Deciding to refuse cardiac catheterization.
Posted , 9 users are following.
After doing the best I can to ferret out the risks vs benefits of cardiac catheterization. 92% of my brain says, "No." That niggling 8% is a real pain.
I am female. I am over 60. I have not had a myocardial infarction, (that they're telling me about anyway). I have some stress wall hypertrophy, but that's pretty much it. If I could get the physicians/cardiologists, to give me better evidence of need for such an invasive procedure, I might consider it...however...
I know me. Just having the procedure would be psychologically, and, therefore, physically, ruinous. I think I understand - but who can understand this really - that choosing not to have the catheterization, and whatever may happen as a result, means I might sign out quite unexpected. But is this a better way to live? I think so.
I have not felt "well" for at 7 years. (I'll spare you the ailments). However, I don't get colds, flu (no vaccinations)...I don't have hypertension. I'm told I have angina, but I am convinced that the post-meal sensations I get are due to gastric/diaphragm...more on that order of things. I don't have frank chest "pain."
I'm figuring that it will be a complete craps shoot to refuse the catheterization, but I am 100% certain, that there is a better chance of me surviving an invasive procedure if I don't die before I have it, then lending myself to what looks like a never-ending routine of invasive procedures.
What I'm currently hoping for, but have been unable to get, is a cardiologist who will agree to fully monitor me; one who truly understands the various medications available and who would find one that is best suited for this particular body, and who considers cardiac catheterization, et al, a last resort, rather than a first. (Nice fantasy).
So far, I've had the general practitioner I see, attempt to scare the hell out of me without telling me on what evidence he was doing so. (I would change to another GP if there was another one around). That kind of tactic is not only useless, but demoralizing. When it comes to "heart," demoralization can, without a doubt, lead to "heart trouble."
It's all a quandry.
3 likes, 46 replies
morten13561 Quandryite
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Quandryite morten13561
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kathy80717 Quandryite
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For some people following the orthodox route is right but for the odd few that are worried about that route, we follow our instinct. I would like to stress, these are only my points of view, I am not advocating any particulsr route for you to follow. I wish you a long and happy life.
Quandryite kathy80717
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ani225 Quandryite
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What I want is this: Proper meds that can keep my heart healthier, I will take them, I have read that low levels of statins are good to keep attacks away. I do have a grandmother who died at 84 of congestive heart failure and an 88 year old aunt with a likewise compromised heart.
What I do not want: invasive tests that may lead to a "never-ending routine of invasive procedures".
Is it true that stents will not prevent a heart attack? I thought that they held back plaques that then would heal over and be less likely to send chunks of crud drifting into arterys to cause heart attacks?
Quandryite ani225
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You are 100% more active than I am, and I have been feeling worse. Ironically, I was searching the internet for a discussion that would help me decide whether having an echocardiogram, (which would be read by my adversarial cardiologists), would at least give me more information; how much, if any, change since last year. The first result was my post.
I have every possible risk factor with the exception of diabetes, and a AAA family history of early deaths. Still, the fear of putting myself in the hands of a bad technician, or the risk of the procedure itself, has not abated. I only take a 1/2 dosage of a beta blocker, and regular strength aspirin, for medications. I have refused statins.
You have a high level of activity. Getting yet seems reasonable. Plenty of people "may" have blockages. It's two months since you wrote; have you had anything done, or are you still researching? I don't quite understand being told that your heart wasn't pumping enough "oxygen."
ani225 Quandryite
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I got a CT Calcium scan on my own and had a "0" score which I reported to my cardiologist who said that he had told me "it didn't show blockages", I would still need a cath.
After much research I was able to find a cardiologist who routinely uses noninvasive CAT scans to follow-up on inconclusive stress/stressecho tests. The scan showed that I do not have any coronary artery disease, so a heart catheterization was not needed. I spent 3 months worrying and exagerating every little twinge into a possible life-ending event. I do not know why this noninvasive procedure is not used more? It is less expensive and involves less radioactivity than the cath. My insurance was wiling to pay for it as well.
During the time I was researching and waiting I heard several stories from people who benefited from the heart cath as they needed stents to open blockages. They had symptoms/conditions that I do not have, extreme fatigue and bad diets being the common ones. The experience I had of living with a fear that my heart would suddenly cause my death or that I would slowly die made me realize how horrible it can be and what a position the cardiologists are in helping people survive. A great deal of compassion and patience is needed. In a way it is good that the "cath labs" have evolved as they have perfected the process, there must be few complications - and now there is the radial approach which has fewer complications as well. My original doc does not do radial caths. I still feel that if there is a noninvasive procedure that can show the same thing, it is the way to go. You should get a CT calcium test and then a CAT scan if you are worried even though the docs now say you don't need an angiogram. The doc showed me the images of my heart and explained how they showed no blockages, it was amazing!
In the months before the CAT I daily took 81mg aspirin and 100mg Co Enzyme Q-10, nonperscription drugs that I read might be beneficial.
Quandryite ani225
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I have a call in to schedule an echocardiogram, but I will not have it done locally, nor will I have it read by the cardiologist I have seen. The problem with any of this is that I cannot tolerate more stressors. I'm sick of any physician using scare tactics for any reason whatsoever. And, sure enough, if they look hard enough, they'll find something. On the other hand, my quality of life is decreasing. I'll keep after getting what I need in the way I need to receive it. Otherwise, I don't want the hell the practitioners can put you through, whether it's heart, or breast, or what have you. I couldn't take it.
So. Regarding the radial angiogram. I have a sense that women may be better off with the femoral approach. Just a hunch. Or, maybe it is that after 40 years, I can still feel pain where I had a saline drip in the vein in my hand, post-partum. I can't quite bring myself to buy the Q-10, but my sense of that is that it is worth taking. So is having some fun.
I am very glad that you are having better health.
ani225 Quandryite
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I had constant chest pressure with the stress of not knowing if I had something seriously wrong or not. After the CCAT and seeing the images with the cardiologist and knowing I had no blockages it went completey away! The reason I took the ubiquinol was because I read it was perscribed in Germany and Japan for congestive heart failure and that it could help the veins heal fom the nicks and scrapes that might happen during the heart cath I was worried I might have to undergo. Also, a famous east/west medical doctor who has congestive heart disease in his family said he takes it along with a low dose aspirin, a minimal amount of a statin and Omega 3 to protect his heart.
ani225
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Diagnosing Cardiovascular Disease in Women: The Role of ... www.medscape.org/viewarticle/733869 2010 - Rita F. Redberg, MD; Leslee J. Shaw, PhD; Timothy Bateman, MD .... While women also get obstructive disease, microvascular disease may ...
ani225
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Quandryite ani225
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Well, it's been 9 months since the last post. Now, I've become uncertain about having a straight echocardiogram, although one is scheduled for this week. I am all the more sure that the stress from whatever I am told - and I am sure there will be evidence of worsening of condition - along with whatever options I may be presented with, will increase my level of tension to the extent that is extremely unhealthy. Yet, I think an echocardiogram should be a reasonable step. If I had a good relationship with a physician involved in any of it, maybe I'd feel more comfortable with it all. Or, if there were better local resources - which there are not. Most options are completely geared toward males, and that hasn't changed in the past 9 months, you know? Whatever I would be told about cardiac/vascular condition - not worse would be the only information I could handle. Anything more -- no. "But"
thomas39448 Quandryite
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Quandryite thomas39448
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thomas39448 Quandryite
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Nana783 thomas39448
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thomas39448 Nana783
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