Clob and the clitoris

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I'm on the NHS and for the most part I find their explanations regards using clob and LS, in general, are so lacking. 

I noticed a while ago that my clitoris had become white on the one side. The flesh around this area is 'looser' than on the other side. (The hood surrounding it).  So it's changed structure I guess?

I pointed this out to my doctor and asked if I should use the clob on this area on the  clitoris.  I think it's hard to see in regular light tbh. . She said to put it on the hood? I can't see how that would help, to be honest? 

I get painful clit a lot too. Do I rub it on this area (it sounds scary as the clob burns me no matter where I put it). 

ALSO, did anyone else suffer a lot of pain upon using clob ointment in the beginning? I might have asked this before, but I guess my hormones make me foggy brained. Any advice appreciated.(I'm 54). 

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  • Posted

    Hi Callianne

    I have only recently been diagnosed wiht LS.  Before my biopsy i was give a clob and it burned my skin and made my LS worse.  when i talked to the consultant about this he said that that shouldnt happen and gave me another tube.  So as you can understand I have been also investigating other treatments.  I have tried the Borax and the Bicarbonate of soda which were OK but only giving mild relief for a short period.  I was still waking up at night itching and my skin was awful, very tender and painful wearing clothes.  I saw a message about Creme Complete (Perrin Naturals)which apparently helps to control the symptom and encourages re emergence of the hood and clitoris.  It is expensive at £30 a pot but I will be buying it again.  My skin is now pink and my hood has re emerged.  I can also not use the steroid cream without pain (but don't need to very often)  I have had the cream for two weeks.  The smell can be a bit unpleasant but its ingredients are all natural.  I can imagine your frustration - not everything works the same for all people and being told that it should work is very unhelpful. 

    I hope this is helpful to you.

    x

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    • Posted

      That sounds amazing, I know though different things work for different people. So where do you get this cream I can Google of course. Thanks for the info' very much needed as I've stopped the clob. I can't stand the Docs attitudes, they always look at me as though I'm bonkers when I tell them things like this. 

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    • Posted

      Got it on the internet just go to the Perrin's web site. A few different types on there and some information about ls. Worth a look!

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  • Posted

    Yes, I changes to the cream because of it. but thinking at the time I was in worse shape with cuts etc. I might go back and try the oitment again. It burns some too so not sure. Dont think there is any way around burning for me with any meds. My Dr gave me lidacaine to put on to dull pain but it burns also so I dont use it.

    They only thing that doesnt irritate me is the coconut oil I am using for moisture. I like this as it gives natural lubrication feeling. 

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    • Posted

      Hi, how log does an episode of a flare up normally last, i have now had it since last thursday, the worst day was friday its not so bad now but still feels uncomfortable, thank you.

       

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    • Posted

      The Dermovate (cortisone cream) doesn't burn me but the Emla (aneasthetic? cream to numb it) burns so much I cry when I use it so now I don't use it at all. The reason I was using it is if I go out and have to sit still for a long time (like at one of my boys sports day/swimming gala or a dinner) I can't be wriggling on the chair all the time or hopping off to the toilet every 5 minutes. It is easier to have complete oblivion down there! 😁

      I also use coconut oil for moisture and lubrication (also as a lubricant for sex). I was told by my doctors not to use any shop bought lubricants for sex as too many other ingredients. Just use olive oil, coconut oil etc...as natural as possible.

      Sands xxx

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  • Posted

    I thinki Drs could learn something if they read this sight and learn all the common symptoms and what works and doesnt. 
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    • Posted

      I don't think that they are that educated in this area. Well, in fact, I know this for sure. (No offense to Doctors) but there is only so much they can cover. It's just horrible waiting for a gyno, the wait is so long and I can't be bothered. I always seem to be at some medical professionals office. Ugh!

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    • Posted

      Even gynos dont seem to know much. The first one I went to about this said I had Herpes. He insisted and I insisted no. Biopsies were negative for everything at that time. He finally had to admit he didnt know and said it must be hormonal.

      I found a new Dr. I mean hadnt he seen anything similar or diagnosed LS before? He was supposed to be highly reccommended gyno.

