Esmya Tablets Fibroid Treatment

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Hello I'm 44 and have recently been diagnosed with a 11cm Fibroid, my Gyno has put me on Esmya to try and shrink the fibroid, I just wondered if any one could me advice or their review as its fairly new treatment and can't find anyone who has tried it.

Thank you

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  • Posted

    Trust your Gyno. If you have side effects, ignore it.. The Gyno won't recommend it other wise.. Don't go for hysterectomy.. Though your fibroid is big.. You can opt for myomectomy. Has she talked to you about focussed Ultrasound treatment (HIFU).
  • Posted

    hi i´m jay writing in from germany and i just stumbled upon this forum. i was also placed on Esmya for 4 months but would be having a pre-check on Sept. 16th. i´m happy for you sue and hope u heal fast.

    i just got married and we would love to have kids. please i´d like to now what the chances for conception are with the drugs. the only side effects i had are headache and nausea.

    is it possible to get pregnant while taking the drugs?

  • Posted

    my gynae believes it would be ok by three months ( i was diagonised with myomia)
  • Posted

    Hi Joy54, I have been told by my gynae that even if Esmya completely stops your periods you CAN still get pregnant whilst taking it.

    Hope it works for you

  • Posted

    Hi I was told absolutely by my consultant that although tablets would stop any bleeding you need to use contraception (condoms) I'm on week two of tablets and no side effects at all! Feeling much better
  • Posted

    I am now on Week 4 of my tablets and still not much improvement, still getting heavy bleeding albeit intermittently but now also getting a foul smelling discharge as well with thick mucus. Not pleasant, I have spoken to my gynae and she said it is probably the fibroid breaking down but I am not convinced.

    Am I the only one who is not seeing any results from these tablets??

    Feeling a bit disappointed and deflated but going to stick with it and see what happens, I've got nothing to lose eh?

  • Posted

    Hi thanks for this forum. I just got my Esmya and I took one yesterday and today I didn't want to take it until I get my period which is going to be soon. I was worried in case I stop my period this time and the leaflet says to start taking within the first week of your period. I know it will stop my period for the next two cycle but wasn't sure I could take it now before my period start. Does any one know? I will have Abdominal Myomectomy bikini line in 3 months time, my fibroids size 8cm and 5cm. Not had a child yet. My only worries is complications during and after the surgery such as emergency hysterectomy and adhesions that will affect my future chance of having children. Also , will I be able to return to work in two weeks time if go to work twice a week? - I'm a self employed.
  • Posted

    Hi sam1909, I began esmya half way through a cycle, I know the guidance says different, however my

    consultant did not appear concerned. I finished my 3 months last week, have missed 2 periods which has

    been wonderful, and my tummy does appear now to be looking larger again? I am not sure about your type of surgery and the fact you have not had children yet, ask more questions this will put your mind at rest.

    Hope everything goes well for you, I had a few feelings of braxton hicks on the first few days, and did feel

    tired initially, and have had hot sweats, I am (45) but other than that had no other symptoms. My

    myomectomy is 2 weeks today, and now I have been period free, I have realised how freeing this has been, and the impact this has had on my life. With all this hot weather as well.

  • Posted

    thanks Valerie for the reply. I got my period today and started taking the tablet. I hope Esmya will shrink the fibroids. Not planned to have children yet but would like to in a year or two. I read that the tablet effectiveness depends on the location of the fibroids. Works better on intramural than pedunculated. I have booth and wonder if they will scan me before the surgery to see if my fibroids got smaller :-\

    I found this article useful:

    http://www.hersfoundation.com/docs/Fibroids.html

    I hope this is true: By about age 40, women have all the fibroids they are ever going to have. Rarely will a new fibroid develop after about the age 40.

    ... for women in their late 30's to early 40's who have fibroids, the size of the uterus including the fibroids is, on average, about the size of a 10-12 week pregnancy--about 13cm in the largest dimension. In the middle 40's, the uterus including fibroids is, on average, about the size of a 14-16 week pregnancy--about 17cm in the largest dimension.... etc

    I'm lucky to get the Esmya under NHS. If you are getting it on private, shop around for good price - 28 tabs could cost you £188 in one pharmacy or £157 or £128 in another.

    Anyone who started work two weeks after myomectomy, what activities you can not do after 2-weeks?

  • Posted

    Hello Ladies - I have had 2 courses of esmya.

