Constant Nausea and Vomiting for 2 years now. Doctors are no help.
Posted , 39 users are following.
I have no idea what to do anymore. I am at the point where I just want to give up on everything. It all started about 2 years ago when I was at a friends house eating some pizza and relaxing. In the middle of the night I started getting some severe pains under my right rib cage and some ridiculous nausea and vomiting. This lasted all night and I ended up staying awake all night vomiting. After that night I never really felt the same. I ended up going to the emergency room because I was in so much pain and I couldn't keep anything down. Doctors said that the pain could very well be gallbladder so I went to a hospital and got an ultrasound right away.
I ended up doing the ultrasound and doctors found no gallstones or anything wrong with me. They prescribed me omeprazole and sent me on my way. It has been almost 2 years since that night and I have been to the emergency room a total of 4 times. And I have been to a gastroenterology specialist 5 times and Have seen two other doctors as well. I have had a HIDA Scan which came back normal. An upper endoscopy which came back with inflammation of my esophogus but nothing else and many blood tests. I tried reglan recently and it did not help at all.
I am going to see my doctor again tomorrow but I already know what is going to happen. He is going to tell me there is nothing he can do, like always. I am at the point where I am vomiting a total of 10 to 15 times a day. My nausea is INCREDIBLY uncomfortable and only occurs after I eat something. The odd thing is the pain under my right rib cage is gone but my nausea and vomiting are MUCH worse now. Even drinking water has started to cause me discomfort and nausea. Most of the time its the worst when i eat something greasy or full of fat.
I am still convinced it has something to do with my gallbladder and pancreas but the tests say otherwise I guess. I don't know what I thought I would get out of posting this. I just figured maybe somebody out there has been dealing with the same problem. Maybe I can get some help. I am only 21 years old and I just want to have a normal life again. I have no idea what I did to deserve something like this but its just plain crippling.
3 likes, 62 replies
kandi4383 andrew37546
Posted
I'm going through the same thing!!! OMG, thank you!!
I have even seen a psychiatrist for mine...she prescribed meds, but nothing works!!! So it's not my mind!
The only thing is I get chest pain, and shortness of breath (randomly).
linda00674 kandi4383
Posted
I am.not a Dr. I would ask a gastroenterologist to do a manometry test. This will test for the amount of pressure you have in your esphogus to. Push down. There is a rare autoimmine disorder called Achalasia.
linda00674
Posted
This sounds so much like Achalasia. Martin Mueller IV foundation has a wealth of information about Achalasia
kandi4383 andrew37546
Posted
They HAVE tried to diagnose me with these GERD, gastritis, slowing, etc etc....
But NO meds have worked there either.
I have lost 150 lbs in the last two years (yes, very drastic weight loss, I know). I had 16 different DR appointments last month. I've had the GIs , and even the one where you drink the "glue-like" substance, and they X Ray the entire process. Nerve tests, blood work(Egh, the BLOOD WORK I've had), x-rays, CT scans, ultrasounds, stress test, venous, echo, EKGs, EEGs, and NOTHING! I know I'm not stating all the tests I've had...
Oh, blood was several DIFFERENT types as well.
Now, I can hold one thing down......sometimes I get lucky(3 out of 8 times)....a lunchable. Or random junk food....but mostly I will STILL throw this up!
I'm getting depressed watching people enjoy their meals.....it truly does sadden me.
lori85626 kandi4383
Posted
Have you had any break through or something that has helped yet? Please share and I will too if we ever find out
linda00674 kandi4383
Posted
Have they done a manometry test? I am nor a Dr but have a rare disorder called Achalasia. It is hard to diagnose and many Drs dont know about it. Martin Mueller IV foundation has a wealth of information about Achalasia
kusum80530 andrew37546
Posted
Have you found any solution for your problem? i am also faceing the same from last two years have tryed somany specilest doctors and hospitals but nothing is dignosed yet at last they are saying its just a somatic disorder even haveing medicens for that but still not working haveing littdoing vometing but little less then before. Please if some body know how to get rid of this please tell i want to live that normal life again
linda00674 kusum80530
Posted
I am not a Dr but someone who suff ers from this.They need to do.a manometey test to rule out a rare disorder called Achalasia. It is a malfunction if your esphogus. Many Drs dont know about it. Try Martin Muellers IV foundation. There is a wealth of information about it.
