DIVI DINERS

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Returning from a hospital session of Drips and Deprevation (food) I was handed a Low Residue diet to follow. Scant in products,and information what to do with said products, I searced the web for more information, 

onlt to find contradictory eat's and don't eats, so I thought that WE the 

sufferers of food deprevation should start our own Divi Diners club and see if we can throw some light on the subject.

Ilove mushrooms,but cannot find any info about them.

How do we achieve our five a day if we can't eat fruit? Is it O.K. to take the

skins off?

Can we have chips or roasties,or fish with batter on?

Spices, do any of you use spices. and what do you put on spaghetti?

Can we blitz veggies, as stews and casseroles are forbidden?

Pastry is allowed, but no mentoin of which type.

So. can we help each other ,then at least when ,or if we ,dine out, we can

order something from the menu.

I cannot eat boiled potatoes ,eggs (is it O.K to have a fried one?)

jelly and rice pudding for ever. .

So please join in and share your doe's and dont's. mushrooms eaters

would be good to hear from.

                                         

13 likes, 1185 replies

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  • Posted

    Need to ask about flavoured bottle water.Still, or sparkling,? can't drink tap water and wondered if the acid content, would cause any problems as I am told to avoid acidic products I appear to be replying to myself, , whatever!!!!!!!!!!
  • Posted

    Jacqui

    Why can't you drink tap water?  Don't know about flavoured drinks but do avoid them if you think they are acidic.

    There's an American Professor who has written a paper on D. He KNOWS that the sole primary cause is due to acid foods.  Can't remember his name but you will be able to Google it.  I eat Coriander, Basil, Marjoram, Oregano and other herbs (which I grow) and other Swartzkopf dried variety with no ill effects.

    What were you going to tell me that was barred by the.. moderator?  

    What a hoot - we all answer ourselves.  It's reassuring.  Jon

    Emis Moderator comment: I have removed the email address as we do not publish these, please use the Private Messaging service if required. If by "barred by the moderator" you mean the misplaced reply by Jacqui I copied it into the post further up this thread here https://patient.info/forums/discuss/comment?discussionId=246516&commentId=440644

     

    • Posted

      Hi John

      I know of a nutritionist, Sherry Brescia who says that the worng combinations of foods causes acidity too! You should look her up.

    • Posted

      Thanks, I will,  It seems as if acid/acidity is agreed to be a problem by thse 'in the know'  Jon   
  • Posted

    Hi Jon,  I find it a bit creepy that we are being  "Big Brothered" Tap water ----

    I can drink it but there are chemicals in it, and sometimes the fluoride is quite strong. Here we go again with contradictory info, I asked the gastric team If  I could mix the removal powders with flavoured water, and the answer was yes.   I said that I was having plain yoghurt for pud last night (allowed ) ,but not any more. I blew up mega.  I

    A funny thing happened on the way to the Forum. an advert had snook into my

    Gmail that was advertising Colonic irrigation, I thought what a good idea, if our pouches were given a good mine sweep once a month to remove all the debris that causes the inflamation and consequent pain, it might save us all a Lot of pain.

    Jacqui

    • Posted

      My son in USA says colonic irrigation is widely used there fir DD but when I asked my GP he explained the dangers given that the gut lining is subject to bleeding in DD. Not a good idea methinks
  • Posted

    Hi Jacqueline, I was told tap water is acidic and to use a filter jug.

    Regarding the colonic irrgation, I would have thought that the wall of our colon is thin in places and a gush of water might just break through.

    If you drink plenty of fluids in the day you should clean out your colon fine.

    • Posted

      Hi DG, I wouldn't have thought of that, thank you, anything to keep the pouches clean and bug free

      Jacqueline

    • Posted

      Hi the council came out today to check progress today most of mess cleaned up take away again for tea still no gas or hot water as plummer could not get till after 10pm

      space made in bathroom no more un planned holes today all patched up be good when done as mom will be able to get back to bed and have a shower

      just got to finish cleaning up will take 4 weeks for dust to settle trying to fill job applications in tonight finding it hard to dell myself

    • Posted

      save the forms until tomorrow Donna If you are tired you can easily make

      mistakes. Have you eaten at all today ? no food is as bad as too much

  • Posted

    Ha! Ha! Jacqui.  What a great idea.  I know that film stars (and, I believe the late Princess of Wales) had them regularly.  I think you've hit the nail on the head - it's got to be the answer  AND we will all be lithe and (beautiful) again.  It was once said that I could have the pick of the orchard - maybe again.  Is it worth enquiring.  I imagine it would be a private clinic.  I don't care... anything to rid me of this troublesome (priest) disease.  I trying to compete with your metaphors.

    Do, do be careful with tomatoes.  They are so acidic and make me really upset.  My wife does them as a chutney type of accompniament to salmon dishes. That suits me OK.

