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Finally found the cause of my Prostatitis

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michael82149
michael82149

After my 2nd test of just providing a semen sample, Staphylococcus was found to be my problem causing prostatitis.  This is good news to me since I have been dealing with this for 7 months and on and off for years.  I was on 2 weeks of Cipro and since it did not work and I am allergic to shell fish so Bactrim will not work, the doctor would like to administer the antibiotics via poss IV ABX, every day for 28 days.  The clinic is close by me thank God and will be in an out in an hour each day.  Does anyone have experience with this procedure for Bacterial Prostatitis?

5 likes, 212 replies

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  • keith42667
    keith42667 michael82149

    Posted

    I'd like to ask what is perhaps a dumb question.  

    I had protatitis a short time ago.  The Dr. led me to beleive that my swollen prostate could be caused by the protatitis.  He treated me first with sulphameth; after 2 weeks of that he had me take 10 days of Cipro.  

    I was kind of confused about the follow up.  The doctor never called me to come in and test to see if the infection was gone; just a simple urine test was what he used the first time.  Since then another office did a urine test and said I was clear now.  But... anyway, I have not had anyone say to me "we were wrong about that being the cause of your swollen prostate."  If the infection is gone, shouldn't the swelling go down?  I also had severe urinary retention which may have been the cause of the prostatitis.  

    • michael82149
      michael82149 keith42667

      Posted

      Almost all prostatitis is bacterial and almost never shows up on urine culture. Get a semon culture and a urine DNA test done. That will find what you have so you can treat it with the correct antibiotics.
  • Supertractorman
    Supertractorman michael82149

    Edited

    Wonder if anyone can advise, is the test of urine DNA and semen culture expensive to do ?, anybody from Scotland had it done on NHS ?.   My urine infections have come back again and my Specialist is suggesting another 28 days of Ertapenem IV antibiotics attending hospital daily, but in reading this thread it would seem that they are not really getting to the source of the problem and that infections are lurking in the background. Also if you continue to have IV treatment is there any risk to your veins even although you have the deep needle in your veins ?.  All this for me stems from Sepsis.
    • michael82149
      michael82149 Supertractorman

      Posted

      I will IM you the name of the lab I used but their are many.  The cost was $169 USD and takes about a week.  They are really nice people when I call.   They will mail you a sample kit I think or have your doctor resister.  I just had my second test done after 28 days of Leviquine and I still have a moderate bacterial load.  I won't have the comprehensive results back until Thursday which will show the actual bacteria and strength of it left.  I had a high bacterial load when I first tested so it has come down moderate but not gone.  I am feeling better but not all better so it makes sense that the bacteria is down but not gone.  The report from my first test showed a gram positive and gram negitive bacteria.  I was treated for the gram negative with the levaquine.  I suspect the gram neg bacteria is just about gone if not gone and the gram pos is what's left.  You would think the leviquine would kill both but not according to the DNA sequencing findings.  Levaquine was not active against the gram pos (staph) bug.   I also had my semon retested and results will be back on Monday.  To make matters more complicated the staph found in my semon was different then the staph found in my urine and again the leviquine was not recommended for the staph in my semon also.  When I spoke to my doctor last week, the plan is to treat me with Doxe and bactim together for 6 weeks if our suspensions are correct that I still have all the bugs left just at a lower bacterial load.  According to the DNA results, the bugs are sensitive to Bactrim which will kill the gram pos staph in my semon and the gram neg bacteria in my prostate and Doxe will kill the staph in my prostate.  Why my doctor didn't start with this knowing the results is still beyond my understanding.  Lastly, my urologist is really good.  After the urine culture came back negative he moved to the semon culture and the urine DNA test, he did not guess at anything.  He did a cystoscopy  and a rectal ultrasound to check for anything else.  When they came back negative, he said, you have bacterial prostatitis, we know the bugs and we know the antibiotics to use.  Until your Semon and DNA come back negitive, we will keep treating it as that, so relax.  LOL.  Easy for him to say...

    • uncklefester
      uncklefester michael82149

      Posted

      Michael, What country are you in? Can you PM where you had your semen culture test done.

