routinely it's helping to a degree. Also, stress was a factor I believe. I try not to think about the pain so it can stay away more often. Been having this pain since I was about 16 or 18 currently am 23 and I just started to do something about it..... Hope you guys are lucky!
italianclaire lauraspot
Posted
I got a bad concussion + whiplash 12.5 months ago. Since my concussion the left side of my body constantly aches from neck to toe, especially my left elbow, wrist, shoulder, knee, hip, etc - I guess all the left joints and many of the bones, like my leg, hip and arm bones. I've noticed most of the people posting are also complaining about their left sides...
Sometimes my right temple and the right side of my head feel like they suddenly have high pain / pressure and at the same time the right side of my face goes numb. When all that happens the left side of my body gets extra weak and painful. This is all very frustrating as the doctors don't seem to have a clue what's going on or how to help me.
I was hoping I'd be getting better but as time goes on and certain parts of my concussion / mTBI improve, the pain components like my aching hips and legs, bones, lower back, neck, weird headaches, joints, temple pain/pressure, numb face all seem to be getting consistently worse. I saw some mention of fibromyalgia pain correlating to decreased blood flow to portions of the brain that regulate pain... Is this a possible result from a concussion / mTBI that would end up causing left sided pain such as what's written all over this thread...?
gabrielle54020 lauraspot
Posted
I've read through all of this and mine is similar but different and I cannot find any answers. I frequently (~4-5 days per week) have terrible, throbbing, numbing pain on my ENTIRE right or left. Literally everything from my eyelids, teeth, ears, neck, back, arms, hips, toes, etc. It seems that there is always an epicenter. For example if I stubbed my left toe = pain as long as that toe is hurting on the left. If I rallied the cat and got a scratch on my right arm = pain as long as that is bothering me on the right. Those considerations coupled with me being incredibly clutzy. It renders me in pain, much difficulty sleeping, massively distracted and unable to concentrate. It's been going on since I was ~18 and I am now 41. I've been through an MRI of my head as well as tons of physical therapies and no change. I've been prescribed depression meds and some low grade muscle relaxers to no avail. The tougher meds check me out so I don't care as much but that is not a solution. Any thoughts you have would be much appreciated.
Hargreaves lauraspot
Posted
I know it was 5 years ago when you posted about your chronic pain, but did you find any help in that time?
I ask because my partner suffers chronic pain down his right hand side, from the top of his head, across his face, neck, shoulder, hip, groin, legs etc.
In my opinion he’s received really poor care from doctors who don’t seem to have the time or inclination to keep trying to find the cause - and he’s suffered for nine years.
One ‘specialist’ even told him to take more hot showers to fix it! So he’s lost his faith in the medical route and won’t take medical pain relief because he doesn’t want to get hooked on them and when he tried amiltryptaline it gave him nightmares.
As a result of my nagging, he has seen a chiropractor, a physio, and had intensive massage but no cure. The phsio even said that his shoulder was mechanically fine so stopped seeing him.
To see someone you love in pain everyday is heartbreaking and I wish he would fight for a scan (MRI, ultra sound) or a test for nerve damage. But doctors don’t seem to want to offer them. And from the few responses I’ve read, it seems that scans don’t always show the problem.
I actually think getting a full set of bloods could help. I had my bloods taken for my thyroid and it showed I have a high level of an antibody that is linked to rheumatoid arthritis (although I don’t have any symptoms). He may have something similar as I’ve read about arthritis of the neck. But he point blank refuses to go back to the doctor and massages/manipulates his body at home (he finds it hard to work).
I’m literally at the point of tearing my hair out and would really benefit from some advice. I will go through all the 170 responses now (I know I should have done that first really but felt compelled to write down my story in case you ever check back on this page).
Thanks in advance to Lauraspot or anyone that can help.
alexisngaines lauraspot
Posted
dee85203 alexisngaines
Posted
Thanks for the response. I saved this topic because I also have numbness, aches, and pains mainly on the left side, also have started loosing feeling in toes on both sides, bouts of intense fatigue, dizziness, confusion...
In case this is helpful to you, or anyone else I’ll share where I am in the process.
I’ve had a full rheumatoid panel; Antinuclear antibody, rheumatoid factor, c3 complement, c4 complement.. plus many others. Spinal tap to check for multiple sclerosis, multiple MRI’s of my head with and without contrast, and blood tests for major vitamin and hormonal deficiencies.
The latest was a nerve conduction study, which my neuro said essentially rules out chronic inflammatory demyelenating polyneuropathy, and Charcot-marie-tooth disease because my conduction rates were normal.
I’m scheduled for a skin biopsy to check for small fiber neuropathy. Small fiber neuropathy can cause autonomic and sensory dysfunction, so I’m curious to see the results of this.
Luckily my husbands job offers an outside expert medical opinion services for their employees and dependents. In my first call, the physician case manager said I should ask my doctor about something called POTS “Postural Orthostatic Tachycardia.” She said she’s had three patients with similar symptoms as me who had this condition, some of whom were seeking a second opinion to try and get another diagnosis.
As I read about the condition, it certainly seemed similar to some symptoms I’ve had. It looks like about half of people with this condition also have small fiber neuropathy, and another large percentage have a disorder related to mast cell activation, which is an even newer and less understood disorder.
I see my neuro next week, and will be discussing my biopsy results, and I will bring up POTS.
Good luck out there to all of you stuck in limbo. You know your own body better than anyone. Don’t give up, educate yourself, ask questions, and don’t be afraid of doctors because in my experience they will never admit when they don’t know something.
Guest lauraspot
Posted