Facial tingling with sinusitis

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Hi... was wondering if anyone else has experienced this... I have sinusitis but no mucus but have facial pain with tingling around my nose cheek and pain above my brow.. I thought it might be my teeth.. but my dentist took an xray and it wasn't... but she could see sinus congestion on the xray! I've had this on and off for about 10years and have been referred to both max fax and ent... who have both discharged me.... the pain gets worse when I'm stressed or anxious which makes me think it's pycholological.... but the pain definately feels real.... I've been prescribed amoxicillin and been told to increase my amitriptyline to 50mg.... I'm at the end of my tether as is my husband.... has anyone else has tingling pain with sinusitis???? Many thanks

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  • Posted

    Hi All,

    It’s funny reading some of these posts, I’ve been trying to link my misterious illnesses over the past few years. Like many of you I haven’t had much help from doctors!

    I started having the chronic headaches and assosiated facial pain and sensations about 5 years ago, I never really knew why.

    Years later, I started having frequency in urination, eventually followed by pelvic pain, then eventually chronic gut pain and digestive issues.

    I was lucky enough to discover and integrative doctor whom ordered a test that measures levels of bacteria in the gut, the results I got came back an revealed I had a serious over growth in bad bacteria and a significant undergrowth in good bacteria.

    Knowing my past experience with doctors I decided to set out to treat myself and started learning as much as I could about this condition. I started treating it with antifungal herbs, diet and probiotics and after suffering for months and months with chronic gut issues, the problems resolved almost overnight. The funny thing was that the headaches, neck pain, facial sensations, urination and pelvic pain went too! I actually couldn’t believe it!

    Anyhow, I thought i was healed and started drinking alcohol again and slipped up on the diet and I’m back with the head pain and facials sensations, which has been a month or so.

    I started researching the link between all my symptoms and found a common link between where I found all my pain. Sinuses, Prostate and Gut - the three most common places where once has an infection. I’m almost convinced now that I, and likely all you are suffering with either a low chronic bacterial/fungus/yeast/candida infection that causes primary symptoms such as headaches and gut issues, but also secondary symptoms like joint pain, muscle pain, insomnia, dizziness, cold limbs, fatigue, tearing, digestive issues, cognitive issues plus loads more, and that doctors have not got a clue about this condition. I’d really love to speak to some of you and see if you and your symptoms can back up any of my research... 

    • Posted

      Hi jac nice to have your input but I have to say my diagnostic journey began with a 6 month course of antibiotics to rule out such infection based probkems and it made ni difference.

      After a year of treatment and attending clinic I was diagnosed with a form of vasculitis which linked all of my symptoms and explained a lifetime of such problems which had previously been unexplained. Treatment has addressed all of them and put me into remission for 4 years. I now have 'creeping' symptoms coming back slowly but a drug called plaquenil has helped with many of them including the chronic sinus problems the gastritis and joint pain. Oh and fatigue is greatky improved too. X

    • Posted

      Hi Margaret - antibiotics may not have worked because you might have had antibiotic resistant bacteria. Bacteria build up a tolerance to antibiotics which is when they don’t become effective, Yeast and fungus don’t respond to antibiotics either.

      i think vasculitis is an autoimmune condition, as is chrons disease. It’s now understood that those diagnosed with chrons disease have an ultered gut flora and over growth in certain bacteria is actually a marker for chrons. 

      I’m no expert, but I would assume that if an autoimmune condition is caused by bacteria in the gut, why couldn’t it be caused by bacteria or fungus elsewhere?

    • Posted

      Sorry to disagree but there is no evidence that vasculitis is caused by bacteria in the gut. I am seen by a world authority on vasculitis in Cambridge and he - like others - believe that the condition has a genetic basis. I understand why people want to believe that it is caused by bacteria or whatever makes it easier to treat and therefore 'cure'. Sadly there is currently no cure for vasculitis. I hope in the near future there will be. Research continues to make strides but as it stands, I just don't agree on your view that vasculitis is caused by bacteria. If others think they can control vasculitis by treating their gut issues it is obviously everyone;s right to do so. I just think personally it will alleviate some symptoms but not get rid of them. 

    • Posted

      Fair enough on that judgement, but, all the evidence today is there from scientific studies that have been subsidised by pharmaceutical companies. The same pharmaceutical companies that know if the cure the disease, there is no need for you to keep coming back for treatment after treatment and prescription after prescription. I don’t subside to western medicine, it’s been brought and has been forever. All types of treatment are symptomatic treatment, rather than root cause. 
    • Posted

      Yes we can agree to disagree on this one to be honest. Just for what it's worth I am treated by a great specialist who is anti as much meds as he can be. He will not treat people who are 'over medicated'. But it seems ironic to suggest that I try more anti biotics rather than any other drugs if you're anti drug. I only currently use one form of medication for vasculitis and it's pretty low level tbh. I don't believe in pumping myself full of drugs and rarely even use painkillers. Often they will cause as many problems as they solve. But everyone must be driven by their own beliefs and practices. Good luck with it. I genuinely hope it works for you. 

