To all Granuloma Annulare sufferers - what else is going on?

Posted , 91 users are following.

I have GA for 8 years - we all know that this skin disease itself is not painful however I want to know if other things are going on within your body? 

I, personally, have issues with toe and leg cramps and nerve pain. Is this related or something else all together?

If you could please share your personal experience, I believe we need all info to assist each other.

Thanks,

Carole

6 likes, 207 replies

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  • Posted

    Hello everyone,

    I am happy to say that my GA is fading slowly everywhere. I stopped all the vitamins and supplements, I eat a clean diet with no processed food, lots of fruits and veggies, drink lots of water, exercise and just stop stressing about it.

    A new event was that I am now taking low dosage of anti-cholesterol drug that the doctor prescribed. I am not sure if this is what is fixing my GA or my new clean diet or the red light therapy but the results are amazing. My spots are getting smaller on a daily basis, even the lumps under my feet are gone. I am actually positive now that all will be gone in a few more months.

    I think that with GA, it is an individual journey for everyone to find what is not right in your body and fix it. It is not from cream or outside elements but from the inside.

    Good luck to all!

    Carole

    • Posted

      Thanks Carole...

      Carole..what do you mean by lumps..as I have a few on palm of my hand...so strange..never saw anything about lumps on this site.

      Theresa..

      Take good care

    • Posted

      Hi Theresa,

      Little lumps like under the surface of the skin. I think it is another type of GA. I had this under my feet which was creating lots of discomfort and have a few more in the back of my legs. I can feel them when I rub my skin. 

      Cheers,

      Carole

    • Posted

      Me too...

      but a few on palm of my hands..which a doctor told me was a cyst...they have gone down a bit...

      but wow..thanks for pointing that out.

      xxxooT

    • Posted

      I'm glad to hear your GA is fading, but I doubt it is from the anti-cholesterol drug. (They're now finding that people with high cholesterol tend to live longer.  Cholesterol is the source of all your adrenal and sex hormones.)  I'd like to hear more about the red light therapy.  My GA seems to be fading out since I've been spending a lot of time in the sun this summer (without sunscreen).
    • Posted

      Very strange!  I was told to avoid the sun on the places where I had GA, but that was many years ago.  Of course, I always covered the GA up with long sleeves and long pants anyway because people would ask me how I got so severely burned, like in an accident.  So I avoided the sun for both reasons.  I'm still convinced that there's a hormone in our female bodies when we are pregnant because mine went away completely when I was pregnant, and then came back afterwards.  Couldn't there please be some research  about that?  And also the particular chemo I had when I had cervical cancer.  After that chemo, my GA almost completely is gone.  
  • Posted

    Hi everyone,

    It was so nice to find this! I have had GA ever since I was seventeen. I am now 27. Otherwise, I have no other health issues- no diabetes, no teeth fillings, no leg cramps, etc. I did have a pretty traumatic experience right around the time the GA showed up so that is the only thing I can link it to.

    It used to just be a small bump or two on my head and now it has expanded across my chest and sides of my neck.

    I have researched causes and cures for years now. I have even seen a couple of specialists. My conclusion is what many others here have made: the issue is coming from the inside, NOT the outside. I would avoid creams, steroids, pills, ointments, etc, as they seem like only a temporary fix and the GA usually returns even angrier- if even years after. As far as gluten, caffeine, etc, I think certain things may inflame the disease. I do not think these things are the cause of it, but I do think they can trigger it or make it worse so that may be worth experimentation in hopes to keep the disease at bay.

    Mine has progressively gotten worse/more inflamed in the past couple of months and I've been doing two things differently since then: drinking coffee every morning (after going 5 years without it), and laying out in the sun (after about 7 years of being very smart with sunscreen/avoiding the sun).

    I am now going to go back to wearing sunscreen, being smart about the sun, etc, and see if I can tell a difference. Then, after a month, I am going to stop drinking caffeine for a couple of months to see if that makes a difference. THEN, I will experiment with gluten-free dieting for a couple of months. I would love to find a cure, but in the meantime, it would be nice to at least prevent these triggers.

