Facial tingling with sinusitis
Posted , 53 users are following.
Hi... was wondering if anyone else has experienced this... I have sinusitis but no mucus but have facial pain with tingling around my nose cheek and pain above my brow.. I thought it might be my teeth.. but my dentist took an xray and it wasn't... but she could see sinus congestion on the xray! I've had this on and off for about 10years and have been referred to both max fax and ent... who have both discharged me.... the pain gets worse when I'm stressed or anxious which makes me think it's pycholological.... but the pain definately feels real.... I've been prescribed amoxicillin and been told to increase my amitriptyline to 50mg.... I'm at the end of my tether as is my husband.... has anyone else has tingling pain with sinusitis???? Many thanks
5 likes, 115 replies
dilateyourmind Sue654851
Posted
Just wanted to chime in with a ME TOO! Signed up here just for this discussion. About to turn 48, this stuff really kicked in at 43. Clear CT of sinus and brain. I have Ehlers-Danlos.(double jointed) I definitely had the mold exposure. Also increases with excitement or being anxious. That has gone on for 10 years. Had issues with Candida from 97-2003, that I knew of. The dizziness is getting worse for me. Dysautonomia is often comorbid with EDS. (Wanted to throw both out there for anyone to research and see if it clicks with them) "preservatives in some wine, too much alcohol, fatigue or stress." Also triggers me in just the last year. . Mast Cell activation is another to research with chronic sinus issues. I have several ideas of what it is but nothing nor can any doc confirm. Recently started having reactions to Lidocaine, due to over exposure. THAT has me fearful of onset of autoimmune issues. I know this is all being triggered as a whole by peri-menopause. Hormones are the devil. Anyway, just wanted to add my info and be involved if anyone comes to any other good conclusions on this. Thanks, ladies. Tracey
margaret22116 dilateyourmind
Posted
Mino911 dilateyourmind
Posted
Hi Tracey I do hope you find the answer you are looking for I am sorry I do not have any for you but I have picked up on something you've mentioned regarding"being peri-menapausal & hormones playing havoc"....
Are you saying that the menapause could be causing some of my symptoms, as I am menapausal?
Thanks Mino
chrissyp14 Sue654851
Posted
I have had similar symptoms for 5 months, numbness to nose bridge and almost skin crawl type sensation
Tingly_Cheek Sue654851
Posted
I have numbness and tingling in my right cheek and dental x-rays show nothing...
A hygienist suspected trigeminal neuralgia and referred my to a neurologist. According to Johns Hopkins Medical Library, trigeminal neuralgia is a condition characterized by pain coming from the trigeminal nerve, which affects the face — most commonly one side of the jaw or cheek. The pain of trigeminal neuralgia is unlike facial pain caused by other problems.
I developed this condition when I returned to an extremely high levels of pollen, flu, and emotional stress. I also have "MS" since 1990.
Tingly_Cheek Sue654851
Posted
According to Johns Hopkins Medical Library, Trigeminal neuralgia is a condition characterized by pain coming from the trigeminal nerve, which affects the face — most commonly one side of the jaw or cheek. The pain of trigeminal neuralgia is unlike facial pain caused by other problems.
Like "MS"
lax16731 Sue654851
Posted
Sue65485 - i'am having similar symptoms - what was the treatment that was successful ?. thx!
jennyhall33 Sue654851
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Omg. To a Tee... Is there any reply on this thread that has had some kind of resolution??
Literally left my neurologists office crying today because it was 0 help once again. MRI and CT scan show up fine. Blood work fine. But for a week straight now my entire nose feels numb and it spreads to my left cheek and to the right some times as well. But it's been soo persistent.