    Sorry Moderator. I picked up the thread again.   Jon

    • Posted

      Hey, I'm finally getting the hang of this forum, Don't quite know how a reply came via my Gmail . Tomatoes ,which Ido (did) enjoy ,by the time   I had deseeded and skinned them, there was hardly anything left. I wondered if tomato paste has any squashed seeds in it.

      When I go for my Colonoscopy I will ask if irrigation is a good idea.

      Not until July.

      So, which fruits are you picking from now ,seemingly I can only have  fresh bananas, otherwise it's tinned, or stewed .

      I 'm glad you are on my wavelength Humour is my way of dealing

      with bad thingys.

      How come you get away with eating  items on the NOT allowed list?

      What do you think about DG's suggestion of filtered water.?

       Jacqui 

    • Posted

      I don't filter water because tap water works fine for me.  DG is right in saying to drink plenty - but not too much it can have other problems not associated with D.

      Bananas, Pears, Mango. ( Stawberries, Raspberries (sadly) and rhubarb are most definitely out.  Bland is the word. 

      I just thnk that it really boils down to trial and error.  I have found out over the years what does and doesn't suit me and I feel tht is the only real way of finding you own diet that you can live (reasonably) comfortably with. This is why there are no definitive 'diet fits all instructions' because what suits one doesn't suit others.  This why your forum is such a good idea. Nothing acidy, seedy or pippy.  Trapped wind and farting are my biggest problems and DG's suggestion to try charcoal tablets didn't have the desired effect. Don't give up on G&T - it's relaxing and the quinine in the tonic is good.  Jon

    • Posted

      Morning Jon,I know it's early but it's my last day of freedom. I have to collect ma from respite, she too has a black belt in farting,and no obvious reason. Iv'e put "new" Jo onto your scriptures  I enticed her away last night.We shouldn't have to do Trial and Error there should be a dietician attatched to the Gastric clinic, that is if there is a  clinic  I don't 

      know if we a problematic group who cannot be helped once we fall off

      the exploratory belt  The Gin is safe from me Grand Marnier is my

      tipple ,no doubt that will find it's way on to the no's Strangely there wsa no mention of alcohol.Maybe it's the green stuff that you are consuming that is causing your flare ups Greens take time to digest and. probably sit in your pouches and become compost heaps? See if happens, but don''t eat a shed load .at oe go .just to prove a point, tooooooooooooo painful

      Jacqui

    • Posted

      Early mornings are no problem.  If I do sleep, I can't remember it!

      My Consultant refrerred me to my dietician who practices at a clinic 30 miles away!  She was good and O.K. if you can drive (or have a bus pass)(which you won't have soon if Clegg has anything to do with it), but it's unacceptable for those who can't travel 30 miles.  You are right, a dietician should be attached, certainly to the hospital (other illnesses do require dietary advice). Yes, the stronger brassicas do not sit well with me (is there a pun there?) but I can cope OK with cabbages, tasteless cauliflower and some roots.  I don't eat spinach because I always think it looks like cow's s... and the taste is awful. If you are a farter too, you could try harmonising with ma.  I tell my GP that I can walk the whole of Waitrose store farting.  We may joke but it is just awful, inhibiting and a social barrier.

      Good luck with ma.  John 

    • Posted

      Hi, better late than never,ma takes up my time,and is possibly the cause of my membership of the "mile high stress club" You are two rungs above me, I have neither a consultant nor a dietician, but fortunately I now have you lot. Can't join you in the farting game probably because I am not eating the right foods!!!!!!!!!! Yes I do drive. and on the 11th of june my licence will be clean again Driving is my main pleasure in life. and bacon butties .No one has mentioned wine

      is that off the menu?.

      Jacqueline 

    • Posted

      No (to wine) not off the menue, I mean.  Not for me anyway... and keep driving.  (mine is clean also but hasn't always been). Jon
    • Posted

      South, of course (where is North?).  I was always told that England ended at Guildford!

      Don't be off-put by no wine - but drink  a 'good full bodied one' if you do.  Cheaper are vinergary and thus more acidic.  Juliet (like me) enjoys a glass of brandy.  It is known to aid digestion - thus soothing the digestive tract... and, if you drink enough - you might even forget your ailments (of course I am not seriously suggesting over-indulging).  Iv'e just had a health check and my diet has been pronounced as very good - as is blood pressure (that of a 21 year old!) and cholersterol. A star for the dietician, maybe but it still doesn't prevent the discomfort, bloating, pain, farting that this horrid disease brings to us. 

