dermovate ointment

Some other sufferers were asking the same thing about traumatic experiences, there is so much on here for you to look at which may help, alternative treatments etc, although I would suggest keeping up the treatment if possible and if it remains sore, go back to your GP., especially if the op is some time off.

Once you can get it under control, that would probably be the best time to try alternative treatments unless you just cannot get control, in which case the alternative methods may be more helpful, it is a case of trial and error, I'm afraid, so many of us are trying different things and if they help, or may help, we post on here.  So, you've got some reading to do!

Good luck.

I am so sorry to hear you have LS.

You clearly have some good, strong instincts about the cause of your condition...I urge you to pay attention to these instincts.

There are others who are very clear that abuse was the causal factor for them and there are some detailed accounts here for you to peruse. I think they may be within the Alternative Medecine section. You might check 'cured but it took work' and sequelae. Other testimonies are in and around there. This was a very generous sharing for the benefit of others.

I am following an energy medecine treatment.

The woman who undertook her personal experiment with this method has written a book. She succeeded with her own healing ...she not only recounts her experiment in defeating the disease....which at the moment is said to be "incurable" but makes the details of the process available for others to follow should they wish to do so.

Its rather a tense time on the site here at the moment as we await  anouncement of the book.

Obviously I wish to share what I can, but in my own way, please, and cannot yet respond to the various questions (and inevitable rejections-in-advance), of this technique. It is understandable that people will want to protect themselves.

Frustrations arose due to the fact that I was unable to upload a picture of the covers ...on the back of which the author explains her story. I am one of the people following the author's methodology. We might be able to form a group of 'test cases' and work together to support each other. That is my hope. Further announcements will be on the Alternative site but as most women come here first in search of a way forward I would like you to know that there are options.

The book will be released soon and details wil be put up in the alternative meds section. The author has offered to answer any questions and suggests I compile a list which she'll respond to asap. 

The author has been verbally attacked in the past and rejected from a site similiar to this in the US. She makes no claims for anyone else but wishes to share her methodology.

I want to protect the author from further aggressive questioning or insulting comment but if all goes well I hope she may come on here!

I hope this gives you some encouragement.

With love marey x

The treatment works very gradually. I expected too much after six months, but now that it's been a year, I'm very good. If you reasearch the Koebner Phenomenon (or effect) you'll see why sexual abuse is a factor in LS.

That red area around the anus causes the most discomfort for me. I also was badgered to try out the 'back door' in my twenties (I'm 62) and I'm sure that didn't help. I've confirmed that greatly reducing sugar in my diet seems to take the gasoline out of my excretions and that 'ring of fire' has calmed right down. Quickly, as in two weeks. After that I admitted to myself that coffee relaxes my bowels and cause very loose movements that are caustic to that same area. I gave it up in two steps to avoid the worst withdrawal headaches. My gynae was very impressed, as I happened to have my regular appointment (twice a year) after that. I really proved to myself that it's sugar the other day. I had a veggie pita – very healthy – and with it a tiny mango smoothie, which I guess had a few spoons of sweet frozen yogurt in it. And last night (it takes one day!) sure enough I had an angry red area around my anus.

So, I'd say do your best to keep it all as dry as possible. Use something the consistency of petroleum jelly all day to keep urine from coming in contact.

I really hope that helps. I wish for your sake the Dermovate (Clobetasol) could work faster. The fact that you already have VIN on a patch of skin means you really don't have time to experiment.

That said, seeing your GP or a dermatologist to be sure you're not having a reaction might be a good idea. Eyes on the spot are important. Describing discomfort to each other here is so relative!

Keep us posted. Glad you came.

I'm having real problems with my old computer and it will only let me reply here. I'm getting a new one next week thank god. Thank you all for your responses, they are very helpful. I'm going to contact the consultant who diagnosed me as I have an email address for him as after looking up the side effects for dermovate I'm not sure all this soreness,redness etc isn't to do with the ointment as before using it i only had a bit of itching around the anus. Now it's getting sore to sit down!  And in my experience with medicines, if there's a bloody side effect I'll get it. Re the alternative stuff my friend said she knows a kinesiologist who is treating a couple of women with LS, but i don't know more than that. I'm tempted to stop using the dermovate and see if the soreness goes away, but like you pointed out Morrell, I may not be in  position to experiment. I've had the anal itch for at least 10 years so I must have had this undiagnosed for a long time. It's really starting to get me down, especially as i now have symptoms I DIDN'T have before using the ointment. I don't have a lot of faith in my GP re this. My genitals and anus feel increasingly like they are on fire! I have been doing the bath and rubbing it in for ages and I don't think I'm using too much. I'm increasingly looking like the barbie doll someone mentioned down there. So, if that's progressing so quickley, maybe so is the soreness. i just don't know what to do!

I don't see how to find the alternative treatments section of how to find the entry you mentioned cured but it took work. I only seem to be able to see posts related to something i've repleid to or posted myself.............. the search bit didn't help. Sorry, i'm not brilliant with technology and I've never used a forum before........ x

this is the link - it takes nearly and hour but it is well worth  listening and seein ghte slides

Best Wishes

Sue

ps This is the only link that the moderators allow- as it is NOT a commercial site

Trying to sell on this site i believe is totally unethical- there are other places to sell goods and wares. There are too many people desperate ffor help who could be persuaded to buy or undertake inappropriate items and activities. DO take great care

same problem, I can't reply to your post. Thanks for helping, i have watched the webinar. Have you had a reaction like this to dermovate, if that's what it is? It's getting worse daily.....................................

sorry you have become one of us.  I began this 'adventure' about 32 years ago.

My husband passed away after many years of illness and the stress for me was

more than I could cope with and I do believe that  stress is the culptrit. I sat on ice cubes for years for relief which did not work and Doctors told me to stop being so silly that there was nothing wrong.  Cortisone helps stop the itch but not the problem.  The first to disappear was the clitoris which is still there but covered over with scar tissue.  Next the inner labia went and now the outer has all but gone. I too look like a barbie.  I would love to have all my parts returned but I

don't think that is possible.  I have noticed the use of the letters VIN - what does

that mean?