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Dizziness, headaches, foggy, pressure in head & plugged ears

Posted , 131 users are following.

salsagirl20
salsagirl20

It's happening again, everyday it's the same thing and I don't know how to calm myself down. I think when ever I get these feeling I am going to pass out and die instantly. The dizziness gets so bad I have to hold my head and close my eyes I don't understand it. I always think I'm having a heart attack, stroke, blood clot in my head or cancer all the time because doctors still don't know why I get these symptoms. I get anxiety so bad because of the pain I get and I keep thinking the worse things. I keep thinking that i am getting the wrong diagnosis from the doctors and if I ignore the pain it is actually something serious then it's too late to do anything about it.

Tests that I got done in the last 3 years were: xray of my head and neck, mri of head, numerous blood work. I have done physio, chiro, acupuncture and massage therapy. Only thing that kind of helps is massage therapy which is what I am still doing now.

I am getting no answers and just worrying everyday. I just want these symptoms to go away I want my life back I don't feel like the same person anymore.

6 likes, 200 replies

200 Replies

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  • michelle24769
    michelle24769 salsagirl20

    Posted

    Hi salsagirl20.

    Omg i totally know what u are going through.i go through the exact same thing constant!!!and going through it now actually and cant sleep feeling like im gonna freak out because of pressure in ears dizzyness.

    Keep thinkn ill be dead before they find out whats wrong with me..all i want is to be normal again ..its very depressing!!

    • royalty
      royalty michelle24769

      Posted

      My wooziness is 24/7 no let up at all I've only had this for a few weeks but already it's stopping me doing most things. How long have you been feeling like this and how did yours start, mine was after two infections sinitis and then chest infection

    • dana25464
      dana25464 royalty

      Posted

      The last two days I have been feeling better, thank God. Some dizziness but able to do some fun things with my family. Going to the ENT and neurologist this week. Hope and pray for a healing for all of us
    • royalty
      royalty dana25464

      Posted

      Let me know how you get on best of luck. I've just been of fred a ct scan which I'm having to wait several weeks for I've also got lots of pressure on top of my head like a squeezing also today fizzing heavy legs 

    • mabel18987
      mabel18987 dana25464

      Posted

      Hello

      Did you find any answers with the neurologist? I am in the same situation of not finding any answers. I get worse everyday and all the bloodwork, CAT SCAn, and other test come back just normal. I am afraid that one day it will be too late. Nice to meet yoy.

    • royalty
      royalty dana25464

      Posted

      How did you get on when you went to see ent and neurologist 
    • dana25464
      dana25464 royalty

      Posted

      Hi there! The ENT dis a hearing test and found that I hear a little less on my left ear than my right but I am still on the normal range for both ears. She also said that my eyes bounce a little. She is sending me for a MRI next week and a balance test. The neurologist said that my B12 is low and can be causing the symptoms so now I am on 2500 MG of b12. He is sending me for a MRA of my neck, some electrode test of my brain, physical therapy for my shoulders because I am so tense and stiff there from all of the stress and anxiety this had caused me. Today I didn't feel so good and I am holding back tears as I am writing this...I am sick of being sick and I continue to pray for a healing for us all. I will keep you posted. God bless.

    • Kizini
      Kizini dana25464

      Posted

      ((Hugs ) I know how you feel. I pray for healing for us all too
  • mabel18987
    mabel18987 salsagirl20

    Posted

    Hello

    I perfectly understad you. I have been sick for five years and no doctor finds anytging. Everyday I get worse and nothing. I get very dizzy if I go down, head pressure, hot flashes( a feeling of heat from my chest to my head) skin rashes, butterfly rash, heat intolerance, very very low energy( I cannot function), severe brain fog, inflamation of my face, abdomen, arms, and a lot of more symptoms that do not allow me to go out, go to work, go to school, take care of my babies or function. I wish one day we find a doctor that cares and help us. Nice to meet you.

    Mabel

    • royalty
      royalty mabel18987

      Posted

      It's absolutely awful isn't it Mabel my symptoms have been going on for approx 7 weeks an that's enough for me extreme dizziness nausea fatigue I've given up work as couldn't do what was expected of me. I noticed you had written butterfly rash have you been diagnosed with lupus or tested for lupus 

    • mabel18987
      mabel18987 royalty

      Posted

      Yes. I have been tested for lupus like three times. Nothing. I am thinking that maybe I should go to the IR again. Have you done that?
    • mabel18987
      mabel18987 royalty

      Posted

      Thanks for the question about lupus. Did you go to a neurologist?
    • royalty
      royalty mabel18987

      Posted

      No I haven't seen neurologist as I've only been ill for just over 7 weeks my dr won't even do blood tests but cos if pressure on top of my head like being held in a vice she's asking for ct scan to be done an fatigue dizziness no energy breathlessness . What is ir ? Do you live in uk? I've seen neurologist years ago as I was tested over long period of time for ms 

    • royalty
      royalty mabel18987

      Posted

      I do find that I have what I call heavy lead legs an sometimes my right arm feels as if no power to lift up that really concerns me. All this started after two infections sinitis then chest infection
    • mabel18987
      mabel18987 royalty

      Posted

      I am very sorry. I ment ER. Emergency. I was writing fast and I wrote IR. I am from Florida. Now thank you and other people here at least I know what to ask the doctors. Why your DR dont order blood tests for you? Change Dr then. I have been doing that. I think the CT is a good idea. Now I heard that Jackson Hospital have very good Drs. I will go there.
    • royalty
      royalty mabel18987

      Posted

      I have asked my dr as I have thyroid probs underactive she said my thyroid was fine well it was few months ago,I'm not anaemic I wasn't few weeks ago either she seemed more interested in sending for scan ct one which obv I am pleased as I really need tests to see whats going on 

    • bud61060
      bud61060 royalty

      Posted

      ATTENTION!

      I have dealt with this for over 25 years. What started as cluster headaches have morphed and have the same characteristics as everyone is describing.

      This I know from extensive experience with the medical community - please seek out a Neurologist who is ALSO a headache specialist. Be certain you find one with experience and is actually involved with the National Headache Foundation, research, something other than simple claims. Years ago I spent far too much time and money with various Neurologists claiming to be knowledgeable.

      There are treatment options based on individual need. Mine is low level prednisone for about 2 to 4 weeks.

      Good luck everyone!

    • betsy70690
      betsy70690 bud61060

      Posted

      I've had migraines or headaches or some kind for 30 years and now this. I appreciate your input. I've been on the 5 day prednisone pack-no results. How did your neurologist come up with that treatment plan?

    • bud61060
      bud61060 betsy70690

      Posted

      Prednisone is used for cluster. A headache specialist needs to evaluate you. The original treatment plan had me on prednisone for six weeks starting with 30 or 40 mg per day. That proved to be an overkill and I began adjusting the dosage on my own, reducing it significantly. Basically, I started with the amount that aborted symptoms which, for me, does not need to be more than 20mg and I reduce over a period of 3 to 4 weeks max. Sometimes it only takes 2 weeks. But this is specific to my body. You need a headache specialist to rule out any other sources and then identify the headache. I have an appointment with aNeurological headache specialist at USF Health this month to see what f ther s anything new that won't require prednisone. What are your symptoms?

    • D4n1
      D4n1 bud61060

      Posted

      Hi there,

      How are you feeling now, any better?

    • D4n1
      D4n1 mabel18987

      Posted

      Hi Mabel,

      How are you? Have you been cured or still suffering?

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