1. Community
  2. Women's health
  3. Lichen Sclerosus

Diagnosed today and I feel sad

Posted , 6 users are following.

patricia22367
patricia22367

I saw a doctor twice who told me it was nothing and to put Vaseline on it but luckily there was information on the internet so I went to get a second opinion and it was confirmed to be LS by biopsy.

I expected that diagnoses since my spots looked just like the pictures but still I just feel sad now.

I already have hypothyroidism, tinnitus, and I also just found a mole that is changing and a new mole that I never saw before.

Just overwhelmed now and sad.

1 like, 8 replies

8 Replies

  • SnappyCat
    SnappyCat patricia22367

    Posted

    Patricia - Oh, dear...most of us have another variation on autoimmune disorder...for me it is thyroid (I go for another scan next week, as the nodules are growing).

    You can handle this! It seemed to take me quite a few months to get the swing of it...for me, that meant learning how it seems to react with external yeast infections, UTIs, and food. But, to be honest, the dietary changes are good, and this forces me to be compliant. Didn't want to know as much about UTIs as I now do, but there are all kinds of good people who share their wisdom.

    You got this! It will be ok! In the big scheme of things, it is way better than the news other people get! You will do just fine...you'll just need to learn how to manage it and how to be a good advocate for your own health.

  • beverly52803
    beverly52803 patricia22367

    Posted

    It does take a while to absorb the news. I hadn't a clue. Knew I had atrophy and thought I was getting an infection. Then was examined and got the surprising (to say the least) diagnosis. Assume you have been prescribed a steroid; it makes a big difference. Like most of us you will probably become obsessed with figuring out LS affects you personally as we all seem to have different renditions. This site helps as you won't be on your own.

  • Nancy_K_B
    Nancy_K_B patricia22367

    Posted

    Dear Patricia 22367,

    Yes, It is shocking at first! Please take heart, it will get under control. I"m 73 and only discovered the LS 2 years ago. They weren't even positive that it is an autoimmune disease then. BUt I went searching everywhere on line and found it.... and oh, so much more about autoimmune issues in general. I too have hypothyroidism. Both of these are autoimmune diseases.

    I learned that a researcher has found that if we have one autoimmune condition we are at risk of up to 7,SEVEN other ones. So then I went in total full on research into what I could do about that! NUTRITIONAL DEFICIENCIES etc.

    I feel comfortable now, and it takes a firm commitment to a food change and supplement routine and being sure to drink enough water, and sleep enough, and no sugar etc. But hey! it's all doable and will become second nature- smiles. really.

    IF you like here are my messages on here of what I discovered. These should give you a great start.

    https://patient.info/forums/discuss/pathway-into-and-out-of-autoimmune-diseases--661033

    https://patient.info/forums/discuss/nutritional-support-for-autoimmune-diseases-updated-for-several-skin-disorders-641279

    https://patient.info/forums/discuss/aloe-vera-gel-with-tumeric-essential-oii-best-healing-ever--667353

    • patricia22367
      patricia22367 Nancy_K_B

      Posted

      Wow, thank you so much! I will read this, I definitely don't want more diseases, I can't believe my doctors never said anything about changing my diet, they say to eat whole foods but nothing about avoiding or adding specific foods...

      Thank you, I do feel a little better each day already.

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.