    • Posted

      OK Jon .sorry to hear you live down south, some one has to. I can see this forum turning into a dypso  one  Glad to hear you are (allegedly) asfit as a 21 yr old, but yer still got a shed load of baddies that you solve with 

      wet stuff. As you may have just read, Juliet and I are on the vitamins and supplements trip, do you take any, or been inspired  by our swallowings? Juliet suffers from Migraine ,I understand that is a real bummer , OOOOpps  no pun intended  ( I lie )

      Iv'e just had my first  rasher, all seems quiet in the pouch department. 

      I have a list of Ailments that would cover your shirt tail, but on the whole they all get the same treatment  ignored,  except for this evil toe rag.

      Ma will be enjoying some strange meals until the freezer, store cupboard and veggie box  are all clear of all my no-no'''s.

      North is best, we have just as good Diverticulis .

      Jacqueline 

    • Posted

      Hi Jacqui.  No I don't take Vitamins at all.  My diet, I understand and know, is suffuciently good to not need supplements. A 'craze' started by the Yanks who really didn't need them at all.  Sunshine is a good source of Vitmi D.  Do you have  a sun in the North?  I'm gonno tell your ma if you misbehave. 
    • Posted

      I am so pleased you have enjoyed your rasher - let's hope it does not disturb anything!  Reading all this, I have come to the conclusion that my DD must be comparatively mild, even though it didn't feel like that when I was hospitalised for three days with intravenous antibiotics....  Fingers (and sometimes legs) crossed.
    • Posted

      hi  Juliet, the rasher is still in there,hopefully not in a pouch. Seems you and I have had the same experience , In bed with three drips!!!!!!!!!! Like taking the dog for a walk twenty times a day, because I could pee for 

      England. during "the cure" I felt rathe"orrible when I came home probably drug related. I really  want to know how to keep the pain away

       Food and stress seem to be highly suspect. Have you noticed Jon's

      rather blase attitude NOT taking vitamins ????????????????

      Jacqueline

    • Posted

      did you not say, a few messagesago ,that you had suffered a bit of a turn. and that your doctor had suggested that it was probably something you ate? How can you get all the vitamins and minerals on restricted foods. 

      It's 8-30 pm, and the sun is shining like it always does Up't north .I've thought of Rent a Wrinkley club, no charge of course. I have to tell you that she is 96,and eats anything and everything, and looks like a racing snake. 

    • Posted

      Hi Jacqui.  Yes I did.  I think that becuase he knew that I's just come back from the Caribbbean that I had eaten something 'strange'.  Who knows what caused it.  It was 'just' another bade flare-up.  My diet isn't all that restricted - over the years I have learned to avoind those things which I know upset me and try to keep the diverticuli free of seeds and the like.   don;t like hot (spicy foods) particulary because they can give me problem.  However, a chap n this forum some months ago (before you started this thread) said that he never felt better after eating curries and the like!

      I notice that a lot of respondents are 'blaming' stress as the main case.  I don't doubt that stress plays it's part (i had a very stressful job) but if this is the case, how on earth can an intake of unnecessary vitamin supplements help? Stress is a psychological disorder which can be helped by chemical treatment (bezodiazipines) not vitamins.  Good old ma. At 96 and in rude health - ask her what the answer is! ps. My eldest sister (lived in Cheshire for 60 years) has just dies.  Another sister (lived in York for 60 years also) is housebound. My late in-laws were from Scarboro. I love the North.  Jon

    • Posted

      I wouldn't say I blame stress, as much as it is a factor.  Unfortunately stress is a part of daily life.  My body may react by a flare or a migraine.  Oh joy...   Hopefully the supplements cover any shortfalls that I may be unaware of.
    • Posted

      morning Jon, concentrate The vitamins and supplments are NOT for stress,they are for boosting the  Vand M's that the body is lacking, for one reason or another They are not chemical based and do no harm. Some forward thinking doctors do actually encourage products to be used. Chemicals are not always the answer and to be avoided if at all possible. Stress, and levels of it seem to embrace a huge number of people amost of know we have it and the reason it has crept into our lives. ,and find difficulty in coping with it Chemicals to my mind are not the answer The ability and the chance to talk to people about their problems and people who will actually listen is an enormous help

      Being told to "snap out of it" and given a pill is not the answer. Yes ,

      cotributors to this forum feel as though someone is listening and CARES and undrstands that stress is not a Grimm' fairy story .,

      Now ,I used to live ,just outside of York, and a very good friend of  mine, had a close friend who lived on a barge in one of the locks who died a few years ago ,

      Jacqueline  

    • Posted

      Jac. You are so right.  I concentrate all the time.  Cognative thereapy is so much more effective than chemicals. As a trained Counsellor I have worked closely with the medical profession and many of them do not advocate the taking of supplements.  I didn't suggest that the taking of V&Ms were from stress.  I simply said that many of your contributors were suggesting that stress was a root cause of their Disease and, at the same time, saying that they were taking V&M - suggesting that the two were linked.  As a Counsellor (which I still am involvedd in) they key to good counselling is the ability to listen.  Just to ask open ended questions and allow the 'client' to talk is the answer - not, as you say chemicals.  Jon
    • Posted