It's creating a whole new-found anxiety, my bf has been such a champ in trying to support and help me figure out the cause but nothing I've found online is matching up. My only guess is there's some type of nerve damage or nerve being pushed against. It's not necessarily painful, but it doesn't feel good. 😦
Carl150 jennyhall33
Posted
Hi, I've commented on this thread a couple of times abt a year ago. Anyway I started with the facial tingling two years ago next month, it was just a little pins and needles sensation at the bridge of the nose at the start, then it went to the whole nose and behind the right eye a painless pounding numbness constantly. also by xmas of 2017 my nose became blocked(Right nostril) and its still blocked to this day.
I've seen 4 Diferent ENT specialist and 3 Neurologist. Two Mri and 3 CT scans, every blood test going and still no answers. ive been on just abt every drug going, I can't even have a go at these consultants as thev'e been brilliant. I'm still searching for a diagnosis two years on but I have a feeling its just not going to happen.
chrissyp14 Carl150
Posted
HI Carl,
Do you suffer with anxiety?
Carl150 chrissyp14
Posted
Not really no, the ENT specialist did say that he could perform turbinate surgery as it could help, but not great odds, he also said that the other facial sensations bridge of nose, eye, were a seperate issue and not connected. I did beg to differ on that as they started at the same time and are still here right now.
I've used the NHS and also self funded all this. As i said before it just gets you down not having any sort of diagnosis.
chrissyp14 Carl150
Posted
yes know the feeling, I have a nose bridge issue that affects skull/teeth area at times. ENT (private) recommended MRI and neurology - after awaiting 5 months on NHS I have now seen the Neuro specialist who has never heard of it. Now have a MRI to come and maybe see if the is a nerve, brain or sinus issue.
I have looked into it and thinking possibly anxiety and or alcohol affecting the nerves.
Carl150 chrissyp14
Posted
A similar thing to me then, I've just been ticking every box possible. Had all my teeth checked as I'd had a problematic tooth, Nope wasn't that. Eyes tested twice, same again. I'm currently thinking abt having another MRI, private again. I'm just absolutely convinced something's been missed, Unlikely I know but I have got to keep going to try and get this resolved.
At first the neourogist thought something may be pushing on the triganamol nerve to cause me these issues. But it wasn't the case. When the first MRI scan was done.
I'll have to keep soldiering on I guess.
jennyhall33 Sue654851
Posted
Update- I am still having sensation daily but it's not as intense. I have had a massage over the weekend that worked deep neck tissue, shoulder, and back. That helped some. But didn't address this issues. I have an ENT apt and a new neurology apt this week. Hope I walk away with some better clarity and answers.
I've also bought Magnesium and b12 which I've read improves nerve function and overall health. Can't hurt.
The feelings in nose seem to still be present but also staying on the right side of cheek. sometimes I feel it on both, but for the most part it's just the left and alll over the bridge of my nose.
Need to be cleaning up my diet a little better and getting a stricter workout regimen.
Will keep everyone posted after my apointments this week.
J
chrissyp14 jennyhall33
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Cheers Jenny from the block 😃
Please do post a update!
jennyhall33
Posted
update- 11/11/18
Unfortunatelty I'm still dealing with this strange issue.
everyday it comes on about 2-4 hours after waking up and persists pretty much all day.
EnT cleared me for any sinus issues.. new neuro thinks its "atypical facial pain with migraine variances.." idk what to think of that really either. he suggedted b2 & magnesium and orescribed me 100mg daily GABAPENTIN which is supposed to help with nerve pain. ive been on it for about 11 days now and cant say its helped much, some days it feels like it dillutes the feeling but its still very much there. Ive been getting sensations on both sides of my upper cheek bone as well. not sure how much longer ill continue with the gabapentin. unless it suddenly helps cure it completely which is unlikely id rather not be taking a medication, it does create a bit of lethargy and fog in morning.
keep on keepin on everyone , theres gotta be light at the end of the tunnel.
jennyhall33
Posted
also think its possible its related to trigeminal nerve i know that is associated with just one side of the face typically and accompanied by quick painful electric shocks but nothing is text book black and white.
i may push for another mri soon just to be sure.
but i will keep fighting because its our health, our bodies. and i am way too young to deal with the onset of something like this ..