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    • Posted

      Hi, I thought I was having a herpes attack last may, so went to vd clinic to get the medication, he said it wasn't herpes it was lichen planus, , when I saw the vulva clinic she said she didn't think it was, but said she may take a biopsy when I go the 25 th may, its strange how at the vd clinic he was adamant it was lichen planus the year previous I had had a few attacks of herpes maybe it wasn't herpes then. x

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    • Posted

      Hi, my Dr wasn't convinced it was lichen's, she was adamant it was

      Herpes,

      So,after being sent to the clinic,

      After biopsy,i was diagnosed with both ,

      At times i find it difficult to tell which is which,such a mess,

      But ,good luck please let me know how you get on,

      Xx

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    • Posted

      Hi, i contacted herpes about  30  years ago, and the symptons are much the same apart from the cuts , herpes give you tiny blisters. i know what you mean though, my bout is easing up, ive hAD  it since last wednesday, it makes you feel lousy, sudocream seems to be easing it a bit, there was a discussion on radio 4 today about LS on womens hour, she said riding a bike really irritates it. i love biking riding. feel like i need a good m o t. x
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    • Posted

      Oh, I'll catch up with that on iPlayer, thank you,

      Typical thought, i used to do a lot of jogging but, I'm to scard

      To do it now,

      Thank you for sharing xx

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    • Posted

      Hi, chimney,

      I've listened to woman's? hour,

      I wish that vulval? specialist lived nearer to where it live

      It's the first time I've ever heard lichen's ever mentioned

      On the radio, kindest regards?xx

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    • Posted

      Hi lorraine, i missed it my sister in law told me about it, gonna get it up on i player today and listen to it. gonna go and see my gp today , its not near as bad as what it has been, went to walk in centre saturday, they didnt have a clue what it was, she gave me canesteen cream, when i went to chemist to get perscription and spoke to pharmacist she told me not to put canestene on an open sore, she was qiute knowledgable.. as i said i havent been diagnosed with LS yet..   thank you for listening to me. x

       

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    • Posted

      Good morning,

      I hope you get on ok at the dr's

      Please,can you let me know how it goes, ?

      Be thinking of you , good luck, !!

      Always here xx

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    • Posted

      Hi, just back from doctors, explained everything  to him,showed him the photo i took on my phone when the sore was opened , he called it ulcerated. i also took in a water sample as i,ve been peeing alot and it was a bit smelly, he said it was fine but has sent it off to the lab, he gave me dermovate cream ( which has clobetasol in it )  to use twice a day, and he told me to use the hydromol what vulva clinic gave me , to put it on after the dermovate has soaked. lets hope it eases it, hope your feeling ok. take care xx
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    • Posted

      Thanks for sharing,

      You need to rest and try and stay stress free,

      Hope you start to feel better soon,

      Lots of love xx

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    • Posted

      You too , let me know plz if you hear any more helpful tips and i will you too, thank you for replying. smile  xx
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    • Posted

      Hi, I cannot understand why some doctors don't know about LS & LP, As in my old medical book which is 35 years old, its got all about LS & LP in, so its not something they have only just put a name to, and its not rare , quite a high per cent of women over the age of 55 have got it, I also think that you need to be seen by a gynecologist to determine what it is and how it should be treated.

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    • Posted

      Hi

      I have been peeing a lot too and it smells ( like water when flowers in a vase been in too long!). But since I been drinking more water I don't pee so much and not so smelly either. I am using clob but don't have the hydromol. Wonder what the hydromol does. My bottom is also red and sore like a nappy rash I imagine?

      Take care x

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    • Posted

      Hi, the hydromel is a barrier ointment, its good. When I had a flare up I was peeing alot and it smelt took a water sample to doctors but it was clear. I also get a sore bottom. Have you seen a gynecologist at hospital yet, if not keep pressurising your doctor to refer you. Get the hydromel ointment on repeat prescription, I put it on really sparingly morning & night. Take care x

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    • Posted

      Hi

      Thanks for that good info. I have seen gynae she said right away it was LS. I have clob and dermol emolient wash. I have ordered Yes moisturiser, but maybe too early for that. I will ask for hydromel. Thanks v helpful info.

      Take care x

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