1. Community
  2. Bones, joints and muscles
  3. Rheumatoid Arthritis

Does anyone know what "FLEXISEQ and its "ACTIVE INGREDIENT", SEQUESSOME", is?

Posted , 45 users are following.

william84
william84

Both are trade mark names. It is a cream meant to relieve painful joints but it is extremely expensive. Before I go out and buy it I would like to know a bit more about it. I am male, 72 years, in overall reasonable health.

1 like, 125 replies

125 Replies

Prev Next
  • sylvia64717
    sylvia64717 william84

    Posted

    Having seen this advertised in the paper, I've searched the internet for information and this forum has been very useful. I am 81 with Osteoarthritis in most of my joints but my knees bother me the most so I'm going to order one tube to begin with on Amazon UK, where it's a little cheaper at £15.03 with free delivery. I can't afford to use it on all the other troublesome joints but, as most of you will know, you become accustomed to living with a certain amount of pain when you have Arthritis in any form so I'll concentrate on my knees. At my age, I'll be very lucky if it works but will try to think positive!

     

  • cindy52759
    cindy52759 william84

    Posted

    I have tried it and it didn't work for me for more than a few minutes. I prefer Voltaren Gel. It worked better and longer. 
  • sylvia64717
    sylvia64717 william84

    Posted

    The last time I posted on this forum I said I was planning to try Flexiseq. I then searched the internet and bought 2 x 50 g. tubes on eBay for £16.20 plus £3.20 p. & p. and it WORKED!  My knees were virtually pain-free almost from day 1 but now, after using 1 tube of Flexiseq a week, the pain is back now I've run out. I've tried to re-order at the same price but he/she has no listing now. I've emailed him/her to enquire if there's any chance of buying any more as all other listings are very expensive. Have any of you found any other gels from the chemists that work as I may have to try something else. I'm not keen on the 'smelly' stuff!
    • Mistrys
      Mistrys sylvia64717

      Posted

      You could try using a glucosamine gel which is meant to help re-build the joints. Alternatively, as you have said you don't like the "smelly stuff" you cuold take a supplement - either glucosamine or rosehip.

      - Mistrys

    • sylvia64717
      sylvia64717 Mistrys

      Posted

      Thank you for your suggestions but I have tried all those with no benefit, which is why I'm so pleased with Flexiseq.  The manufacturers have apparently applied to the NHS to get it supplied on prescription & we should know later this year.  It might help if all those who have found Flexiseq beneficial ask their GPs to make enquiries about it. If enough people do this, it may speed things up.

       

    • linda94850
      linda94850 sylvia64717

      Posted

      hi

      i have tried THEM ALL from the cold gels to all the rubbish the gp has prescribed.  i had a miserable holiday last year because i could not walk - knee was so inflamed and i took ibufen pain killers all the time. each step was agony.  tried  fleseq when i came back and could not believe how it worked.  no pain walking with dog as usual.  it is expensive and being a pensioner i asked the gp but he said no although he will prescribe other stuff which does not good at all.

      i would rather cut down on other things and buy the flexiseq and would pay more if i have to because it cannot do without it.  at the moment if i can carry on like this i will not have the knee replacement done

      i do not know what else you could try and i find them all useless compared with flexiseq and cannot praise it highly enough

      take care

      linda

  • CA-Lynn
    CA-Lynn william84

    Posted

    RA is a serious, chronic disease that requires serious life-long drugs. OTC stuff is all marketing hype and won't help. Save your money.
    • sylvia64717
      sylvia64717 CA-Lynn

      Posted

      I agree with you about RA but mine is OA, which is vastly different as you will know. As I've been told not to take NSAIDS as they pose a threat to the stomach lining, and I am trying to avoid 2 knee replacements, I was happy to try Flexiseq, having researched it on the internet and found it was drug-free, but I was unprepared for the amazing result. I am not a gullible person by any means.
    • CA-Lynn
      CA-Lynn sylvia64717

      Posted

      Sorry, but since this is a forum for RA, I assumed you had RA. Hence my responses.

      There are several NSAIDS that do not pose a serious risk to the stomach lining, such as Celebrex, which I've taken at max dose for over 15 years.

      I know nothing about Flexiseq, but it sounds like a gel-form of SynVisc, which has been around for some time.