      JB  See my response to Jacqui.  I would't want to be misunderstood or antagonise. Jon
    • Posted

      hi Jon been cruising Derbyshire today  through Chatsworth to Aaahh at the deer,  then on to Bakewell to visit a cafe that we frequent, pot of tea, and  hot butterd teacakes , then I realised NO fruit, another one of my 

      little pleasures squashed i could hardly sit there picking the raisins out  of  the cake. I also gave some more thought on the stress /divi connection which might have a grain of truth, when people are stressed, depressed, unhappy ,food is often used as a comforter, and the longer the situation goes on, so the eating goes on, and the stomach and/or the bowels must start protesting and fight back, and problems arise Just seems that all things connect. somewhere,  from brain to bowel. 

      Jacqui

    • Posted

      Hi Jacqui.

      I like your thought process and am now beginning to wonder if there is a connection.  It has never been suggested to me in all the years despite the fact that my early retirement due to stress and sanctioned by the Treasury Medical Advisor ocurred at that very time that D was diagnosed.  We know, of course, that the medical profession hone in on the problem that one is visiting them for - never looking at the problem iin an holistic way.  I think we should take this up.  Nice trip you had although I think the house at Cahtswoth (like many, many others) should be seized for the poor  and needy .. and Bakewll has a lot to answer for - the police are always hounding their Tarts off the streets.  Jon

    • Posted

      morning Jon, have to say Bakewell tarts indeed need to be binned Yukky taste. I think you are just jealous over the fact that I live about 20 mins from Chatsworth, It is siezed and over run by the poor and needy who have free access to the whole of the park Charges to enter the house are needed to hoover the carpets every day Though I have one complaint that I keep meaning to write to the duke about ,the access lane to the garden centre is an axle breaking trip,and my low slung driving machine takes exception to being driven like a two year old, avoiding the mega pot holes. No one will tell me if anchovies are O.K baby bones and skin .

      Juliet gave me some good advice , eat what you like until it hurts, (I jest) but she did say slowly slowly test the untouchables. 

      It's another gloroius day here Up't north ,so I am off to a car boot for my constant search for  "fork  'andles"

      Glad you thought my brain/bowel idea was possible.

      speak!!! soon  Jacqui

    • Posted

      Anchovies are fine, Jacqui.  Even if they weren't you have got to have them.  How bland food would be without them. I want all stately homes (the very word makes me sick) to given over to the Nation, and, everyone forced to become a Republican. We 'did' a car boot sale last weekend.  Never before or again. I hid behind the car and allowed my brother-in-law to sell our precious goods.  We made £16!!.  Mangoes and Peaches are a good desert.  Have you tried?
    • Posted

      just returned from the car boot or no car boot I was half way there and down it came, so I am back in bed with a coffee trying to get my blood up to room temperature You are not supposed to take rubbish to boots  ,itcan be spotted a mile off.  Don't suppose the Queen would be very taken with your idea of turning her residences into squats ,and what would all the tourists think seeing washing hanging from the balconies

      of Buck House. Yuo need to go to a rescue centre and cuddle a few puppies High horse comes to mind Jon.

      and be very careful where you puke ,or take something for it !!!!!!!!!!!

      Love mangoes and nectarines, all fruit except grapefruit.very fond of strawberries, living in Southern Irelands strawberry county they were for

      sale all along every road side.  but now I know they have to be avoided

      Will power or pain, no contest

       

    • Posted

      Hi Jacui.  Back from latest holiday to North Cape and the rest of Norway. Should have stayed home.  Weather lousy. Just had a quick trip upt' North to attend my sister's funeral.  The second sister in 2 months - and a nephew in  between.  Puts DD in perspective but no consolation for this bloody disease.  Still (of course) getting almost daily bouts of incredible guts ache but no real flare up's for months.  Still sticking to my dieticians regs.together with my own,' self imposed' restrictions. Hope you are coping.  I hope this forum which you started and I feel to have contributed to, has helped/reassured the many suffers. Jon 
    • Posted

      Here you are, thank goodness Sent you a mail on 30th, as instructed. but no Jon  Sorry about your sisters ,and your awful holiday, and it sounds as though your D.D has been running circles around you. Now we have the job of getting you back on track.

      Lots been going on, you will have to play catch-up, and read LOTS of

      posts to get the  threads of what has been going on

      We all seem to be coping quite well, except Juliet who had a ""blue

      period"" (think it;s still going on) and went into hibernation.

       NOW, we need to know exactly what you have been pushing down your gullet,so we can tell you that you shouldn;t have eaten THAT

      lovely to have you back in the nest  cheesygrin razz lol Jac  

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