    Here are my experiences with esmya. I was diagnosed for multiple fibroids a year ago. The largest was 9 cm, a second one was 6 cm and others of various smaller sizes. I was told to go away and consider my options - the consultant advised me to research the internet. I saw him in September 2012 and asked for a myomectomy. He thought I wasn't a candidate due to the fibroids being too large, so he gave me a prescription for esmya and told me to come back after that.

    I took esmya every day for 12 weeks. The reduction in symptoms was amazing: my periods virtually disappeared, I could finish an average sized dinner and I stopped taking involuntary gasps of breath. My energy levels went up and I felt dramatically better.

    Due to some administration errors I wasn't seen in the hospital again until May 2013. My symptoms had just started to return - my periods were incredibly heavy and I began feeling heavy within myself. I saw a different doctor and he told me I could have a myomectomy and that I should have had one the previous year. He gave me a second prescription for esmya. He told me that at a conference on fibroids attended by a number of European doctors, they were giving good overall reports on esmya and were recommending 12 weeks on and 12 weeks off.

    Due to other complications I have opted for a myomectomy, but I have almost completed my second course of esmya while I wait for surgery. The fibroids have definitely shrunk, as every woman I know told me I look flatter, but my periods have been so bad that I am now using a herbal remedy (which has worked very well to stem bleeding). I haven't had any side-effects from taking esmya twice, but I hope I have surgery soon. If I don't, I would opt for a third course of esmya, because I look and feel much better with it, than without.

  • Posted

    I am 42 years old, and had been suffering with very heavy periods, so my doctor requested blood tests and ultrasound scan which revealed a large fibroid.

    She also prescribed Tranexamic acid for the first 4 days of my period which have helped the last 2 months.

    I was then referred to the hospital who advised it's too large to remove at the moment, so have been given a 3 month course of Esmya, and am due to go back to the hospital in 6 weeks time for another scan to see if it has reduced.

    I am only on my 3rd day of tablets and been very tired, after an emotional day at the hospital, and been feeling dizzy and light headed when I stand up and move about, and very intense headaches. I have read the side effects and this can be normal, however has anyone experienced this so early in taking the medication?

    The consultant advised that I will not get pregnant whilst I have this tumour, however they will help and support me to get pregnant as I haven't yet managed to have any children.

    Am hoping the dizzyness stops soon, and it's just a sign of the tablets just getting into my system.

  • Posted

    Hi Kim216

    I'm in week 11 of taking Esmya now. The first 2 weeks I was absolutely exhausted and felt sick and dizzy all the time, I also seemed to cry a lot! A bit like having constant PMT of the worst kind! The good news is that those symptoms wore off and the last 2 months I've been fine.

    I have just had a scan though and whilst I thought my fibroid had shrunk it turns out that it hasn't at all which is really disheartening :-(

    I'm going back to see my consultant in a couple of weeks to discuss options.

    I hope it works for you :-)

  • Posted

    Thanks Gillmh for you quick reply back.

    Sorry to hear that yours hasn't shrunk, I guess they don't work for everyone, but do understand that there are lots of things that they can try.

    Am hoping that the feeling ill stops soon, it's got to be better than very heavy periods and stomach pains.

    Here's hoping they work.

  • Posted

    Hi Kim

    I ended up taking a few days off work as I was so tired, but it didn't last long, I'm sure you'll be fine in a couple of weeks :-) x

  • Posted

    4 days post Total Laparoscopic Hysterectomy.

    The larger fibroid did not shrink however my consultant/surgeon said it had become softer.

    I took 4 boxes in total was not allowed a 5th box so ran out of tablets 12 days pre op had what must have been but didn't realise at the time as the worst episode of pmt I had ever had in my life!

    I am 51 my periods stopped as soon as I started taking Esyma BY CHANCE i STARTED TAKING THEM 1ST DAY OF MY PERIOD AS NO ONE TELLS YOU THIS UNTIL YOU READ THE PACKET.

    I can't say I have ever had a hot flush. Extreme Fatique wasn't long of kicking in and by the 3rd packet I felt like a slug. I had my blood checked and it was fine.I was borderline Thyroid so I took some sea kelp and multivits but they didn't help.

    I am about to stick on my 1st Elleste Solo 40 patch!

    When I asked the Doc about HRT PATCHES at hospital after my op (as I was advised to do at my pre-op with The Sister) the young lady Doctor looked at me and said-----------------

    "You are 51"-------I nodded my head

    " HRT is for young women"-----------well I made sure I got them and I am now considering asking for VAGIFEM 10mcg (vaginal estrogen tablet) I believe this would help among other things with 'the leaking'

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