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Clobetasol for Lichen Sclerosus

Posted , 9 users are following.

jessica68771
jessica68771

Hi,

I am 29 and have recently been diagnosed with Lichen Sclerosus. I have had moderate success with using baking soda/borax, however last week was my first meeting with a dermatologist. He suggested to do a pulse treatment with Clobetasol, applying 3 days in a row taking the rest of the week off then repeating the following week. This is to be done for 2 months and then I am to decrease down to a maintenance dose of 1x per week. Right now things are not too bad, which is why the treatment is not super agressive... my problem is that when I started (3 days ago) almost immediately ( I noticed after the 2nd application) things went more white than they were before I started. It seems to be everywhere that I have applied the cream. I only use a pea sized amount. Has this ever happened to any of you? I will ring the dermatologist's office on Monday, but he is 3 hrs away so I wont be able to see him for a while and I am starting to worry that the clob is making it worse somehow!?

Sorry everyone, I am in a bit of a panic mode right now. Thanks in advance for anyone that takes time to reply smile

2 likes, 36 replies

36 Replies

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  • susan43705
    susan43705 jessica68771

    Posted

    maybe you are having a reaction to the Clob.  I am applying Clob with Emuaid rather than full strength.  Seems to work for me.  I also go commando all the time.  Love it.  
    • connie07346
      connie07346 susan43705

      Posted

      You must be young to go commando! I'm 63 and would be uncomfortable. I''ll try the gym tomorrow. I have an event to attend tonight and want to be comfortable. My poor hubby has itchy psoriasis all over his body. Seems we all have something.

    • susan43705
      susan43705 connie07346

      Posted

      Hi,  I"m 72 and love going commando.  I don't like to be encumbered with too many layers down there and less irritation.  

      I read and saw a video online of a baby with a terrible skin condition that no one knew what to do with and the parents got cannabis cream and used it the baby, and voila, the condition cleared up.  I am thinking of going to Amsterdam to get the cream because LS doesn't qualify for cannabis purchase, but Severe Psoriasis and Psoriatic Arthritis is covered.  Maybe your husband can get it.  

    • connie07346
      connie07346 susan43705

      Posted

      WOW!  72 and you love going commando!  Kudos for your liberation!  Thank you for the info about cannabis cream for psoriasis.  I'll pass it on to my hubby.  He's 65 and on Medicare now with supplemental and drug insurance coverage.    He can't even get the dead shingles shot his doc wants him to get without it costing about $250-300.  I'll tell him about the cannabis cream.  Thanks.

  • marla64
    marla64 jessica68771

    Posted

    Hi, i am doing what you did twice a week two weeks and now for last 3 days once a day plus baths with borax and baking soda. Itching almost gone unless i eat something sweet, diet is hard to change working on it, now though most white is gone but now have bruises or sores purple color inside my vagina and a bit on outside. Left message for doctor but haven’t heard back. Not sure how much she knows about our condition, to go to a specialist on it is 4 hrs away but thinking of doing at least one visit if they will get me in.  Does anyone have bruises like that, scared the heck out of me!!
    • marla64
      marla64

      Posted

      I emailed my doctor and she got me in tomorrow morning instead of waiting till end of month appt and she said she will refer me to specialist if I want to which I think I do.  My doctor has only seen a few patients with our problem.  
  • yvonne_20875
    yvonne_20875 jessica68771

    Posted

    Hi Jessica. I’m a young 65 and was totally shocked to hear this doesn’t have a cure so I did what I was told and used dermovate every day on back and front. It seemed to turn into something worse instead of only having a bit of itch and dryness, I now am burnt around areas and more white than I ever noticed before. Even more swollen!! I use Dermot for cleansing and showering but have to rinse myself quite often to ease burning. I feel like stopping everything except Vaseline !! It’s been from April18. I know how frustrated you must  feel! 
    • jessica68771
      jessica68771 yvonne_20875

      Posted

      I am so sorry to hear about what you are dealing with. It is such an awful affliction to deal with. Its all a bit frustrating because the dr made it seem like it was nothing, yet every time I look down there it seems worse than the time before. I have my fingers crossed that we will all be able to find something to make it manageable in the long term.
  • Nancy_K_B
    Nancy_K_B jessica68771

    Posted

    HI Jessica, I'm not using steroids, so I can't speak to that whitening. But maybe you've noticed I've really been on the trail of dealing with the causes. and healing from the INSIDE. Have you had time to read my article on the nutritional aspects of autoimmunity?  Vitamin D3 K2, magnesium, borax/boron, zinc etc etc... Hopefully you have a health food store much closer than 3 hours?   Wishing you well.    

    • jessica68771
      jessica68771 Nancy_K_B

      Posted

      Hi Nancy,

      Could you please post a link to your article, I would love to read it! I am quite interested in the nutritional aspect. I have dont know much about the vitamins, however I take a daily vit D supplement.

      I tried rinsing with baking soda and applying a saturated borax solution 2x's for about 1 month. Initially it worked wonders, it was fantasic for itch but in the end I was still fusing so decided I would try the steroids to see if they could halt that.

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