      Thanks

    • michael82149
      michael82149 uncklefester

      Posted

      I am in the US tampa FL. The semon test was a simple test for bacteral growth done by a culter lab locally. The DNA lab is in Texas and my urin was shipped to them. Their are a few labs that do it. Micro-gen is the lab I used. Doing a simple urine test for prostatities is absolutely useless..
    • uncklefester
      uncklefester michael82149

      Posted

      Thanks,  for the info. So you decided to get the tests done and pay for it out of pocket? I assume you did an internet search to find a lab near you. What phrase did you use to search for a lab? I've asked my uros for a semen culture all ,said it was unnecessary even though I had classic prostatis symptoms. 

      Thanks

    • michael82149
      michael82149 uncklefester

      Posted

      My insurance covered it and my urologist ordered it. The lab is micro-gen next gen sequencing.
    • michael82149
      michael82149 uncklefester

      Posted

      yes my uro ordered it after the negative basic urine culture. The Saph found was different than the urine dna so it's important. I have had prostatitis on and off for 10 years, i am 45 and finally found a uro that knew it was bacteria and knew how to find it. I would suggest u find a good uro that will do the same. 10 years of this crap, I am finally at the end of this. getting the bugs identified is the key to this mess.

    • uncklefester
      uncklefester michael82149

      Posted

      Glad to hear you've found whats causing your prostitis . Sounds like you found a good uro that listens and is willing to try. Most just want to start cutting

    • gdhomy2018
      gdhomy2018 michael82149

      Posted

      Michael what lap did you get your kit form do you have a name or website or number for labs you got your test kits from.
  • michael82149
    michael82149

    Posted

    New updated, 2nd semon test came back negative for Staph Epidimias (yes!). Waiting on second urine DNA but the pre screen found a lower load of bacteria (10 to the 5th power down from 10 to the 7th). The comprehensive results are back Thursday and will break down how much of each bug is left and what antibiotics to use) Leviquin killed the semon staph and knocked down the prostate infection but still not gone. I am feeling 60% better so this makes sense the bacteria is less but not gone. According to the DNA antibiotic chart their is not a single antibiotic that will work for both of the bugs I have left. I look forward the the antibiotic cocktail my uro comes up with for round two... The good news is I am feeling better and not stressed because I know exactly what I have, what's left and what antibiotic weapon to choose next.

    • MichaelVM7
      MichaelVM7 michael82149

      Posted

      That sounds good Michael - a 99% reduction in original bacterial load - but is 10^5 still bad?

      Did your Uro do prostate massage to get a sample of semen or prostate fluid?  Did his office send the sample to the lab?

      I'm confused on the process. 

      I wonder if I need to see an infectious disease specialist?  What is the purpose of DNA testing?  

      I've talked to other men and no one knows any Uro who does this type of testing. 

      Last question: any side effects from being on antibiotics for so long?

      Thanks 

      Michael 

    • michael82149
      michael82149 MichaelVM7

      Posted

      Hi, 10 to the 5th is much better then the first 10 to the 7th but the 28 days of leviquin killed the gram negative infections.  The processes was -

      1 - Uro did prostate massage and I did urine culture with prostate fluid (Negative) was put on Cipro.

      2 - 1 month later, no improvement, did Semen and Urine DNA test. (3 bugs found) 1 in semen and 2 in urine DNA all done by uro

      3 - 1 month later - did semen and urine test again.  Semen negative, urine DNA positive for remaining staph, 1 of the 2 bugs found in the first culture.  Staph was resistant to Methicicillin drugs found from the DNA lab.  Urine was also sent to normal lab for culture and was negative....

      4 - Put on 14 days of amoxicillin to treat the remaining staph

      5- Gong back in 28 days to retest urine to be sure it's gone.

      Again, all done by my uro at USF in Tampa.  I have been dealing with this for 9 months and it's getting better but it's not gone yet but I can function almost normally again. 

    • MichaelVM7
      MichaelVM7 michael82149

      Posted

      Wow, that's a lot of Abx.  Did your doc suggest probiotics to replenish your gut?

      My Uro won't do a prostate message.  I just try to build up my immune system with oregano oil, vitamin D, etc. 

      I have nowhere else to turn. I'm 2000 miles from Tampa. 

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