    I have read very good things about ROM testing, and it's the first true hope I've read about in years. However, their testing group was only six people, so I am going to wait until more people have been tested for truer results.

    Please don't stop posting on here. Since this issue doesn't affect anyone's health, there is little research poored into it. If we want a cure, we are going to have to be the ones who find it. Anyone know any bored and rich scientists?!

    • Posted

      Mine has gotten better after swmmng in the sea and then sitting in the sun without sunscreen for at least a half hour everyday all summer.  I'm still drinking coffee.  I've geen gluten free for 3 years which has relieved my optical migraines but not affected the GA. 
  • Posted

    well, I'm so healthy I don't even have a doctor....so guess I can't attribute it

    to anything...I do have RH negative O blood type....anyone else? I don't remember

    even anything happening to me stresswise when I first noticed it on my knuckle 30 years ago other than I had just gotten back from a trip to Mexico...don't know what that would have to do with it....

  • Posted

    I live in USA.  My husband was employed as a uranium miner for several years, and I became exposed to the uranium by hosing off his "diggers" on the lawn, letting them dry, and then shaking the dirt off.  Then washed them in the washer and hung them to dry.  I have always wondered if the explosure to uranium might have caused the granuloma anulares that I have had since the late 1950's.  I also got cancer in 2005 and had to have chemotherapy and radiation.  Believe it or not, one or the other of these treatments almost entirely got rid of most of the GA.  I had it on my face, neck, outer arms, and lower legs, but not my torso or thighs.  Most of the time I wore long sleeves and long pants to avoid the sun and also prevented the embarrassing questions about how did I get burned so badly.  Right now, I am awaiting a response from a team of physicians from Zintro (online) so that I can possibly be paid from a fund that our government has set up for uranium workers and others who were exposed.  I'll let you know the answer to my question:  Could exposure to uranium or other radiation cause GA?
    • Posted

      I've never had any exposure to uranium or radiation and I've

      had it since the 70's. So it never came back after you had

      your treatments for cancer, and its been gone for how long?

       

    • Posted

      Jayne, it's not completely gone.  I still have some on my legs, but none on the backs of my hands nor my arms.  I told the chemo doctor about the reversal and was hoping that some research might happen, but the doctors are too busy to do that, I guess.  It has been seven years since I had chemo and radiation treatments.
  • Posted

    Hello everyone,

    I am 34 years old and have been diagnosed with GA, as of a few months ago. I have had it since the summer of 2014. That is when I first noticed it on my elbow. I immediately thought it was ringworm, mainly because I had been cleaning put our pool and it was gross. However, it wasn't. a few things happened at the same time that summer including my stress level being extremely elevated due to my mother and nephew moving in with me. In the past I was also diagnosed with diverticulitis. I have only had the one flare up of that and that was back in 2010. But the summer that I noticed this rashes I was on the sun doe the first time since 2008.. In the sun enough to burn and tan that is. I was also bitten by a lot of mosquitos at once one day. I had over 30-40 bites. I was also diagnosed with scarring alopecia in 2012 which I am certain came from stress. Besides what I've listed I am relatively healthy. Rarely get sick besides the common cold. I believe GA is purely gut and stress related. After discovering the spot on my elbow, two new places have emerged. One on my side thigh. And a spot close to my belly button. anything the Dr has giving me does not work and he has told me it probably won't. He hasn't suggested me trying anything else, diet etc. I have tried rosehip oil, tea tree oil, and nothing has done the trick. I want decent, no gaat foods and I work out constantly. That is a new thing for me too as of Jan 2015. I am down 25 lbs but still a little overweight. I would live to find a cure as it is very unsightly. I am hoping my stress goes back down as my mother and nephew move out in a few weeks. Thanks for the feed!

  • Posted

    I was recently diagnosed with granuloma annulare as well as lichen sclerosus.  I found a link to an article on the NCBI Resources site asking whether it was a coincidence that the woman in the study also had thyroiditis. 

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