    • sylvia64717
      sylvia64717 CA-Lynn

      Posted

      Whoops!  I only got to this site when I was looking up Flexiseq so you know how these things happen. Sorry!  I suspect that the fact that I'm 81 & on BP pills (among others!) puts my Dr. off prescribing NSAIDS. However, next time I have a need to see her, I'll ask about Celebrex but I have to say I'm a bit reluctant to take any more drugs if I can manage some other way. Painkillers in moderation help but as you know, you learn to live with a degree of pain and discomfort anyway so I'm pleased that at least my knees are more comfortable with the gel. Thanks for the tip about SynVisc - I'll check that one out.
  • CA-Lynn
    CA-Lynn william84

    Posted

    RA is a serious, chronic disease that requires serious life-long drugs. OTC stuff is all marketing hype and won't help. Save your money.
  • maureen76079
    maureen76079 william84

    Posted

    Three weeks ago I was crippled with knee pain in my left leg.   It had been aching and bothering me for a long time but I was trying to ignore it and carrying on walking to town three/four times a week (1/2 hour walk) but on the Saturday I was in tears and had to sit for some considerable time before getting the bus home.  Have visited the doctor and he has said he will give me a cortisone injection but I have to have x-rays first.   This has now been arranged for this week but in the meantime I was in agony unable to put any weight on my left leg.   However, there was a money off voucher for Flexiseq in the Daily Mail and thought it was worth a try.   I can't believe the difference.   I'm not doing the walk to town but can cope with everyday things in the house and around the garden.   There is still discomfort but there is a big difference between that and unbearable pain!!!   I do think it is expensive but I can juggle the weekly budget for something like this.   I also have pain in my left thumb which has to be x-rayed but decided after a couple of days with the cream to concentrate on my knee.   I will be discussing this with my doctor after my hospital visit but so far have nothing but praise for Flexiseq.
    • sylvia64717
      sylvia64717 maureen76079

      Posted

      I've bought 3 tubes of Flexiseq Gel for £41.80 with free delivery, having searched the internet. Yesterday I emailed NICE to enquire about it being accepted for prescription use by GPs. Fingers crossed. It works for me but my problem is OA and not RA.
    • pamela84004
      pamela84004 sylvia64717

      Posted

      I asked my doc for it, as last year when it first came to light, it was only available aqt Lloyds chemists but it did say that it would available on prescription this year so when I asked my Doc for it he said that it wasn't on his list to prescribe, though I suppose it all depends on where you live and the trust that you are in!!
    • CA-Lynn
      CA-Lynn pamela84004

      Posted

      People might want to read the online reviews. Most think the product is all hype. This is supposed to be for OA, not RA. OA has good days and bad days, so it would be hard to tell if the "drug" is working or it's just a "good day."

      Save your money.

    • pamela84004
      pamela84004 sylvia64717

      Posted

      Hi Sylvia, have you had any reply from NICE with regards to Flexiseq being accepted for prescription?
    • sylvia64717
      sylvia64717 pamela84004

      Posted

      Hi Pam - No, not a peep out of them as yet!  I've  been away for a few days but must get around to chasing them. It might be an idea to mail a letter to them. If and when I do receive a reply, I'll post it on here. Meantime, I've asked the Pharmacy at my surgery if they've heard about it and they suggested I speak to my GP as they know nothing about it so I'm going to ring on Monday morning to see if she can find out anything about it. Watch this space - I don't give up easily! smile
    • pamela84004
      pamela84004 sylvia64717

      Posted

      I asked my GP, and he said it wasn't on his list of prescription drugs??? but I sometimes wonder if it depends on the individual Trust??
    • adrianos
      adrianos maureen76079

      Posted

      Maureen's experience pretty much mirrors my own- except I am back dancing and apart from the occasional 'twinge' I am as right as ninepence
    • maureen76079
      maureen76079 adrianos

      Posted

      Well done, Adrianos!!   I am just back from doctor who has given me a steriod injection in the knee.   My x-rays showed damage to the cartilage which is exactly what Flexiseq is designed for.  I am going to stop using it on my knee although it was a success and wait for the injection to do its work and will be using Flexiseq on the thumb area where I have quite considerable pain also.  Doctor has referred me to a specialist as the injection I require for that area needs to be done there and there is quite a long waiting list.   However, I am being posiive about the results with Flexiseq.   Doctor did check to see if it could be prescribed but no luck!!
    • sylvia64717
      sylvia64717 pamela84004

      Posted

      Hi Pam - Sorry for the delay but I eventually received the following from NICE:  "In order for a product to be available on NHS prescription, it must be included on the Drug Tariff. From searching on-line, I understand that Flexiseq is classed as a medical device and is not included in the relevant section of the Drug Tariff. Therefore, it cannot be prescribed on NHS prescriptions.  Responsibility for the Drug Tariff falls under the remit of the Department of Health."  Not sure which dictionary they're using to call it a 'device' though - def. not the Oxford!  So, back to Square 1 I'm afraid! I'm still using Flexiseq but now my shoulders are giving me pain so am using it on those as well as my knees. Doesn't stop the pain but definitely makes it much easier to carry on without resorting to my NSAIDS unless I have a 'heavy day' ahead or have overdone things the day before!  I'd need a large container of Flexiseq to treat all my O/A joints so am just choosing the most painful ones!
    • pamela84004
      pamela84004 sylvia64717

      Posted

      Thanks Sylvia I am still using it and feeling OK I take an Ibuprofen every now and again if it's too bad but on the whole I'm fine I'm hoping to play bowls again next yearfingers crossed
Back to top
Prev Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.