What you are experiencing is not in your head.
chriscollinsjr9 andrew37546
Posted
Hey my name is Chris and this same thing has been happening to me since January 10, 2017. I have been to the ER about 8 to 10 times and my regular doctor 5 times. They told me the same thing they told you. I'm at risk of losing my job cause I have to leave early a lot cause of vomiting all the time at work. I don't want to lose my job due to my health issues.
linda00674 chriscollinsjr9
Posted
I am not a Dr. Please ask for a manometry test. This tests for the pressure in your esphogus to push food down. There is a rare autoimmune disorder called Achalasia. Many Drs dont know about this. It can cause symptoms of nausea, not able to.keep food or even liquids down, chest pain. There is a foundation calked Maetin Mueller IV hat has a wealth of information about this. He even has an online support group
mari88837 andrew37546
Posted
Hi-
Just wanted to see if your symptoms have gotten better?
My husband has been going through the same thing for the last 2 months. Doctors can't figure it out.
Thanks
simon91544 andrew37546
Posted
Hi everyone,
I've had very similar problems with nausea and vomiting for more than 10 years now. I've had multiple tests and scans but all have come back negative. I still don't have a diagnosis but about 18 months ago, largely through my own research, I came across a medication called Domperidone which I subsequently requested from my doctor.
It really has changed my life. I'm still bad in the mornings sometimes and am occasionally sick and also have the odd 'bad' day but I can cope with that. What I couldn't cope with was how I was previously which was feeling constantly nauseous for weeks, sometimes months on end. It caused me to have quite severe depression and anxiety despite the fact that I had absolutely no history of mental illness.
I would highly recommend at least trying Domperidone as a treatment if it is available in your country (I think there are some international restrictions to its use).
Hope this is helpful to some of you.
Simon
sanya11314 simon91544
Posted
Didn't you have a gastric emptying study?
(It is really simple and non invasive and one of the standard tests for vomiting and nausea. Yet it is like fever, one doesn't know what the cause is even if 'gastroparesis' was like fever measured and 'diagnosed'.)
Domperidone and Metoclopramide are both gastric emptying stimulants, (but with side effects as well).
It always depends on risk and benefit
and a delayed gastric emptying test result is indicating to trial those meds.
Before Domperidone it is important to check the QT interval via ECG as it can elongate a QT and if it was already too long, it can be dangerous.
Also you need to watch out for TD (tardive dyskinesia).
Many people have no probs, but some have, hence never just get the med -as some do- via internet.
We trialed both,
Domperidone doing nothing,
Metoclopramide doing something (30min instead of 10min after food consumption vomiting and gastric emptying a bit faster), but got eye lid twitching (a sign of TD and still reversible), so had to stop.
Awesome if it helped you.
simon91544 sanya11314
Posted
Hi Sanya,
I was pretty certain I did have gastroparesis although this was largely self diagnosed. I requested a gastric emptying test to see if this was the case but was instead sent for an electrogastrogram which can apparently detect gastroparesis. The test however came back negative which was a bit of a shock. I'm not sure of the accuracy of these tests.
I was tried on Metoclopramide initially but like you had side effects, namely tremors in my arms and legs so I stopped taking them after two weeks.
I'm aware of the heart risks with Domperidone but I had an ECG for an unrelated matter a couple of years ago and that came back fine. After discussion with my doctor we decided that the benefits outway any risks with Domperidone for me so I was prescribed them.
Unlike Metoclopramide, I haven't experienced any side effects with Domperidone at all. I generally only take one a day when I get up in the morning, sometimes another later in the day if I'm feeling a bit queasy but the change I've experienced since taking them has been amazing.
My symptoms were just pretty much persistent nausea with some vomiting. It didn't seem to be related to what I ate or even when I ate. The only thing I'm careful with now is not eating too late so that I don't go to bed with a full stomach as this can cause me problems. As I said, it's not like I'm totally 'cured', I still have odd bad days and am sometimes sick in the mornings (usually throwing up the coffee I've just drunk) but the improvement in my health since taking Domperidone has been fantastic. I've had this condition (whatever it is) for more than 10 years and had almost given up hope.
Dumbpuppy simon91544
Posted
God bless you. I've had whatever this is for over 15 years now. Still searching for some relief. I'm in there now because I'm tired of being sick and has really worn down my spirit. I'll ask my Dr about these meds also. Thank you so much.
lori85626 Dumbpuppy
Posted
linda00674 simon91544
Posted
With gastroparesis you need to eat small amounts of food..like 3 oz 6 times a day so that your stomach can handle food.Also I would suggest insisting upon a manometry test. It measures the amount or lack of pressure your esphogogus muscles have to push food down.
What you all are describing seems so much what I went through in 2014. It took Drs 2 yrs to diagnose me with a rare autoimmune disorder called Achalasia. Many Drs. Are not familiar with it. We have to get 2 nd and 3 rd opinions. Cleveland Clinic, Northwestern Hospital just to name a few are specialists in Achalasia and esphogial. disorders. There is an online support group Martin Mueller IV Achalasia foundation has a wealth of information and support. I urge eveveryone to seek them out.