  • Posted

    Hi. Just experienced tingling in the edge of my upper lip. I started intranasal flush with budenoside some time now. I think it's the drug and not the sinusitis per second that causes tingling

  • Posted

    It's been a cripler for me. Made me insane trying to get to the bottom of it. Finally Flonase / antihistamine make so much difference - just glad I figured it out -

    • Posted

      Hi Curt, can I ask when you started Flonase and the antihistamine were you congested at all? Doctor suggested I try that for the numbness especially in the nose but I don't feel like I have sinuses as I can breathe just fine.

  • Posted

    Dear 'Sue',  I empathise with you.  Have just been diagnosed with facial pain and also have the same sinus feelings as yourself.  I am doing steam inhalation.  Visited a good homeopath and am seeing a craniologist soon.  

    ?It seems, from what I have read, that it can be tricky to know what is causing this feeling.  I know it is hard, but keep faith and hope alive.  You are not imagining anything.  My own symptoms are pain, sometimes pressure, and terrible nausea.  I try to keep busy, but just fighting the condition can be exhausting.  People do not always understand.  You do what works for you.  I have had this for about 5 years.

    My best wishes to you and I pray that we both recover from this.

  • Posted

    Did you receive my post?  Not done this before, so hope you got it.  If not can re-write later.

    All the very best.

  • Posted

    Hi sue 

    Read this discussion today . I have almost all these symptoms since last year .

    It started with sinus problem , then gave numbing feeling and rifling on left side of face sometimes above the lips and sometimes on cheeks or under the left eye.

    Dr put me on Prednisone and Anti virals which didn’t help at all but made me feel dizzy all the time ..

    Also I have been experiencing a strange feeling of sudden dizziness or suddenly

    I feel very hot and sometimes faint .

    Got MRI and Ct scan .

    Have sinus .. it’s hereditary for me .

    When ever I wake up I feel my face is numb or tingling . Even got checked by my dentist if it’s the crowns I got last year . She says no it’s not bec of that .

    Also as I was reading this discussion I remember that sometimes if I am stressed this tingling comes back .

    Don’t know what to do .

  • Posted

    I know this post has been going on for over a year but it's really relevant for me. I have suffered with chronic sinus problems my whole life. But recently I am really going through the ringer. I got a cold around Christmas and it turned into a sinus infection like it usually does. This one has been hanging on. I had 10 days of Amoxicillin and it was quite a ride with that. I usually get a z pak but this particular doctor that saw me had me take the Amoxicillin. I ended up having tinnitus in my left ear for two days. I heard buzzing and ringing and was dizzy. I went to my ENT in a panic because I thought I had a brain tumor and was losing my hearing. Everything turned out to be fine. That kind of cleared and I pretty much felt better and now that I am done with these antibiotics for a couple of days now I have facial tingling in my cheeks and face again. That set of my anxiety and is giving me panic attacks. I feel like there are little bugs crawling on my nose and face. I have hot flashes because I am menopausal and that makes it all the worse. I feel like I am losing my mind because I am so frustrated. I don't want to keep running back to my ENT because I get the feeling he thinks I am exaggerating. I do have some arthritis in my jaw and have starting using a bite guard at night because I think I clench my teeth in the night. I blame stress and anxiety. But I am not imagining my congestion and tingling! I hate that feeling and it's very real. Oh let me add in that I get allergy shots every 2 weeks and have been doing that for 4 years. This is my cross to bear in life. I know others have diseases and conditions worse than mine, but at times it is a living hell and quite frankly I get depressed about it. I just want to feel normal. Thanks for letting me share my story. I hope you all are better!

    • Posted

      I feel ur pain my dear I have suffered  for years. although I have no news in regards to making u feel better. what I can tell u is that u r not alone. and yes there is some guilt because u believe that there r people with worst ailments in the world. but do not sell ur self short although it  is true that people do suffer from far worst things. this ailment can be very debilitating especially when u deal with it on a day to day basis.u just want to feel better. anything chronic can really screw  with ur quality of life. my symptoms r the worst upon waking up and some morning it is bad.  also not   having people understand what I go through doesn’t help.  now adays I just stop explaining myself. this one of those ailments that u can look great on the outside, but instead u r experiencing a number of different symptoms. I know i did not give u any rememdies,  but i am just letting u know once again u r not alone. 
    • Posted

      It does seem like you have some underlying issue going on as I do. I have an auto immune disease and get your symptoms. Though not any more because I have had various treatments which have worked for me. At present hydroxychloroquine is working for me to ease joint pain and at the same time dampen the inflammation in my sinuses and my stomach....I have gastritis too. All of which has one cause, auto immune auto inflammatory disorder. Perhaps you need to see a different kind of doctor. ENT were useless to me and didn't understand what was going on. I only managed to progress after a lifetime of suffering by seeing an rheumatologist and then an immunologist who was able to diagnose the problem properly for me. Good luck. 

    • Posted

      Thank you.  Recently I have found that drinking 2.5 litres of water a day seems to be helping.  Also I have had three sessions with a homeopath.  The doctors do not have an answer to this and from my experience always send you away with a prescription that doesn't help the condition.

      ?There is a charity called The Trigeminal Neuralgia Association UK.  From my experience it is excellent,  both the website and the person I spoke with on the helpline.  They have knowledge about various types of facial pain and it is not at all expensive to join.

      ?Thank you for your supportive post.

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